At our second annual Neuropathy Advocacy Day, patients and advocates met with lawmakers to push for critical research funding—and shared powerful stories that put a face to this disease.
www.foundationforpn.org/neuropathy-advocacy-day-...
#NeuropathyAdvocacyDay #PeripheralNeuropathy
New episode of Everyone dies is 🔛
Chemotherapy can save lives — but it can also leave lasting effects.
🎧 Listen: every1dies.org/2026/s6e50-chemotherapy-...
#ChemotherapySideEffects #CancerSurvivorship #PeripheralNeuropathy
Proud to advocate for patients, clinicians and researchers who want to see better treatments and a cure for #peripheralneuropathy. The Foundation for PN has had massive growth over the last year, and moving toward an exciting 2027 symposium! 🧪🧪
Life suffering from Peripheral Neuropathy can be so difficult, it’s hard enough without the financial worries. The GOOD NEWS is you may qualify for disability benefits!
A compassionate attorney explains how.
#PeripheralNeuropathy #LivingWithNeuropathy #NervePain
www.brrlaw.com/peripheral-n...
Ariel Zhang, PhD, awarded FPN scholarship for chemo-induced neuropathy research: www.foundationforpn.org/ariel-zhang-crts-scholar...
#neuropathy #fundresearch #medicalresearch #peripheralneuropathy
Ariel Zhang, PhD was awarded a 2026 Next Generation Research Grant in Peripheral Neuropathy. Dr. Zhang will explore the role of a protein called ATF2 in chemotherapy-induced peripheral neuropathy (CIPN) and investigate if reducing the protein can protect against this condition. If so, this could pave the way for the development of safer cancer treatments. This research is funded by The Foundation for Peripheral Neuropathy.
Ariel Zhang, PhD was awarded a Next Generation Research Grant in #PeripheralNeuropathy.
Institution: @temple.edu
This research is funded by @foundationforpn.bsky.social.
More ➡️ buff.ly/PFtLmrI
#PeripheralNeuropathyResearch
Christopher Cashman, MD, PhD was awarded a 2026 Next Generation Research Grant in Peripheral Neuropathy. Dr. Cashman will study a specific type of genetically inherited peripheral neuropathy and determine what role damaged mitochondria might play in the disease. If a direct connection is proven, targeting damaged mitochondria could help treat the condition. This research is funded by The Foundation for Peripheral Neuropathy.
Christopher Cashman, MD, PhD was awarded a Next Generation Research Grant in #PeripheralNeuropathy.
Institution: @mgbresearch.bsky.social & @harvardmed.bsky.social
This research is funded by @foundationforpn.bsky.social.
More ➡️ buff.ly/UoMmVso
#PeripheralNeuropathyResearch
Shanna Patterson, MD, MS, shares why she joined our board, and why she continues to support our mission:
https://www.youtube.com/watch?v=Mt09morrUbE
#neuropathy #peripheralneuropathy #FoundationForPN
0415am Hot Burning Heel #pain wake me, I dreamt the pain even, #peripheralNeuropathy... not diabetic, spinal nerve damage, #lupus, #Sjogrens, #Polymyositis, Haven't been able 2afford my #cbd oil - $50 a month. So I have2 give up something else food wise (again) tired of 🇺🇸 seeing me as an ATM
It cured my nerve pain.
#Atypicaltrigeminalneuralgia
#peripheralneuropathy
#sciatica
It’s hard to learn you have neuropathy. It’s overwhelming, scary, confusing. These resources can help you manage your symptoms and overall health: https://www.foundationforpn.org/newly-diagnosed/
#neuropathy #peripheralneuropathy #foundationforpn
Grateful & excited:
New paper alert by Simone Thomas with contributions from other @merkinpnnrcenter.bsky.social scholars —live on PubMed now.
pubmed.ncbi.nlm.nih.gov/41502156/
#MerkinCenter #MerkinScholars #PeripheralNeuropathy #NerveRegeneration #TeamScience #Neurology #JPNS #JohnsHopkins
Supplying healthy #mitochondria to damaged #nerve cells significantly reduces #NervePain associated with #DiabeticNeuropathy and #chemotherapy - induced #NerveDamage.
#PeripheralNeuropathy #MitochondrialTransfer
Dr. Gregory F. Maassen is training for his solo E-Bike Tour Across America—5,800+ miles from FL to CA—to raise awareness for peripheral neuropathy. Supporting the @merkinpnnrcenter.bsky.social @hopkinsmedicine.bsky.social
Follow the journey: ebiketour.org
#Ebiketour #PeripheralNeuropathy
#Medsky🧪#Neurosky @jama.com
#Peripheralneuropathy (PN) , defined as damage to PN , affects ~ 1% of adults worldwide. More than 200 causes of PN exist, with symptoms ranging in severity from mild toe numbness to debilitating symptoms that can require a wheelchair…
jamanetwork.com/journals/jam...
#Medsky🧪 #IDsky #pharmsky #endosky #neurosky #publichealth #immunosky @jama.com
#Peripheralneuropathy affects approximately 1% of adults worldwide & may cause sensory, motor & autonomic symptoms. #Diabetes is the most common cause of peripheral neuropathy in Western countries.
“I joined the FPN Board because I want to be part of the solution in understanding, treating, and ultimately curing peripheral neuropathy.”
– George Montague
www.foundationforpn.org/fpn-welcomes-new-board-m...
#neuropathy #peripheralneuropathy #foundationforPN
It’s hard to learn you have neuropathy. It’s overwhelming, scary, confusing. These resources can help you manage your symptoms and overall health: https://www.foundationforpn.org/newly-diagnosed/
#neuropathy #peripheralneuropathy #foundationforpn
New board member, Jennie Starr, brings her personal experience from having someone close to her struggle with PN to the table: www.foundationforpn.org/fpn-welcomes-new-board-m...
#neuropathy #peripheralneuropathy #foundationforPN
The discovery that a #StressResponse in specific #ImmuneCells triggers #chemotherapy -induced #NerveDamage suggests new ways to prevent or treat this #SideEffect.
#PeripheralNeuropathy
Advocacy work pays off:
Nearly $20 million in DoD funds for PN research in recent years.
We make sure PN is an eligible research topic by getting it renewed every year
Today is FPN Day | Celebrating 18 years of FPN
#peripheralneuropathy #peripheralneuropathyresearch #FPNday
Expanding IMAGiNe Study research with a new site: www.foundationforpn.org/fpn-welcomes-the-ohio-st...
#neuropathy #peripheralneuropathy #neuropathyresearch #fundmoreresearch
Did you just find out you have peripheral neuropathy?
We know it can be scary and confusing. We have information to guide you. Our resources can help you understand neuropathy and what to do next https://www.foundationforpn.org/newly-diagnosed/
#neuropathy #peripheralneuropathy #neuropathydiagnosis
Ever wonder if something you hear about peripheral neuropathy is true?
This webinar explains some common neuropathy myths: https://www.youtube.com/watch?v=UEWhJkTROTQ
#neuropathy #peripheralneuropathy
Patient stories help put a face on the invisible condition that is neuropathy.
What to share your story? We're ready to listen: https://www.foundationforpn.org/share-your-story/
#livingwithneuropathy #neuropathy #peripheralneuropathy #patientstories
To celebrate National Make-A-Will Month in Aug, we’re announcing the Mazawey Legacy Circle
https://www.foundationforpn.org/legacy-giving-circle/
Named in honor of Lou Mazawey: former FPN board president, current board member, PN patient, donor
#neuropathy #foundationforpn #peripheralneuropathy
New on our blog
Q+A follow up to neuropathy pain management webinar with Alexander Chamessian, MD, PhD
Get expert insights on managing peripheral neuropathy pain
Read now: www.foundationforpn.org/neuropathic-pain-managem...
#Neuropathy #PainManagement #PeripheralNeuropathy
Congrats to all involved with this study associating mono-allelic POLR3A variants with #peripheralneuropathy.
So good to catch up with some of the key players at #ESHG2025 Milan where Jevin Parmar presented the study on behalf of the collaborative team #raredisease #CMT
Looking to fund peripheral neuropathy research? These early career research scholarships might be the answer!
Application deadline is Sept 9, 2025. Learn more: https://www.foundationforpn.org/crts2026/
#research #fundresearch #neuropathy #neuropathyresearch #peripheralneuropathy
