Disappointed to see O’Sullivan’s book featured in this edition of DD, especially after the edition on Chronic Illness (DD379). You might be interested in this: virology.ws/2025/04/10/t... and also this: bsky.app/profile/abro...
Professor Chris Ponting on how findings from the largest genetic study in #MECFS show “there is an organic disease called ME”.
“We’ve had letters from GPs saying we have changed their minds”
Clip from Hope 4 ME & Fibro NI Collaboration
Helen Gibson and Edward Monroe on BBC Radio 4’s Feedback challenge Suzanne O’Sullivan’s claims that #LongCovid is largely psychosomatic when she was interviewed on Amol Rajan’s podcast. Mentions #MECFS, NICE’s 2021 guidance and DecodeME genetic findings.
Important post from Dr Todd Davenport about PEM.
likeannopeningbandforthesun.substack.com/p/in-pursuit...
@johnrain.co.uk just realised what your profile pic reminded me of… Are there any more Columbo eps in the podcast pipeline btw? 🤞
VORTEX
A very stocky Exmoor Horn ram.
Happy 8th anniversary to the tweet that changed us forever. Look at this absolute unit.
If you’re in the UK, Helmshore Textile Museum in Lancashire is well worth a visit. You can find out about mills workers, the Industrial Revolution and how it all ties into the Cooperative movement which began a few miles away in Rochdale. Having visited recently, I can recommend the guided tours!
@syskpodcast.bsky.social Stuff You Should Know: How to pronounce Rochdale 😂 The cooperative idea wasn’t about building utopia, mill owners in the 1800s trapped workers in debt, paying them in tokens that could only be used in the mill owner’s expensive shops. Co-op was a way to help those workers
The last couple of days of Long Covid Awareness Month. Was fortunate to have Dr David Putrino on The Butterfly Pavilion Podcast. "The Long Covid Kaleidoscope" podcasts.apple.com/us/podcast/t...
👀 @mileswgriffis.bsky.social
#LongCovid #LongCovidAwareness #podcast #cancer
Thanks Ty — a great listen as usual! Putrino is one of my LC heroes. It’s good to know he’s in our corner 🙌
It was brilliant! So well handled, thoughtful, well-informed questions and a brilliant interview. Thanks for talking about this vital issue 🙏🙌
Thank you. It was superb. 🙏🙌
That was ***SO*** well done. Thank you for your understanding and taking the time to ask such thoughtful questions, and for raising awareness of LC. As a sufferer it means a great deal. Claire was great, she put her spoons to great use. Thankyou Kenny! 🙌
Thank you @mrkennycampbell.bsky.social for a superb, well-informed episode. Claire was utterly brilliant. Thank you @quietriotpod.bsky.social @pimlicat.bsky.social and @sturdyalex.bsky.social for highlighting this important issue, it means a lot — sufferers have largely been forgotten & abandoned 🙏🙌
❤️🩹 A THANK YOU TO OUR COMMUNITY ❤️🩹
Today is Long Covid Awareness Day. Around the world, people will be talking about Long Covid, learning more about what it is, and hearing about its impact.
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IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Cognitive dysfunction/brain fog, Pain, Headaches, Pins and needles/paraesthesiae, Sleep disturbances.
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Loss of taste and/or smell, Breathlessness, Cough.
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Fatigue and PEM, Hair loss, Skin rash, Nausea, stomach pain and diarrhoea.
IMAGE DESCRIPTION: Graphic of a stick figure, with the Long Covid Awareness logo and the ME Association logo at the bottom. Heading - Common symptoms of Long Covid. The following symptoms are in bubbles around the stick figure: Chest pain, Palpitations, PoTS
Long Covid awareness Day (March 15) aims to raise awareness of the long-term health problems people may experience after a COVID-19 infection.
You can find out more about Long Covid and the symptoms here: https://meassociation.org.uk/vqei
#LongCovid #LongCovidAwareness #LongCovidAwarenessDay2026
@alexlowe1.bsky.social Great show, the spirits in Derby were strong tonight! Just wanted to say thanks for saying hello when I was waiting outside for my mate to arrive — you made my day x
😂
Good job I’m on heart meds 😂
Oh no — I’m so sorry.
Phew! It’s a great pic, but glad you’re ok!
Ouch — I hope you’re ok! 🦋
Best appreciated whilst watching it with this as the soundtrack:
Finally!
Looks like a great place to enjoy some spring(ish) sunshine!
An update — an article about this study appeared in yesterday’s Guardian: Decline in remote jobs risks shutting disabled people out of work, study finds www.theguardian.com/world/2026/f...
I’m so sorry for your loss, Alex
