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![Relapse
by Heather Gill, proud mother and carer of Sarah (16)
have been asked to share with you one of the awful parts of ME - The Relapse. My daughter, Sarah, has had many of these in the last couple of years, some not too bad, some very bad. Let's look at this together.
Reflect
A time to Reflect. Have we been overdoing things? We must now rest and let our bodies Recover.
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Laughter
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Conserve your Energy to give you the resources to get back.
Laughter is one of the best therapies. I know it is hard when you feel so down, frightened and ill but, believe me, a laugh will make you feel better. [To find out why laughter is good medicine read Dr Darrel Ho-Yen's HOW TO: Float (and not drown!) on page 12. Ed.]
Achievement Achievements, however small, are important. Celebrating the little achievements every day gives a welcome boost.
Patience, with yourself and others, is important at this time. Give yourself and others time for you to feel better.
Learn the art of Survival. No matter how bad things get, remember you can get through the endurance test that is ME.
ncouragement This is a very upsetting time, for sufferers and carers. Encouragement is so valuable. Always be prepared to listen to how the other feels.
The TYMES Magazine Issue 31 Winter 2000](https://cdn.bsky.app/img/feed_thumbnail/plain/did:plc:43rudsv62fuwsmnk7oppgtdy/bafkreiat7uubgk3xq433jxqtucbzbjpn7obqbbs5g2naxthvb6jp2swwsi)
Relapse by Heather Gill, proud mother and carer of Sarah (16) have been asked to share with you one of the awful parts of ME - The Relapse. My daughter, Sarah, has had many of these in the last couple of years, some not too bad, some very bad. Let's look at this together. Reflect A time to Reflect. Have we been overdoing things? We must now rest and let our bodies Recover. ୧ en nergy Laughter A P atience S urvival 14 Conserve your Energy to give you the resources to get back. Laughter is one of the best therapies. I know it is hard when you feel so down, frightened and ill but, believe me, a laugh will make you feel better. [To find out why laughter is good medicine read Dr Darrel Ho-Yen's HOW TO: Float (and not drown!) on page 12. Ed.] Achievement Achievements, however small, are important. Celebrating the little achievements every day gives a welcome boost. Patience, with yourself and others, is important at this time. Give yourself and others time for you to feel better. Learn the art of Survival. No matter how bad things get, remember you can get through the endurance test that is ME. ncouragement This is a very upsetting time, for sufferers and carers. Encouragement is so valuable. Always be prepared to listen to how the other feels. The TYMES Magazine Issue 31 Winter 2000
A teenager with ME reflects on relapses that are unfortunately part of ME
Old but timeless
I came across it when doing a clear out. From the magazine of the Tymes Trust
#MEcfs #PwME #CFS #MyalgicEncephalomyelitis
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It was such a great turnout at PotatoFur Sanctum (CFS) last night! It’s honestly one of my favorite spots to just dance and get a little playful on the floor.✨💕
🐺: @adomb.bsky.social
📍: maps.secondlife.com/secondlife/Xan…
#SecondLife #SL #FurrySL #Furry #CFS
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Why palm for #palmsunday? For many Christians, it celebrates Jesus' victory over death and serves as a reminder to repent in order to experience God's forgiveness and His welcome into heaven. #CFS #HopeLivesHere
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My key worked again Friday morning- there have been workers putting in a new bathroom fan ladt week, and one of them must have done something to the lock. So glad I don't have to have the lock replaced. #CFS
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From @onelife_livedwell on IG:
The PACE trial shaped an entire research paradigm, but the methodology tells a more complicated story. This is what happens when lived experience and research conclusions don’t align and why how we define things matters so much. #mecfs #longcovid #pwme #cfs
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Good news: the patient won. On the negative side of things, the ruling says questionable things. See discussion here:
www.s4me.info/threads/norw...
#mecfs #pwme #CFS
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I was impressed with the lifts around the Southbank Centre though. I looked at the steps up to Waterloo Bridge with dismay, but then I found a lift underneath them! #CFS
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I don’t know what the heck is going on in my brain with the Exploding Head Syndrome. Maybe it’s my monkey brain trying to tell me it’s not safe to fall asleep? At first I thought it was just loud bangs, but it can be any loud noise, I just had jangling chains! #CFS #ExplodingHeadSyndrome
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While I loved the exhibition, I definitely overdid things yesterday. Got a taxi from Euston to the gallery, but thought I’d save some ££ and get the tube back.
I’d forgotten that not all tube stations have escalators and the steps were too much for me.
Have realised that my exploding head […]
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New #cfp added for UtahJS Conf in September 2026. More details at cfp.watch/cfps/2026-ut.... #cfs #callforpapers #callforproposals #speakers #callforspeakers #publicspeaking #speakerlife
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#NESVOID,
#mecfs, #cfs, #MEScience, #ME/CFS, #pwME, #MEeps, #MEAwareness, #PostExertionalMalaise, #MyalgicE, #SevereME,
#MillionsMissin
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New #cfp added for Fork it! Rouen in June 2026. More details at cfp.watch/cfps/2026-fo.... #cfs #callforpapers #callforproposals #speakers #callforspeakers #publicspeaking #speakerlife
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Correspondence Open access Published: 26 March 2019 Response: Sharpe, Goldsmith and Chalder fail to restore confidence in the PACE trial findings Carolyn E. Wilshire & Tom Kindlon BMC Psychology volume 7, Article number: 19 (2019) Cite this article A Research article to this article was published on 22 March 2018 Abstract In a recent paper, we argued that the conclusions of the PACE trial of chronic fatigue syndrome are problematic because the pre-registered protocol was not adhered to. We showed that when the originally specific outcomes and analyses are used, the evidence for the effectiveness of CBT and graded exercise therapy is weak. In a companion paper to this article, Sharpe, Goldsmith and Chalder dismiss the concerns we raised and maintain that the original conclusions are robust. In this rejoinder, we clarify one misconception in their commentary, and address seven additional arguments they raise in defence of their conclusions. We conclude that none of these arguments is sufficient to justify digressing from the pre-registered trial protocol. Specifically, the PACE authors view the trial protocol as a preliminary plan, subject to honing and improvement as time progresses, whereas we view it as a contract that should not be broken except in extremely unusual circumstances. While the arguments presented by Sharpe and colleagues inspire some interesting reflections on the scientific process, they fail to restore confidence in the PACE trial’s conclusions.
Today is 7th anniversary of publication of this rejoinder.
Free here: bmcpsychology.biomedcentral.com/articles/10....
The more important paper is initial paper which included re-analyses of £5m #PACETrial results. Free here: bmcpsychology.biomedcentral.com/articles/10....
#MEcfs #CFS
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I have been hammered by fatigue this week. It is always hard to know why some weeks are worse than others. Usually my anti-fatigue medication helps, but I just haven't been able to do much. The reality of disability. #NEISvoid #CFS
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My helper will be here tomorrow and I'll go tell apartment management tomorrow. It is really creepy that I can't use my key in my front door. I can lock the door from the inside, though. I had to have my locks changed in Minneapolis about six years ago. Same stalkers? #CFS #NEISvoid
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There is something wrong with the front door lock in my apartment. My key doesn't work to lock my apartment door when I go out. There were maintenance people here for the last few days changing out the fan in the bathroom. I wonder if one of them messed up the lock. #CFS
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I am supposed to have insurance, but somehow I don't have coverage. So I have to go figure out the paperwork. And I am absolutely exhausted. The cruelty of Republicans. The selfishness of some people. The evil, really. #CFS
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I get tired of Republicans screaming about fake morality crises when this country lets so many people with disabilities suffer. People will vote for a rapist rather than admit they are selfish racists. #CFS
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You're the author of your own story, and we'd love to be a sounding board as you consider each chapter! Get "writing" with our weekly #WalkInWednesdays Counselling Clinic - today at #CFS. #HopeLivesHere
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#CFS is proud of our low-barrier services! With our no-cost-to-you program offering in-person and virtual sessions, everyone can get help. #ready2talk? Get help your way at https://tinyurl.com/3ksuh5eh #HopeLivesHere
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Experience smarter steel detailing with FRAMECAD Steelwise.
Start your 𝟯𝟬-𝗱𝗮𝘆 𝗳𝗿𝗲𝗲 𝘁𝗿𝗶𝗮𝗹 today and see how advanced tools can improve accuracy and efficiency across every project.
#CFS #CFSteel #SteelFraming #LGS #FRAMECADSteelwise
framecad.com/steel-framin...
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#grief #chronicillness #illness #chronicpain #chronicfatigue #Endometriosis #Adenomyosis #ME #CFS #sjogren #Fibromyalgia #YouAreNotAlone ♥️🙏
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No cost, no worry! #CFS offers the Men's Counselling Link program at no cost to you, so you can get the help you need. Book your virtual or in-person session now. https://tinyurl.com/yzpb6vz6 #HopeLivesHere
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The former TV presenter said that he suffers with Chronic Fatigue Syndrome and that using a bus stop would be “out of the question” on a bad day, and that walking to the train station can be “quite exhausting” for him. He said that on “bad days” he will have to “lay down for a day or two” and will be unable to walk for weeks. Lamarr also told the court that he is “effectively retired” and is now “dealing records”, and that he uses his car to “find stock”.
Sorry to hear that Former Never Mind The Buzzcocks host Mark Lamarr has chronic fatigue syndrome
"Mark Lamarr banned from driving despite claiming exceptional hardship"
www.corklive.ie/news/arts---...
#MEcfs #CFS #ChronicFatigueSyndrome
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Glorious art. So many of us understand.
#ME #CFS #EhlersDanlos #cancer #chemo #singleparents #elderly #oppressed #workingpoor #chronicillness #exhaustion
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UK NHS England releases e-learning module “Supporting people with severe ME/CFS” NHS England have released a modified version of their materials aimed at helping healthcare professionals understand how to support people living with Severe or Very Severe ME/CFS. Unlike the previous version which was restricted to those with a qualifying work email address this module is available to view by anyone who registers for a general user account.
UK NHS England releases e-learning module “Supporting people with severe ME/CFS”
learninghub.nhs.uk/Resource/793...
Screenshot from latest Science for ME weekly update
#SevereME #MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
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#CFS' counselling clinic is in-person in #Collingwood on Mondays! No-cost sessions are available by appointment only. Are you #ready2talk? Book now at https://tinyurl.com/mh6ejx4t #HopeLivesHere
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How I do trauma therapy with CFS (the turtle), 5ys now, after waiting and searching 5ys and contracting covid and long covid. (which together with transphobia in academia killed my PhD in History of Science)
#criptime #cptsd #CFS
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Description from Science for ME @scienceforme.bsky.social forum’s weekly update: “This blog post, an overview of research findings on the immune system in ME/CFS patients, concludes that ‘current data do not suggest that (low-grade) inflammation is a key driver of ME/CFS symptoms’”
#MEcfs #PwME #CFS
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