Doc is like why are you having anxiety? Well, pain causes me to carry myself differently and having a Autoimmune dx of #polymyositis means it tense up from pain. And it's overwhelming bc I cannot escape or evade it, it's like a shadow following me everywhere #ChronicPain #crps - like sunburn pain

#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy

0415am Hot Burning Heel #pain wake me, I dreamt the pain even, #peripheralNeuropathy... not diabetic, spinal nerve damage, #lupus, #Sjogrens, #Polymyositis, Haven't been able 2afford my #cbd oil - $50 a month. So I have2 give up something else food wise (again) tired of 🇺🇸 seeing me as an ATM

#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics

#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics

#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics

#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency

#immunoglobulin #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency

First day back at work in @darkmatterlabs.org after months of hospitals & subsequent community physical rehab - this shiny new autoimmune issue makes even the familiar unfamiliar #polymyositis

#dermatomyositis #antisynthetasesyndrome #myositis #polymyositis #jak1inhibitor #inclusionbodymyositis #mastcellactivationsyndrome #mixedconnectivetissuedisorder #ehlersdanlossyndrome #idontwanttodiealone

Dear Scientist: I have a rare autoimmune disease. Do I need to accept this quality of life? Patient Jerry Williams and Pfizer scientist Janet Buhlmann discuss the challenges of living with Dermatomyositis.

I have been sick with a rare systemic muscle disease for 21 years. I had to find my new normal at 27 years old when I lost use of my legs and now am using a scooter. Learn more about #dermatomyositis #polymyositis #myositis

sponsored.bostonglobe.com/pfizer/rare-...

In April 2024, my husband ( #autoimmune #polymyositis) and I ( #ms #multiplesclerosis) started #weightwatchers and an exercise program ( #walking and #yoga). We have both lost 50lbs! Feel great and know it’ll help us as we age.

#crps #CRPS, #Sjogrens, #Polymyositis,
#MixedConnectiveTissueDisease #MCTD, would be cool to see under this hash tag, just a suggestion, and TY
✌️ 💛⚡️🦋 #ChronicIllness