“So, my message to everyone with #Fibro or other #ChronicPain conditions is to share & be curious about others journeys..someone else’s experience may just align with what you’re going through.”: buff.ly/UAOlUDt
by DaleRockell
#ChronicIllness #PainManagement #spoonie
New post: Tomaytoes or Tomatoes? What You Eat and Your Fibromyalgia. Fibromyalgia Tips.
open.substack.com/pub/feelwell...
#wellbeing
#selfcare
#fibromyalgia
#fibrowarrior
#fibro
Woke up in so much pain. Lower back radiating into my thighs, out into my hips. Took allowed pain meds - Excedrin, Arthritis Tylenol, and Benadryl. Breathing hurts. Can barely move. Chores made it worse.
#chronicillness #pain #arthritis #tears #live #fibromyalgia #fibro #diabetes #lonely #fear
We recommend avoiding Cipro and all fluoroquinolones if you're hypermobile:
ohtwist.com/avoid-cipro
#EDS #HSD #Fibro #medicine #fibromyalgia #nurses #doctors #medicine #MedTwitter #MedEd #FOAMed #NEISvoid
Rare selfie from today, after a Head Spa appointment. My shoulders are still fluffing bastards, so getting my hair properly washed and pampered was a real treat!
I am as tired as I look. Perhaps even more tired...
#chronicpain #spoonie #fibromyalgia #fibrofighter #fibro
The Beighton Score as a measure of generalized joint #hypermobility (a review) 2021 by Malek, Reinhold, Pearce buff.ly/2Syq5uV
#EhlersDanlos #EDS #hEDS #HSD #Fibromyalgia #fibro #Meded #FOAMed medicine #NEISvoid #MedTwitter #Doctors #Rheumatology #Genetics #MedSky
picture of raccoon eyed barbie with the caption Doc: Well your labs look great, so just work on your diet and sleep and you'll be just fine. Me with 89 clearly abnormal symptoms daily:
(Rep. of Ireland only) Free booklets on ME & Fibromyalgia. Just email us your postal address at info@irishmecfs.org or private message it to our/Tom Kindlon's social media accounts. Aside: we can not post them by email ----- Image of front page of booklet: Fibromyalgia & M.E. ADVICE SUPPORT HELP ASSISTANCE GUIDANCE TIPS Because we matter FIBROMYALGIA IRELAND ADVOCACY and AWARENESS Hope ME & Fibro Northern Ireland ---- Image of front page of booklet FIBROMYALGIA & M.E. The Hidden Truth FACTS, ACTION & HOPE FIBROMYALGIA AWARENESS & ADVOCACY FORUM IRELAND HOPE 4 ME & FIBRO N.I. ----- Irish ME/CFS Association logo
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #Fibromyalgia #Fibro #FMS #FM
I’m tired of being in pain, tired of my brain not working, tired of trying
#fibro
Been wondering why the #fibro has been tough this week and then remembered today that I decided to titrate off almost all the meds last week because then obviously the #fibromyalgia will cure itself.
My digital illustration 'migraine warrior'. A banner reading Migraine Warrior wrapped around a sword, with a sun and moon motif behind the tip, and a background border shape in rainbow ombre with white clouds.
Another of my digital illustrations, featuring knuckledusters in a stylised ball of flame, above a white banner reading Fibromyalgia Fighter, over a rainbow ombre plus clouds border shape, and a green striped outer background.
Having a fun symptom combo day today! 💕✨️💀
#ChronicMigraine #Fibro #chronicPain
🔈 Call for participants
Looking for people interested in taking part in a study exploring the healthcare experiences of fibromyalgia in England.
If you’d like to take part, or know someone who might, please get in touch.
Please share!
Info below 👇
#CallForPaticipants #fibro #healthresearch
when even laying in bed hurts and is uncomfortable 😩
#fibro
Recently I've had my #Fibro meds increased so can game a bit. Hoping to get into #LOTRO for Spring Fest tomorrow.
I'm writing again, and have been doing woodwork. Although I'd intended less gaming, but not doing any hasn't been a choice.
Calling #Fibro & #ME/CFS Warriors (Women Supporting Women Program). Living with wide-spread #chronicpain, #chronicfatigue or #brainfog? This is your opportunity to join our community of like-minded fellow spoonies. DM >> www.facebook.com/livingwithfi... or email as per flyer. #fibromylagia #spoonie
#Sick. #Fibro, spine issues, & diabetes equal #pain.
#Chronicillness #pain #weak #recoveryday
May not get a #poem up today so check out yesterdays!
#poetry #amwriting #chronicillness #authors #writingcommunity #poetsofbluesky #mentalhealth #writersofbluesky
buymeacoffee.com/wordwitchlif...
{🧵, 2/5}
working theory:
19-25 traumas triggered the #fibro, then the early 30's trauma triggered the ME (and ofc, made the fibro 10/100 times worse)
sure, I used to take a lot of #depression naps in my 20's and I was in & out of wheelchairs/on & off crutches all the time, but I could >
I’m going through my #disability paperwork and it’s so hard to articulate your condition and disability so that the judge will actually understand.
And add to it the mountains of paperwork, the feelings of anxiety & despair, and blow to your ego; it just at times seems not worth the fight. #fibro
being okay with not being okay is very hard
#fibro
Self‑compassion is not about fixing yourself. It’s about meeting yourself exactly where you are, with kindness instead of criticism. It’s the voice that says,“You are allowed to rest.”
The hand that holds your own when no one else is around...
youtube.com/shorts/G9jUU...
#chronicillness #fibro #cfs
To you, the woman who keeps showing up for herself & growing, even through seasons of change/uncertainty.
To you, the woman navigating #chronicillness, #fibro, #fatigue, #chronicpain & silent battles that most people will never see... youtube.com/shorts/Vi6NZ...
#internationalwomensday
Travelling with fibromyalgia, tips on how to navigate this to ensure you get the best out of your trip.
open.substack.com/pub/feelwell...
#fibromyalgia #chronicpain #chronicillness #fibromyalgiaawareness #fibromyalgiawarrior #fibrowarrior #fibro #wellbeing #health
High winds today. Barometric pressure change has flared the #CMT1A and #Fibro pain. Spending it in bed, dozing, playing Fallout 4, or watching videos depending on focus ability. The fall yesterday didn't help.
Oh well, just going to rest and wait things out.
#ChronicIllness
Medical trauma isn’t just a memory; it’s a physical state. I’m sharing the latest research on the link between Post-Traumatic Stress Disorder (PTSD) and #ChronicPain: advocatinghealth.com/2026/03/05/t...
Does your pain feel linked to your stress levels? 💕✨
#PatientAdvocate #IBD #Fibro #PTSD
it’s messed up that I can do everything right and still end up in a flare
#fibro #chronicillness
Hardest I had to learn in managing chronic pain is what ✨
actual rest was. I’m still learning, still undoing the lifelong conditioning that screams at me to “DO MORE”.
Laziness does not exist by Dr Devon Price is an exceptional read on this, I highly recommend 💖🫶 #fibro #chronicpain #capitalism
it’s difficult to understand what it's like to not be able to depend on your own body until you experience it yourself
#chronicillness #fibro
3.6.5 Day 61 - 3/2/26
💊 New meds are having a rough start. Stayed home to rest. Breakfast sandwich at 1pm 🍳☕
#365photo #photoaday #food #medication #chronicillness #autoimmune #mctd #fibro
Sometimes I catch myself thinking "This flareup has gone on long enough I should act like I'm ok now."
Because before I had my fibro diagnosis, some people would make me feel bad for not being ok for "too long".
Got better people around me now. And know to be kinder to myself.
Still learning.
#fibro
The feeling when you go check if you have taken your pain meds, hoping you didn't, but you had... 😩
What a waste of a day.
#chronicpain #spoonie #spinefracture #compressionfracture #fibromyalgia #fibro #fibrofighter
