#dementia #AFTD #writing

Mom and Dad dancing

"My mom has a dementia?"
I asked the question as plainly as I could because I needed the doctor to say it in words I could understand.
This was my mother sitting in the room with us. My mother, who had always seemed larger than the room itself.
substack.com/@deniseeverh...

Music therapy in memory care: What the research says Experts explain why music often reaches people with dementia when words can’t, plus how it can be used in memory care and at home.

Music therapy in memory care: What the research says www.care.com/c/music-ther...

#Alzheimers #dementia #caregiving #music

‘Music is like vitamins:’ Singing circle offers support for people with dementia AMSTERDAM — Megan Worthy still recalls singing in a choir in the Australian capital, Canberra, as she was growing up. Now, as a rare form of early-onset dementia chips away at her vision and other bra...

‘Music is like vitamins:’ Singing circle offers support for people with dementia www.altoonamirror.com/news/seniors...

#Alzheimers #dementia #music #singing #mentalhealth #happiness

#writingfeeds #dementia #books #memoir

Here is a story about my Mom who died in 2024 from bvFTD complications:
deniseeverhart.substack.com/publish/post...

@dementiacommunity.bsky.social @emmawillis.bsky.social

deniseeverhart.com

Prime Minister of Spain Pedro Sánchez:

“The Government of Spain will not applaud those who set the world on fire just because they show up with a bucket.”

🍿

Catch-22 by Joseph Heller

"The enemy is anybody who's going to get you killed, no matter which side he's on."

- Capt. John Yossarian in Joseph Heller's satirical novel Catch-22 (1961)

#Booksky #literature #quotes 🖋️📚

‘Nothing prepares you’: The invisible lives of carers in the UK Thrust into the isolated world of caring, a daughter learns how other sole carers cope, some under immense strain.

Usually #caregiving falls to the daughter. "Sitting in that small room, I realised then that life had shifted. My #ageing father wouldn’t be able to help much & my older brother is estranged... I would be doing this solo, a single woman w no partner to turn to, caring for [my mother]." #disability

The ASPIRE-FTD clinical trial has expanded to a fourth cohort, continuing to advance gene therapy research.

Read more: ftdregistry.org/press/aspire...

Can Frontotemporal Dementia And Narcissistic Disorder Occur Simultaneously? Yes, frontotemporal dementia (FTD) and narcissistic personality disorder (NPD) can potentially occur simultaneously, though the relationship between these conditions is complex and not fully understoo...

Here’s a scientific approach to the combined problems of dementia (FTD) and narcissistic personality disorder (NPD).

medisearch.io/share/tW9pgM...

Frontotemporal dementia (FTD) is a progressive neurodegenerative disease that causes shrinkage in the brain's frontal & temporal lobes, affecting personality, behavior, & language. Symptoms include: drastic personality changes, inhibition loss, apathy, & language difficulties that worsen over time.

I finally put it on the page.

"The Wrong Pool" is a memoir about mothers and daughters, caregiving, grief, & the moment you realize you have become the parent.

It’s about the lies we tell to protect the people we love, the damage we inherit, & the ways love survives

Why is he buying votes to win this judge position? Simple: Tesla is in court with the state of Wisconsin.

Opinion | Democrats Need to Face Why Trump Won The Democratic pollster David Shor walks through what voter data reveals about the 2024 election — and how the American electorate is shifting.

The two things that we should do is fight against social welfare cuts and also attack Elon Musk for the chaos he’s creating. And I think that’s something that basically every wing of the party should be on board with.
www.nytimes.com/2025/03/18/o...

Wired is dropping paywalls for FOIA-based reporting. Others should follow As the administration does its best to hide public records from the public, Wired magazine is stepping up to help stem the secrecy

They're called public records for a reason. Starting today, WIRED will *stop paywalling* articles that are primarily based on public records obtained through the Freedom of Information Act, becoming the first publication to partner with @freedom.press to offer this for our new coverage.

Opinion | Democrats Need to Face Why Trump Won The Democratic pollster David Shor walks through what voter data reveals about the 2024 election — and how the American electorate is shifting.

"The challenge of the Trump era is that they’re going to try to bait us. And we should do everything we can to meaningfully resist and protect the populations that we care about."
www.nytimes.com/2025/03/18/o...

Let's play another game - listen to the people on Newsom's podgast and think of it as an intelligence gathering mission. Charlie Kirk gave a playbook on how to win the exact demographic that the Democrats lost.There was valuable inteeligence there. Maybe, just maybe, this podcast serves some good.

Opinion | Democrats Need to Face Why Trump Won The Democratic pollster David Shor walks through what voter data reveals about the 2024 election — and how the American electorate is shifting.

"A lot of the challenge of the Trump era is that they’re going to try to bait us. And we should do everything we can to meaningfully resist and protect the populations that we care about."
www.nytimes.com/2025/03/18/o...

👀 Canadians are calling for authorities in the Land of the Maple Leaf to hit Americans where it hurts most—by banning Canadian-owned Pornhub.

When the judge gave his order, he told Department of Justice lawyers, "This is something that you need to make sure is complied with immediately," WaPo reports. www.washingtonpost.com/immigration/...

Secretary of State Marco Rubio retweeted this "Oopsie... Too late" post from Bukele this morning.

This is Chuck.

Chuck is selling a book.

Chuck also has a full-time job.

I would consider buying Chuck’s book if he were doing that job, but he’s not.

Don’t be like Chuck.

And don’t buy Chuck’s book.

And Bidens $750 was just the small beginning to each !!
Trump is cutting FEMA help!

This is blatant defiance of the court order. It was NOT too late. When the judge issued is order, two planes were in the air, and a third took off from Texas AFTER the order.

US deports immigrants to Venezuela after judge blocked transfer to Guantanamo Bay Three immigrants who won a restraining order against the U.S. government to avoid transfer to Guantanamo Bay Naval Base in Cuba have been deported on direct flights to Venezuela.

Republican Congressmen all got the note to tweet the NY Post headline.

Everyone should be all over this. Ask, "How do they identify someone as a member of Tren de Aragua?"

And point them to this story, where 3 men were already falsely accused:
apnews.com/article/vene...

If you listen to Gavin Newsom’s podcast with Charlie Kirk & REALLY pay attention to what Kirk is saying…he is giving a class in how to build a campaign.
But Democrats are too busy worrying about Newsom’s stances to listen to the intel being given away.

We can change, but we need to embrace a plan. We need to start rallying behind two types of leaders:
1. Politicians who are willing to speak truth to power - Buttigieg, Walz, Sanders, Pritzker, Murphy, AOC.
2. Find ourselves our versions of Charlie Kirk and Joe Rogan.

This was not a close vote. 91% of group leaders voted for national to make this all. 7% said probably, but they needed more time. 2% opposed.

We are a locally led movement. When local leaders speak, we listen. We encouage Demorats to rally around someone who can lead the opposition forward.

Agree.

We can change, but we need to jettison Schumer & embrace a plan. We need to start rallying behind two types of leaders:
1. Politicians who are willing to speak truth to power - Buttigieg, Walz, Sanders, Pritzker, Murphy, AOC.
2. Find ourselves our versions of Charlie Kirk and Joe Rogan.