wow - that's not much to have got such a good result! After quite a bit of trial & and error, I'd build up to 7mg a day for a month and then a break of 2-3 weeks. Did this several times. only recently looked back at my body battery stats and realised NP had def risen the bar somewhat!
GI Map stool test, 6 years after Microba test. All previous pathogens gone (yay!) but now I have an overgrowth of Morganella! 😭 Best news is zonulin markers ✅️, reflected in last few months of introducing FODMAP foods with no issue! Tonight 🥁 it's coconut milk in... Thai curry! wish me luck! #MECFS
Got my DSP in Feb - such a blessing, after such a headf*@k doing the application. With the backpayment, I bought myself an e-bike. On days when I have the energy, I can wheel around our garden, and see bits of it I haven't seen in 8 years. Such freedom! Oh to have the wind in my hair again! #MECFS
interesting! I've had success with them too (I think, in raising my baseline after I stopped). Did a month on, month off. Def will try them again. What's your dosage like?
Sign sign sign, please, and share share share.
If you, like me, are concerned about the direction our country will go if a Trump Tower is built in our country, then join me in objecting! petitions.getup.org.au/petitions/st...
*meant to say related
A professional portrait of Dr. Armstrong in an office setting, alongside text announcing nearly $1M awarded to the OMF Melbourne ME/CFS Collaboration.
Dr. Christopher Armstrong and his team at OMF's Melbourne ME/CFS Collaboration have been awarded nearly $1 million through the Australian government’s Medical Research Future Fund (MRFF) for the project Energy inefficiency in #LongCOVID and #MECFS.
👉 Learn more: https://ow.ly/hj9F50Yh6TY
Great news about the funding. Is this separate from Kathy Huang and StudyME's PPP (Personalised post exertional Malaise predictor) study?
Does he just get faster and faster so the kid flies off? How does she get off?!🤣
Antimicrobial cyclic peptides effectively inhibit multiple forms of Borrelia and cross the blood-brain barrier model
www.nature.com/articles/s41...
New research from Griffith University shows people with ME/CFS and Long COVID have altered brain connectivity during cognitively demanding tasks, offering insight into brain fog, memory challenges, and mental fatigue.
🔗 news.griffith.edu.au/2026/01/28/a...
Jeez, good luck with that, that sounds rough going 🫶
If you have an issue with Sulphur, are you maybe not getting enough Molybdenum along with B6? They help. You may know this already, just putting it out there 🌼
Tick-bite illnesses can be complex and debilitating. Are we any closer to understanding them?
This article from Australia’s ABC News highlights the work of Dr Richard Schloeffel who has been researching a group of people with ongoing symptoms linked to tick bites.
www.abc.net.au/news/health/...
Is any one in the #MECFS community, maybe #LymeAustralia or #Lyme anywhere really, attempting the Josh Leisk Born Free protocol? It seems, even if my GP was onside, she'd need to drop all her other research just to start figuring it out. So, so, so complex.
Buhner rocks! Except it can be a bit dense going, especially when the ole brain isn't at max. So glad you're finding some respite.
Graphic announcing “New Publication—Exploring a genetic basis for the metabolic perturbations in ME/CFS using UK Biobank.” Includes a “Learn more” button and a photo of Chris Armstrong in a suit at a symposium.
Dr. Chris Armstrong, the Director of OMF’s Melbourne ME/CFS Collaboration, and his team recently published a paper on their work looking at which genes were most impactful to metabolites in #MECFS and which were most impactful in controls.
👉Read more: ow.ly/ast150XG0rz.
sad that you only have white polyester tee's to choose from - no way on earth I can wear polyester, I'm afraid. And white... won't be white for very long! look forward to next Christmas 🫠
On the left is Dr. Moreau smiling and pointing to a colorful scientific poster filled with charts and text. On the right is Dr. Bergquist wearing a white lab coat and blue shirt. In the center overlaid text reads INTERVIEW.
In this interview, Dr. Jonas Bergquist and Dr. Alain Moreau talk about their main ideas behind #MECFS, including an immune system that is too active in the brain and spinal cord, inherited factors, and how genes are expressed.
👉 ow.ly/fUYM50XtwW1.
As part of our Triple Giving November campaign, we’re pleased to share a video interview with Dr. Ron Davis and Dr. David Systrom.
Together, they discuss how problems with oxygen supply and energy production may underlie #MECFS.
🎥 Learn more and watch the video: www.omf.ngo/ron-davis-an....
When the Chief Medical Officer urges the narrative to move from "stigma to science" . Thank God for organisations like @emergeaustralia.bsky.social, and for the brave souls who risked weeks/months of PEM to be a voice for us all. #MECFS #PEM
Thank you so much to all, thank you Emerge ❤️❤️❤️
wrote that 5 years ago, 3 years after getting sick. still holds.
... my life plays out
in torturous slippery snapshots,
catching at my limbs,
as they flail around,
attempting to cling on
to what is solid,
the me before,
the me i cant forget.
#MECFS
here i am.
here is my shell.
my spirit comes in waves.
today i am drowning,
high tide,
ripped along the undertow,
abraded by shingle,
tossed every which way,
i know not which is up,
down nor ahead.....
unbelievable. @bsky.app - is there a way of getting these bots off the platform?
I love the sound of this! where can I watch it?
Great study. Confirms my choice to get on oestrogen, instead of just progesterone. Also 5HTP has been a winner for me in terms of 💤. Now just to get in a bit of inulin and F. prausnitzii for my poor ole guts. #MECFS #pwme #MHT
Hi! 👋🏽 I'm here, just sporadically 🐢
