Normaler Dermatomyositis-Tag: Essen bleibt in der Speiseröhre stecken, Haut brennt,sticht und juckt,Muskeln schmerzen,Hände kaum bewegen können. #autoimmun #dermatomyositis #Kollagenose

Early detection and intervention in dermatomyositis: current evidence and clinical implications How does early diagnosis of dermatomyositis influence disease progression and physical function? What barriers hinder timely identification and what strategies can enhance early detection and…

How does early diagnosis of #dermatomyositis influence disease progression and physical function?

What barriers hinder timely identification and what strategies can enhance early detection and expedite treatment initiation?

Find out here 👉 buff.ly/obmGDHW

#RheumSky

Brepocitinib VALOR Trial Shows Significant Benefit Brepocitinib 30 mg daily produced a 60% responder rate vs 30% placebo at week 16; NEJM published VALOR results on Mar 28, 2026, reshaping dermatomyositis treatment debate.

Brepocitinib VALOR Trial Shows Significant Benefit: Brepocitinib 30 mg daily produced a 60% responder rate vs 30% placebo at week 16; NEJM published VALOR results on Mar 28, 2026, reshaping dermatomyositis… 👈 Read full analysis #Brepocitinib #VALORTrial #Dermatomyositis #ClinicalTrials #NEJM

Clue to how muscles weaken in dermatomyositis opens door to new drug treatments Factors in the blood of patients with dermatomyositis can impair muscle function by activating a specific inflammatory pathway. This is shown in a new study from Karolinska Institutet published in Ann...

Factors in the blood of patients with #dermatomyositis can impair muscle function by activating a specific inflammatory pathway, finds a KI study published in @ard.eular.org. The results suggest that drugs that block this signalling could counteract muscle weakness 🧪 news.ki.se/clue-to-how-...

Ich sitze in einem Frühstückssaal mit 200 fröhlich vor sich hin schmatzenden Menschen. Mir bleibt jeder kleinste Bissen im Hals stecken,ich muss würgen und husten und manchmal zur Toilette rennen, um alles wieder herauszukotzen, damit ich nicht ersticke. #dermatomyositis #dysphagie

Entstellend. Entwürdigend. #dermatomyositis

Den eigenen Speichel nicht schlucken können. #dysphagie #dermatomyositis

Keine Therapie,die zu Heilung führt. Stattdessen Cortison und andere starke Medikamente off-label. Medikamente, die paradoxe Wirkungen auslösen. Chemotherapien mit den üblichen Nebenwirkungen. Lebenslang. #autoimmun #dermatomyositis #longcovid

Die meisten Ärzte kennen die Erkrankung nichtmal. Ich brauche aber Experten. Im Moment weiss ich mehr darüber, als alle meine Ärzte. Und muss ihnen erklären, welche Medikamente/Therapien ich brauche. #dermatomyositis #longcovid

Ich würde mich gern mit anderen Erkrankten austauschen. Alas, orphan disease. Es gibt so wenige von uns. #dermatomyositis #longcovid

Radikale Akzeptanz. Schaffe ich noch nicht. #dermatomyositis #longcovid

Haarausfall und jeden Morgen zugeschwollene Augen. So lange,bis das Prednisolon wirkt. Die Haut im Gesicht ist gerötet und brennt. Ästhetischer Supergau. #dermatomyositis #longcovid

Muskelschwäche. Muskeln sind entzündet und es fühlt sich an wie starker Muskelkater. Sie verkürzen sich. Ich kann Dosen nicht mehr aufschrauben. Pullover anziehen wird fast zum Ding der Unmöglichkeit und kostet unendlich viel Kraft. #dermatomyositis

Juckreiz. Nicht der übliche. Die gerötete Haut britzelt,brennt,sticht und juckt. Auch wenn man nicht kratzt,gibt es verkrustete Läsionen,die wochen- bis Monate lang bleiben. #dermatomyositis

Schluckstörung. Ich koche schöne Menus und kann sie nicht essen. #dermatomyositis

Research Article

Anifrolumab Therapy in Dermatomyositis: New Insights From Refractory Patients

📖 www.jrheum.org/cgi/content/...
@unipisa.bsky.social

#Dermatomyositis #QualityofLife

#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy

#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics

#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics

Concomitant IgA nephropathy and dermatomyositis: a case-based review An extremely rare case of dermatomyositis concomitant with IgA nephropathy. Although the possibility of coincidental co-occurrence cannot be ruled out, it seems more likely that a common pathologic…

#MedCase - An extremely rare case of #dermatomyositis concomitant with IgA nephropathy.

Although the possibility of coincidental co-occurrence cannot be ruled out, it seems more likely that a common pathologic mechanism plays a role.

👉 buff.ly/cAAzrpL

#IgANephropathy #RheumSky

The February issue is now online!

👉Read our latest articles! onlinelibrary.wiley.com/toc/13652796/2026/299/2

#aldosteronism #cryoglobulinemia #colitis #dementia #dermatomyositis #JAK #cardiovascular #COVID19 #SARSCoV2 #mRNA #vaccination #liver #psoriasis

#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics

Research Article

Quantifying Cutaneous Dermatomyositis: A Novel 3D Image–Based Approach

📖 www.jrheum.org/cgi/content/...
@pittdeptofmed.bsky.social

#Dermatomyositis #DiseaseActivity

Studies show that COVID-19-related myositis manifests in diverse forms, ranging from typical dermatomyositis to rhabdomyolysis and paraspinal myositis [5]. Indeed, adult cases of #dermatomyositis #postCOVID / #Longcovid have been reported .

🔥Hot Off the Press | A #Science study reveals that #dermatomyositis is driven by JAK1-mediated, monocyte-induced #vasculopathy and #inflammation
🌟#JAK1 blockade mitigates endothelial damage and inflammatory signatures
💡JAK1 can be a promising target for dermatomyositis

#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency

#immunoglobulin #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency

Frequent genetic alterations in myositis autoantigen genes in cancer-associated dermatomyositis One-third of patients diagnosed with dermatomyositis harbour an occult cancer, a rare condition named cancer-associated dermatomyositis (CAD). Emergin…

Frequent genetic alterations in myositis autoantigen genes in cancer-associated #dermatomyositis www.sciencedirect.com/science/arti... #hvhebron #onco #rad #medint #reu

‘Exciting’ brepocitinib data may open door for first targeted dermatomyositis drug Treatment with once-daily brepocitinib improved skin disease, muscle and physical function measures for adults with dermatomyositis while minimizing steroid burden, with benefits as early as 4 weeks a...

🆕phase 3 VALOR data:

💊Brepocitinib, an oral TYK2/JAK 1 inhibitor, improved skin disease, muscle strength & functional disability for people with #dermatomyositis.

📰 My interview with Anthony Fernandez, MD, of @clevelandclinic.bsky.social🔗⬇️

@gohealio.bsky.social

www.healio.com/news/dermato...

From the November issue: Study by Zhao et al suggests we are under treating #ASCVD in patients with #dermatomyositis https://ow.ly/l9Q050WCTmY #medderm #dermsky