Calling all myositis warriors 💙
Get a free Myositis Wellness Guide with resources to help you manage flares, support your energy, and navigate daily life.
🔗 creakyjoints.org/education/my...
#myositis #raredisease #chronicillness
What an amazing time in Lisbon at the #GCOM2026! THANK YOU #MYOSITIS FAMILY!! 🙏🙏 www.linkedin.com/posts/raquel...?
Differences in clinical practice & barriers to access in #myositis treatment ⤵️
An international analysis led by #MedUniVienna has provided an overview of the actual use of #IVIg in clinical practice worldwide.
Read more about the results! ⬇️
📰 @eular.org Rheumatology Open
🚀 It’s finally here!
GCOM 2026 starts today at the Lisbon Congress Center (CCL) where the global myositis community will meet!
We welcome all to this much awaited conference in person and virtually!
👉 gcom.imyos.org
#GCOM2026 #Myositis #iMyoS #InflammatoryMyopathy #MedicalResearch #ConferenceDay
⏳ 1 day to go! GCOM 2026 is almost here!
Are you already in Lisbon 🇵🇹 or travelling to Lisbon? We look forward to welcoming you & uniting the global Myositis community for this much-anticipated biennial event!
📍 See you here
👉 gcom.imyos.org
🇵🇹 Lisbon | March 23-26
#GCOM2026 #Myositis #iMyoS
The Myositis Team from Strasbourg University Hospitals in France 🇫🇷 is
proud to present their work & to contribute to advancing research in IIM. If you are attending the GCOM26 in person, please make sure to stop by during
their poster sessions.
👉https://gcom.imyos.org/
#Myositis #GCOM #iMyoS
⏳ 2 days to go!
We’re almost there — GCOM 2026 in Lisbon 🇵🇹 is just around the corner, bringing the global Myositis community together once again!
Final preparations are underway — Lisbon welcomes you!
📍 See you here 👉 gcom.imyos.org
#GCOM2026 #Myositis #iMyoS #ConferenceCountdown
⏳ 3 days to go!
GCOM 2026 - ready to go!
🔬 Innovation & discoveries await to be discussed
🤝 Meaningful collaborations fostered
💡 Impactful new data driving greater understanding of disease mechanisms & treatment
❤️ Improved outcomes for patients
📍 gcom.imyos.org
#GCOM26 #Myositis #iMyoS
At the GCOM in Lisbon this month, researchers from Amsterdam UMC, led by Joost Raaphorst & Anneke van der Kooi, will present 8 studies spanning translational, clinical, and
patient-centered research in myositis.
See you in Lisbon gcom.imyos.org
#Myositis #GCOM #iMyoS #ClinicalResearch #IIM
⏳️Four days to go! #GCOM 2026 in Lisbon 🇵🇹 is almost here — the most anticipated & dedicatedconference on #Myositis which takes place once every 2 years!
Get ready for:
🔬 Breakthrough insights
🤝 Powerful collaborations
💡 Fresh perspectives
❤️ Better outcomes for patients
👉 gcom.imyos.org
March 23-26
GCOM 2026 in Lisbon 🇵🇹 is almost here — the most anticipated & dedicated
conference on #Myositis which takes place once every 2 years! Get ready for:
🔬 Breakthrough insights
🤝 Powerful collaborations
💡 Fresh perspectives
❤️ Better outcomes for patients.
See you here 👉 gcom.imyos.org
#GCOM #iMyoS
#Autoimmune Scientist–Patient Perspective
Living with a rare autoimmune disease fundamentally changes how you see science.
In the latest Keep It Science episode, I speak with Dr Karen Cheng, who has lived with #myositis for nearly two decades and now works globally to ensure that
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De kogel is door de kerk: we gaan op zoek naar een ander huis.
Hoewel we nog steeds erg gek zijn op deze unieke plek, weegt het (achterstallig) onderhoud te zwaar. Echtgenoot heeft #myositis en ik loop met trauma en #rouw op m'n lijf. De energie om ons klushuis en -tuin aan te pakken ontbreekt ons.
🚨A Rare & Powerful Moment in Myositis Research! As CAR-based therapies move rapidly into the myositis space, we have a unique opportunity: to hear directly from patients! Join us!
gcom.imyos.org
#GCOM26 #Myositis #iMyoS
@Karen Cheng
@Guillaume Freund
@Lindsay Guentzel
@Pedro Machado
@Rebecca Nicolai
🚀 AI Workshop|GCOM26
AI in healthcare is evolving — and patients & physicians are driving this innovation together!
Join us to find out how AI is used from clinical experts & patients.
Be part of the conversation.
👉https://gcom.imyos.org/
#Myositis #GCOM26 #iMyoS #AI
Ik vind dat echt een moeilijke vraag. Sinds Echtgenoot en ik samen zijn (22 jaar) hebben we wel zó veel tegenslag moeten verduren. And the hits just keep coming.
Echtgenoot heeft het nu zwaar met zijn #myositis en ik #rouw om m'n moeder terwijl we de wereld zien branden. Ik weet 't even niet meer.
Thrilled that Valérie Leclair, clinician-researcher in Montreal 🇨🇦, is heading to #GCOM26 in Lisbon! 🇵🇹
She’s eager to learn and share global advances in myositis research, support colleagues on the international stage —and enjoy some dancing in Lisbon!
👉 gcom.imyos.org
#Myositis #iMyoS
🌍We are looking forward to see global expertise unite at the Global Conference on Myositis 2026 #GCOM26. Come join PD Dr. med. Peter Korsten & all participants in this powerful scientific exchange & meaningful dialogue toward better #myositis care. 🤝
🔗 More information here: gcom.imyos.org
#imyos
Hoewel Echtgenoot nog van geluk mag spreken als we deze verhalen horen, herkennen we in elk verhaal wel iets. Het is een nare, ingrijpende aandoening.
#myositis #rarediseaseday
It's RARE DISEASES DAY!
🩷💜💙
This day aims to raise public awareness of the concerns of those affected by rare diseases.
MYOSITIS is one of around 6,000 known rare diseases to date & each one requires maximum attention, research, diagnostics & treatment options!
#raredisease #rarediseases #myositis
Choon Guan Chua, Consultant Rheumatologist at Tan Tock Seng Hospital in Singapore, will be coming to the GCOM 2026!
He is connecting with the global myositis community— to exchange research findings & ideas and explore multi-omic approaches.
👉 gcom.imyos.org
#GCOM26 #Myositis #IIM #iMyoS
🌍 Excited for GCOM next month!
Dr. Marie Hudson (McGill University, Montreal) looks forward to learning more about muscle ultrasound in myositis and moderating a workshop on epidemiology and classification.
Join the global myositis community in Lisbon
👉 gcom.imyos.org
#GCOM26 #Myositis #RareDisease
#IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy
📣 CLINICAL CASES WORKSHOPS
We are pleased to invite submissions for the Clinical Cases Workshop, an innovative educational activity of the Global Conference on Myositis (GCOM) 2026.
🚨Deadline: 13. February 2026
🔗 gcom.imyos.org/submit-for-t...
#GCOM #iMyoS #Lisbon #Myositis
The February issue of @jrheumatol.bsky.social is here!
📖 www.jrheum.org/content/53/2...
#RheumatoidArthritis #PsoriaticArthritis #Spondyloarthritis #Lupus #Myositis #Pediatric #Gout #Vaccination #Rheumatology
#patienteducation #patient360 #IVIG #SCIG #CVID #primaryimmunodeficiency #myastheniagravis #myositis #Dermatomyositis #CIDP #polymyositis #guillainbarresyndrome #secondaryimmunodeficiency #stiffpersonsyndrome #immunodeficiency #chronicillness #Igtherapy #biologics
