Living with small & large fiber demyelinating polyneuropathy linked to Hypermobile Ehlers‑Danlos syndrome, Becca’s breaking isolation by sharing her story: www.foundationforpn.org/breaking-isolation-one-p...
#neuropathy #HypermobileEhlersDanlosSyndrome
FPN staff meeting up with our research scholarship recipients and attending presentations at @aanmember.bsky.social 2026 Annual Meeting in Chicago.
#fundresearch #neuropathy #AANAM #neuropathyresearch
Shout out to Chase Burton for picking us as his cause for the Texas A&M Maroon & White game! Thanks for your support 💜#peripheralneuropathy
Up to 27% of neuropathy cases are idiopathic. Join our Lilly‑sponsored webinar on research & causes, plus live Q&A with Dr. Shanna Patterson: event.on24.com/wcc/r/5305746/EEE3CEF816...
Peripheral Neuropathy Awareness Week is coming up!
🗓 May 3–9, 2026
Help us spread awareness — and show your support — with our brand-new Foundation swag 💜
Shop now in our Bonfire store:
👉 https://www.bonfire.com/store/fpn/
#PeripheralNeuropathy #NeuropathyAwareness #AwarenessWeek
Kelsey, diagnosed with idiopathic small fiber neuropathy at 23, had symptoms years earlier. Her mom Debbie shares Kelsey’s journey, grief and legacy—and how Kelsey’s dog, Brody, became a therapy dog after her passing.
www.foundationforpn.org/video-interview-with-deb...
TOMORROW! Join us for a webinar about recent tax law changes and how they may affect your charitable giving. Register: event.on24.com/wcc/r/5243529/CC4809690A...
#fundmoreresearch #FoundationForPN #giving
Your experience with PN matters.
Turn it into action – ask your hometown to recognize PN Awareness Week (May 3-9, 2026).
Get the proclamation template: 🔗 www.foundationforpn.org/wp-content/uploads/2025/...
#peripheralneuropathyawareness #pnawareness #neuropathy
We’re excited to share our 2025 impact report. We know our mission matters to you. See how we're using our mission to drive progress for the PN community: https://heyzine.com/flip-book/45cc472b17.html
#neuropathy #FoundationForPN #fundmoreresearch
This powerful new study aims to predict and prevent anti-MAG neuropathy: www.foundationforpn.org/a-powerful-new-study-to-...
#neuropathy #neuropathyresearch #fundmoreresearch
A new look—same strong commitment
Our updated logo reflects who we are today while staying true to our mission for the neuropathy community.
www.foundationforpn.org/why-were-updating-our-lo...
Designed with EPIC Creative
At our second annual Neuropathy Advocacy Day, patients and advocates met with lawmakers to push for critical research funding—and shared powerful stories that put a face to this disease.
www.foundationforpn.org/neuropathy-advocacy-day-...
#NeuropathyAdvocacyDay #PeripheralNeuropathy
It's Neuropathy Advocacy Day!
We're in DC, meeting with congressional aids about the importance PN research.
We're honored to represent the estimated 30M PN patients in the US to push for more research, better treatments and one day cures.
#neuropathy #fundmoreresearch
Ariel Zhang, PhD, awarded FPN scholarship for chemo-induced neuropathy research: www.foundationforpn.org/ariel-zhang-crts-scholar...
#neuropathy #fundresearch #medicalresearch #peripheralneuropathy
With many of us 'springing ahead' today, there are things you can do to help adjust to the shift.
Quality sleep can make a huge difference. It helps the body heal and can reduce the severity of neuropathy symptoms. www.foundationforpn.org/events/navigating-sleep-...
We're thrilled that our scholarship recipients, Ariel Zhang, PhD, and Christopher Cashman, MD, PhD, are part of the 2026 Next Generation Research Grants from ABF!
www.americanbrainfoundation.org/2026-next-generation-res...
On Rare Disease Day, we shine a light on people with rare conditions that affect the nerves.
Diseases like CMT, Fabry disease, amyloidosis and GBS can make it hard to feel your hands or feet.
You are not alone. We see you. We support you.
#RareDiseaseDay #neuropathy
Have you checked out our blog recently? We've been busy with updates on everything from research, to advocacy, to living with small fiber neuropathy.
Check out our recent posts: https://www.foundationforpn.org/blog/
#neuropathy #FaoundationForPN
February is American Heart Month. Maintaining heart health is critical for nerve health.
Learn more from MAPS Centers for Pain Control: www.mwpain.com/does-heart-health-affect...
#neuropathy #nervehealth #americanheartmonth
Did you catch our neuropathy research update in January?
IMAGiNe study progress: highlights and what’s ahead
www.foundationforpn.org/imagine-study-2025-progr...
#fundresearch #neuropathyresearch #imaginestudy
Chatting with our advocacy consultant, Mark Vieth:
www.foundationforpn.org/advocating-for-periphera...
#neuropathy #neuropathyadvocacy #neuropathyresearch
Shanna Patterson, MD, MS, shares why she joined our board, and why she continues to support our mission:
https://www.youtube.com/watch?v=Mt09morrUbE
#neuropathy #peripheralneuropathy #FoundationForPN
Register: Behind the lab coat: How medical research works
Learn how new treatments get tested & what a medical researcher does
Register event.on24.com/wcc/r/5230763/41EE7FF6F2...
#neuropathy #fundresearch
Did you miss our most recent webinar?
As Sean, our guest patient speaker stated, knowledge is power.
Watch it now
All in the family: Update on hereditary neuropathies and treatments
https://youtu.be/IGl6Gg409cY?si=y-G9FezDVjXKpnir
#neuropathy #hereditaryneuropathy #neuropathywebinar
Critical funding restored for medical research!
Veteran-focused Peer Reviewed Medical Research Program funding returned to 2024 funding level after 50% cut in 2025: www.foundationforpn.org/peripheral-neuropathy-re...
#fundresearch #neuropathyresearch
TOMORROW FEB 5!
Free webinar: All in the family: Update on hereditary neuropathies and treatments
Register to join us live, or to watch it later:
event.on24.com/wcc/r/5208110/C917660E59...
#neuropathy
Navigating neuropathy? This story is full of wisdom & hope.
Meet Will Schwalbe — author, editor, and FPN supporter — who has lived with small fiber neuropathy since 2017.
Watch here → https://www.youtube.com/watch?v=mHazfr-zoXs
#neuropathy #smallfiberneuropathy #patientstories
Thanks to our research funds, Francesco Michelassi, MD, PhD, was able to explore how boosting mitochondrial function might protect patients from chemo‑induced PN
Hear his story
Learn why funding PN research matters now more than ever
Watch the video https://youtu.be/Ag98K9bmjhA?si=W0hsoMfOkBGLhO6I
All in the family: Update on hereditary neuropathies and treatments
Sponsored by Alnylam
event.on24.com/wcc/r/5208110/C917660E59...
Can't attend? Register for recording
#neuropathy#neuropathywebinar
It’s hard to learn you have neuropathy. It’s overwhelming, scary, confusing. These resources can help you manage your symptoms and overall health: https://www.foundationforpn.org/newly-diagnosed/
#neuropathy #peripheralneuropathy #foundationforpn