Kenn ich. Je nach Zustand mal mehr mal weniger. Dazu dicke, geschwollen Finger und stark hervortretende Adern. Kam auch so nach und nach. In LC-Ambulanz wurde zusätzlich zu ME und PoTS ein Verdacht auf Mischkollagenose diagnostiziert, könnte also davon ausgelöst sein.

#MECFS #POTS #MCTD and more

Dito. Nehme seit knapp vier Wochen LDN, bin erst bei 1,0 mg und nach drei harten Wochen habe ich jetzt tatsächlich das Gefühl, es geht etwas aufwärts. So schön. Es geht immer noch nahezu nichts, aber irgendwie ist die Alarmstimmung weg und alles ein wenig beruhigter. Sogar PoTS.
#MECFS #POTS #MCTD

3.6.5 Day 75 - 3/16/26

🛋️ Another night under the electric blanket 🤕

#365photo #photoaday #mctd #autoimmune #chronicillness

Anybody else on Leflunomide, Humira, & Plaquenil notice that they lose a lot of hair? I lost tons when I was on Methotrexate, still losing it in this new combo. #MCTD #MCTDWarrior #rheumatoid #rheumatoidarthritis #autoimmunedisorder

3.6.5 Day 61 - 3/2/26

💊 New meds are having a rough start. Stayed home to rest. Breakfast sandwich at 1pm 🍳☕

#365photo #photoaday #food #medication #chronicillness #autoimmune #mctd #fibro

A person sitting in a chair in a kitchen

My mixed connective tissue disease (mctd) and dysautonomia is flaring HARD today. I can barely stand and move without being exhausted. No stream today. I need to sit in a chair just to go about the kitchen 😓 #disability #mctd #dysautonomia #pots #hypotension

3.6.5 Day 58 - 2/27/26

🌊 Another painful day 🌊 Another evening of rest 🌊

(I really love taking photos with texture)

#365photo #photoaday #autoimmune #chronicillness #mctd #fibromyalgia #photo

3.6.5 Day 57 - 2/26/26

🌀 Energy's low and brain fog's high 🌀 Being nice to myself and spending the evening in bed 🌀

#365photo #photoaday #mctd #fibromyalgia #autoimmune #chronicillness

3.6.5 Day 54 - 2/23/26

🛋️ #MCTD & #Fibromyalgia have had me feeling like major shit for 2 months. Today's energy levels were especially low. A heat blanket & purring cat may not fix it, but it helps 😿

Been prescribed low dose naltrexone to try 🤞

#365photo #photoaday #autoimmune #chronicillness

A mirror picture showing myself with spots on my lower back where I got an injection, I have a crop top long sleeve dark grey purple with chain necklace and dark purple pants

A mirror picture with a hospital gown

No stream today 😞
I was unexpectedly last minute approved for a procedure to help my back. 😷
I'll be back tomorrow! We'll play some League (maybe Cass? Maybe Nami? Maybe Renata?) 🤠

#disability #spoonie #chronicpain #streamer #eds #mctd

Process EVIL.
#art #crps #mctd

365 Day 37 - 2/6/26

🔔✨Fiddling around after a long week of feeling like crap✨🔔

#365photo #photoaday #craft #crafts #crafting #chronicillness #autoimmune #mctd

“Rare on Air, Episode 5 featuring Jessa in a brown cardigan, with a colourful purple and blue painted gradient background and the date 15 January.”

🎙️ As #RareDiseaseDay 2026 nears, #RareOnAir Stories continues!

💜 In this episode, we meet Jessa, an 18-year-old living with #EDS, #MCTD & juvenile arthritis, proving resilience and hope can redefine what’s possible.

🎧 Listen now: https://www.eurordis.org/rare-on-air/

3.6.5 Day 11 - 1/11/26

🛋️ New heated blanket to try and my love made me coffee 🥰☕

#365photo #photoaday #chronicillness #autoimmune #mctd

3.6.5 Day 6 - 1/6/26

📑 Back to work, just another day 🧺

Cooked a meal for 2 people tonight for the first time in years! I had just enough energy to fry a simple chicken and rice dish 🍛

#365photo #photoaday #photo #autoimmune #mctd #seriousgoosejuice

A planner notebook sitting open on a dark brown table with a black mug filled with highlighters and a pair of scissors, and a pole of LEGO bricks in bags

3.6.5 Day 3 - 1/3/26

Rest day, starting to feel a bit better, but the inflammation is still going crazy 🤒

Closed out the month of December in my planner. Hope to work on January's pages tomorrow ❄️

#365photo #photoaday #bulletjournal #planner #autoimmune #mctd

Beach COMBERS.

#art #pastelart #conceptart
#crps #mctd #heds #pots
scratched a fairly vibrant
visual here 👁️‍🗨️

Any #autoimmune / #chronicillness / #mctd peeps try the Mediterranean diet/similarly set diets and have any success with lowering inflammation? I've been doing pretty good since starting the hcq but wanna see if I can make any other improvements 🤔 tho I already eat pretty similarly to it

A black table in front of a white counter, covered in several drinks, plates, bowls and dishes of food. Including a boiling pot of soup broth

3.6.5 Day 2 - 1/2/26

Bad pain day, improved by some hot pot
🍲🥬🥕🥟🍖🧋

#365photo #photoaday #hotpot #food #boba #goodsoup #autoimmune #mctd

Dammit I should have included some hashtags with this post

#autoimmune #chronicillness #MCTD #Sjogrens

A cartoon gray, kind of creepy hand with four fingers, seems to habe arthritis against a teal background and purple table. A small yellow cartoon hand holds the arm.

Does anyone here have #spondyloarthritis? I need some support while in medical limbo.

#Arthritis
#MCTD
#Lupus
#ChronicPain

www.mayoclinic.org/diseases-con... #MCTD

#VA #UVA #virginia #EDS #MCTD #hEDS #POTS

Just starting #childhood #MCTD #Sjogren #PReS 💻⬇️

#Chronicillness and #autoimmune folks! I am pleased to announce that I have a diagnosis of #MCTD! Mixed connective tissue disease! Starting hydroxychloroquine soon, fingers crossed for some relief. It's prolly gonna suck to start out, but I'm so grateful to have something concrete to hold onto 😭

Integration of transcriptome and immunophenotyping data highlights differences in the pathogenetic kinetics of B cells across immune-mediated disease Objective To elucidate crucial immune cell subsets and associated immunological pathways by stratifying patients with immune-mediated diseases (IMDs) using immunophenotyping and transcriptomic approac...

📝 Delighted to share our latest research!

Integration of transcriptome + immunophenotyping reveals two distinct B-cell–driven clusters across 6 IMDs — #SLE #RA #SSc #IIM #MCTD #LVV

🔔 Naïve B–dominant cluster
⬆️ IFN & ABC signature
🚨 Higher flare rate

rmdopen.bmj.com/content/11/2...

My Angry Joints We are short-staffed. Please be patient with the connective tissues who did show up. *eyeroll* nobody wants to work anymore.

My Angry Joints / Connective Tissue Disorder
#eds #rheumatoidarthritis #mctd #lupus

Not just cancer, but #AUTOIMMUNE research as well. My mom lost her 3rd battle with cancer. I live with #LupusSLE, #Fibromyalgia, #MCTD, and #RheumatoidArthritis. My sister has #MyestheniaGravis & Fibromyalgia. We need more research!

Mixed Connective Tissue Disease is like if you threw all existing autoimmune disorders into a blender and turned it on max speed

#mctd #mixedconnectivetissuedisease