#StarTrekFirstContact is playing next in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#StarTrek #FirstContactDay #neisvoid #insomnia #ChronicPain #DisCo #ForTinu #spoonie #MutualAidMovies

April 2019: Tiring First Quarter Being Muggle Sick It's been a tiring year so far for me, with 'normal' illnesses in addition to 'regular' chronic pain. I will need some calm this April 2019.

"When you get ‘normal’ #sicknesses on top of your ‘regular’ daily #ChronicPain, life can feel like a chore in itself. Like rotten garnishing to your usual stew of issues. Getting out of bed now takes not just double the effort, but triple, maybe more." — Throwback to #April 2019!

All this morning’s work came together nicely.

Problem with these meals are that they’re delicious, but it’s a lot of work, so I’m in insane, immobilizing amounts of pain, and there are no leftovers to carry me over into a recovery day. #ChronicPain

2/2

You’re seeing 5% of the reality.

The other 95%?
It’s hidden — because no one makes space for it.

Before you judge someone’s pain… understand that survival often looks like “fine.”

#InvisibleIllness #ChronicPain

Community Voices: Dominique McGinn "Living with pain, skin injuries, and cEDS." My name is Dominique McGinn, I am a Primary School teacher from Scotland. I am 25 years old and was diagnosed with classical Ehlers-Danlos syndrome (cEDS) at age 3. My dad and younger brother also…

It's worldwide and everyone has their own experience with it.

#Scotland #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth
💕 #Wellness

The more I visit doctors offices, the more I start thinking maybe I should’ve studied law. 💀

Why do we need to defend our own sicknesses in front of doctors so much??
#chronicallyill #chronicpain

RobinReach

“It takes a lot of energy to be in pain all the time… You can’t know what it’s like living with #ChronicPain unless you have it, and understanding what it’s like… dramatically affects how you treat someone who lives with it.” https://buff.ly/ZVh1ubc
@kmitchellauthor.bsky #ChronicIllness

Traveling With Hope: An Interview With Nicola of Earth Balance Tai Chi ***** Have you ever tried tai chi or qigong? So many of us get asked if we’ve tried yoga (to the point where some of us want to scream when we hear that word) but it seems to me that Chinese …

A wonderful resource for anyone with #EhlersDanlosSyndrome or any other complex condition.

#BlogPost #ChronicIllness #ChronicPain #EDS #MCAS #POTS #HolisticHealth #TaiChi 💕 #Wellness

Been a long day, and I'm glad to see photos of friends doing their final days of skiing on here and other social media platforms. I won't lie, though. I'm quite envious right now. Not just because of my ski accident. #skiing #fracturedtibialplateau #chronicpain #disabilitylit #disabledwriter

I Stopped Asking “Why Me?” and Started Asking “What Now?” - Tiny Buddha “Why me?” wasn’t helping me cope; on the contrary, it was keeping me stuck. “What now?” does the opposite.

"I still catch myself asking, “ #WhyMe?” when life feels unfair or exhausting. But now I recognize it as a signal—not as something I shd be consumed by. A sign that I’m tired, hurting, or in need of #compassion.": buff.ly/Bh3atUD

via tinybuddha
#ChronicPain #MentalHealth #SelfCare #ChronicIllness

Now S1E1 of #JuryDutyPresentsCompanyRetreat is playing in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#neisvoid #mecfs #DisCo #TinusFavoriteTings #spoonie #comedy #cannabiscommunity #ChronicPain #MutualAidMarathon

A Roundup of Biggest Pain Flare Triggers — 40 people in the chronic illness community share their opinions, insights, and support.

"“ #Exercise. It never fails to flare the worst #MuscleSpasms due to my peripheral #NerveDisease.” - SaltyBurdNurd": buff.ly/9lZqgPd

#ChronicPain #FlareUps #ChronicIllness #disability #spoonies

How to enjoy Easter chocolate without wrecking your sleep If you love a late-night chocolate egg, you may struggle to sleep. A sleep expert explains why.

"Eating #chocolate in the evening may cause #AcidReflux because ingredients such as caffeine & theobromine relax the muscles that keep #stomach acid in place. Chocolate also has a high #fat content, which can slow digestion.": buff.ly/etOI3QF

via @theconversation.com
#sugar #gastric #ChronicPain

Three things that helped me manage flares better: 1) Identifying my personal triggers 2) Planning rest days in advance 3) Accepting that some days just won't go as planned

#FlareManagement #ChronicPain #Spoonie

The worst part about chronic illness isn't always the pain. It's the uncertainty. Not knowing if tomorrow will be a good day or a bad day. Learning to plan around that is a skill nobody teaches you.

#ChronicIllness #ChronicPain #InvisibleIllness

Why #ChronicPain and #Disability sucks:
Having to choose between the long term damage of taking an Opioid vs just tanking the pain when it causes blackouts and falls.

No other med dulls or fixes this agony enough for me to fake functioning. But my family and the medical system demand I stop it.

What are the benefits of our new book Deeper Mindfulness for seasoned meditators? www.tiktok.com/@drdannypenm... #deepermindfulness #vedana #feelingtone #mindfulness #stress #headspace #artofbreathing #anxiety #depression #PTSD #pain #chronicpain

S1E1 of the amazing series #JuryDuty, is starting next in the #ChronicLoaf stream

Please post your #MutualAid needs under this post during today's #MutualAidMarathon

mzelo.com/app/rooms/ch...

#comedy #mocumentary #NEISvoid #spoonie #ChronicPain #mecfs #ForTinu #cannabisculture

“Be gentle with yourself… Our bodies are hard enough on us without ourselves being even harder. Be kind, be patient, be gentle. Treat yourself how you would treat another #chronicallyill person.” themighty.com/topic/chronic-illness/ha... #ChronicPain #Spoonie

Chronic Illness Management: 5 Things New Patients Need To Do One of the trickiest things about chronic illness management is just how much stuff there is to do. And it’s not one size fits all! Sure, there are some things that are common across illnesses, but…

"New things are being discovered all the time & u want to make sure that if u believe something..announced in the 1960s it’s still true today. #Misinformation happens by accident just as much as it happens on purpose.": buff.ly/s7RGfYc

by @katethealmostgreat.bsky.social
#ChronicPain #disability

Everything That A Newly Disabled Person Needs To Know When you have been disabled your whole life, disability is everything you have ever known, and it is a little easier to adapt because you have been doing it your whole life. It is a little more dif…

"It is ok to #AskForHelp because even non #disabled people need a little help sometimes.. it’s always better to have someone do something for you than try to do it yourself and get injured.": buff.ly/a3sVVYV

by sarahlynn358
#disability #ChronicIllness #ChronicPain #diagnosed #DisabledPeople

Living Well with Fibromyalgia & ME/CFS <p><strong>Diagnosed with Fibromyalgia or ME/CFS?<br />Finding Your Path Forward: A 6-Week Guide to Managing Symptoms &amp; Building Resilience</strong></p><p><strong>A course by Chiko, a fellow warri...

Free trial. No cost. Just honest feedback in return. If you've been searching for a roadmap, DM me. Limited spaces.
www.udemy.com/course/livin...

#fibromyalgia #chronicillness #mecfs #chronicpain #womenshealth

Chronic Illness Makes Planning Hard — And It’s Not Your Fault | The Thriving Spoonie by April Smith | Mar 31, 2026 | Pacing & Adaptability | 0 comments

"Before u can think about what needs to happen today, you’re already running a separate set of calculations..That’s not a warm-up. That’s work. Cognitively demanding, energy-consuming #work that most #planning systems completely ignore.": buff.ly/7iA9zY6

by @thethrivingspoonie.com
#ChronicPain

Painting gardens brings me joy … and distances my pain while I’m painting. This is my most recent painting.

Garden in the Woods, 11” x 14”, acrylics.
#painting #scape #landscape #flowers #dreamingofspring #BlueSkyArtShow #EastCoastKin #artismytherapy #chronicpain #chronicillness

Support ChikoCfM Support ChikoCfM

I help fellow #Fibromyalgia & #MECFS warriors live well amid the chaos.Through my own hard won trials, I share practical strategies to help you minimise crippling symptoms.
Learn more and support me here ☕ ko-fi.com/chikocfm

#chronicIllness #Spoonie #fibromyalgia #womenshealth #chronicpain

Where in the World are the Accessible Beauty Brands? This post is written by Disabled& guest contributor, Mariadeliz Santiago

"When you’re looking for #accessible #brands, you’ll find brands like Rare who are “mainstream” brands making a strong effort to be #inclusive, and you’ll also find brands like Human Beauty, whose primary mission is #accessibility.": buff.ly/tHXO46P

via disabledand
#disability #makeup #ChronicPain

Ehlers Danlos Syndrome and Men: Three Key Issues Men and their experiences living with hypermobile Ehlers Danlos syndrome is a whole topic…one that doesn’t get nearly enough attention in my opinion.  When you look online for info…

Guys have #EhlersDanlosSyndrome too, you know.

#BlogPost #MensHealth #GuysWithEDS #ChronicPain #ChronicIllness #EDS #hEDS #MCAS #POTS #HolisticHealth 💕 #Wellness

What Causes Chronic Pain? Scientists Identify Key Culprit in the Brain A newly identified brain circuit may hold the key to understanding why some pain fades while other pain lingers long after injury.

What Causes #ChronicPain?
#Scientists Identify Key Culprit in the #Brain

scitechdaily.com/what-causes-...

of #AnimalControl just started in the #ChronicLoaf stream

mzelo.com/app/rooms/ch...

#comedy #spoonie #ForTInu #neisvoid #DisCo #cannabisculture #ChronicPain

Surviving a Life Made of Crises - Beyond the Limits：不自由をデザインし、新しい生を共創するラボ The “Akan” Strategy: How I Clear the Game on Highest Di

“[ #Akan ] means:
Naming what cannot be changed.
Fixing it as a constraint.
Redirecting resources into what can be improved.
That isn’t #weakness.
That is elite-level #survival.
Because #human resources are limited.”: buff.ly/FlTAONo

by kenken02122000
#disability #ChronicPain