The event will be an opportunity for discussion, where you can share your views and ask questions via the moderated live chat.
Date: Wednesday 15th April 2026
Reserve a spot here: www.eventbrite.co.uk/e/focus-on-s...
The Schools Minister answers your questions on SEND reform.
This session will provide an opportunity for parents and carers to hear from the Schools Minister, Georgia Gould, about the live consultation on the government’s plans to reform the SEND system, including the main themes we're focusing on.
Join the national Learning Disability Professional Senate on 14th May 2026 for “Healthy Lives Together: Listening and Learning to Improve Health for Children, Young People and Adults with a Learning Disability”.
Tickets are £35. To sign up please click: www.ticketsource.com/ld-professio...
Our Planning for Adulthood (Wales) resource has been updated, so families and professionals can access the latest support and information.
Access the updated resources here: www.challengingbehaviour.org.uk/information-...
Jacqui Shurlock, CEO of the CBF, spoke to ITV News about the impact of contact orders being applied to families, restricting their ability to see their relative, after they have raised concerns. Read our full statement here: www.challengingbehaviour.org.uk/news/itv-new...
We are seeing a growing trend in the punitive use of contact orders due to a lack of high-quality support and services in the community which can support people with severe learning disabilities whose behaviour challenges.
Today, ITV News have broadcast a news story on contact orders. 45 families who have a relative with a learning disability have been banned from visiting their relative or had restrictions imposed on visits after raising concerns about the way their loved ones are being treated.
Ahead of the government’s plans to reform SEND, the Disabled Children’s Partnership is calling for a system that works for children, young people and families - not against them.
You can read more here:
www.theguardian.com/education/20...
@dcpcampaign.bsky.social #SEND #FightForOrdinary
If you have been affected by any of the issues raised in this report, you can call the Family Support Service on 0300 666 0126 or email us at support@thecbf.org.uk (Open: Mon -Thurs: 9am – 5pm | Friday: 9am – 3pm)
The Department of Health and Social Care and NHS England must take significant action to address these health inequalities, or people with learning disabilities will continue to die when they should not.
To stop people dying too soon we must see an urgent focus on improved care and coordination for people with learning disabilities – understand how to communicate with individuals and their families, listen to what they have to say, make reasonable adjustments, and make specialist support available.
1 in 4 deaths of people with severe or profound and multiple learning disabilities were treatable – meaning that, they could have been avoided through timely and effective healthcare interventions. This is a huge health inequality and failure of care.
The updated report shows that 40% of deaths of people with learning disabilities were avoidable, double that of the general population.
Following the delays to publication in the first place, this raises questions about how seriously DHSC and NHSE are taking the collection and analysis of data on the deaths of people with learning disabilities. The people who died and their families deserve better.
The updated version of the LeDeR report has been published this week. The original report, published in September, was withdrawn because information about the cause of more than 200 deaths was missing, meaning whether they were preventable could not be analysed. www.kcl.ac.uk/research/leder
We’re calling on Government to end the cliff edge, to ensure personalised support is available to families that allows them to focus on what's possible, not just what's available.
Too many families describe the transition to adulthood as something they had to navigate alone, isolated, unprepared and without adequate support for their young persons’ transition from child to adult services. It doesn’t have to be this way.
Over 290 people have signed our open letter!
Your signature can help ensure that every young person with a severe learning disability navigates the transition to adulthood with confidence and proper support.
✍ Sign the open letter bit.ly/3J9oO8u
#EndTheCliffEdge #TheCBF #KIDS
(5/5)Action is needed now, including addressing the decline in learning disability nurse numbers, ensuring hospital passports are properly understood and used, and consistently putting reasonable adjustments in place.
www.learningdisabilitytoday.co.uk/news/leder-w...
(4/5)There continues to be too many avoidable deaths, including cases where, if better care and coordination were available, people with learning disabilities would not have died. While it is vital that the report is accurate, this must not delay any action taken by the NHS and other organisations.
(3/5)Steps must be taken to ensure data issues like this do not happen again. While it is vital that the report is accurate, this must not delay any action taken by the NHS and other organisations.
(2/5)The data in the LeDeR report represents lives that have been lost, in many cases due to poor care. Given the long delay in approving the publication of the original report, the Department of Health and Social Care and NHS England must ensure the revised version is published as soon as possible.
(1/5) The most recent ‘Learning from Lives and Deaths – people with a learning disability and autistic people’ (LeDeR) report has been withdrawn so that the LeDeR team can update their analysis after information around the cause of death of some people with a learning disability was missing.
Shopping the January sales? Did you know you could be helping us at the same time?
Sign up to easyfundraising and over 8,000 retailers will donate to us every time you shop online without it costing you anything, including Tesco,John Lewis and many more.
www.easyfundraising.org.uk/causes/cbf/
The DfE has published revised guidance on the use of force and restrictive interventions in schools. Whilst the CBF welcomes the changes, we are still calling for the development of mandatory national training standards as a matter of urgency. www.challengingbehaviour.org.uk/news/cbf-sta...
We pay testament to the determined campaigning of family carers, people with learning disabilities and autistic people which has led to this change. Now the Government must begin the urgent work to co-produce and deliver good community support to make this law a reality.
The law will change so that people with learning disabilities and autistic people cannot be detained in mental health hospitals unless they have a mental health condition that needs treatment.
Following years of campaigning by families, people with learning disabilities and autistic people, the Mental Health Bill has finally received Royal Assent.
Our Peer Support Services are here for you. A safe, confidential space to talk, share, and connect with other family carers who truly understand.
Click the link below to find our more.
www.challengingbehaviour.org.uk/for-family-c...
For fathers, uncles, and brothers of someone with a severe learning disability, the emotional toll can be especially heavy. The love is deep, but so is the pressure. The quiet moments of worry. The feeling that you have to be the strong one — always. You don’t have to carry it alone.
