Redesigning trials to be inclusive of people with a learning disability—a practical example - Trials Background People with a learning disability are frequently excluded from clinical trials, with around two thirds of trials either directly or indirectly excluding this group. This contributes to the ...

New evidence from the @nihr.bsky.social 'No Research About Us, Without Us' project, outlining practical approaches to making research trials inclusive for people with #learningdisabilities @vickylshepherd.bsky.social @vasototsika.bsky.social @debcairns.bsky.social link.springer.com/article/10.1...

Recruiting a post-doc at UCL.
Using linked administrative data from health and education, the Research Fellow in Data Science with identify children with intellectual disability and investigate maternal mental health.
15 months, FT Salary £45,103-£ 52,586
Apply by 3rd Feb: tinyurl.com/bffeshp6

Thank you @jidr-wiley.bsky.social !
I have really enjoyed supporting the publication of great research in intellectual disabilities as the EiC over the past 4 years!
Best of luck to the new editors. JIDR is in good hands

About one week to go for applications - happy to chat to anyone who might be interested

Journal of Intellectual Disability Research is inviting applications for the role of Editor-in-Chief

A reminder that Wiley is recruiting an Editor-in-Chief for the Journal of Intellectual Disability Research. The deadline for applications is 31st October 2025.

onlinelibrary.wiley.com/page/journal...

Harry Roche making a keynote speech at EAMHID 2025 in Ghent. First keynote speaker with an intellectual disability.
Harry says below what needs to happen for people with intellectual disabilities to be fully included. Unfair exclusion from basic rights, opportunities & research.

@mencap.org.uk

Shocking. Not entirely surprising though. I wonder how many people would continue writing papers if the system stopped counting them as academic ouputs

Thanks for your interest. Resources from the project are on @learningdiseng.bsky.social website -link below. Next week or so LDE will also update the page with webinar material
www.learningdisabilityengland.org.uk/no-research-...

This is how we moved from academic papers to easy read versions of research evidence. No Research about Us without Us seminar now on how we co-produce health research in intellectual disability
@learningdiseng.bsky.social @amymrussell.bsky.social @debcairns.bsky.social

Men's mental health is an increasingly important area - please do consider taking part if you are a man 40-65 years old

Your baby has down syndrome: a reflexive thematic analysis of breaking the news to parents - BMC Pregnancy and Childbirth The communication of a Down syndrome diagnosis to mothers is a pivotal moment that can impact their emotional well-being and the subsequent care for their child. This study aimed to explore maternal e...

We just published a new paper looking at the experiences of mothers when health professionals told them their baby has Down Syndrome.
Mothers were told before, during and after the birth of their baby, sometimes in odd places.
bmcpregnancychildbirth.biomedcentral.com/articles/10....

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation Background Adults with intellectual and/or developmental disabilities are disproportionately excluded from participation in research, consequently increasing disparities experienced by this group. G...

A Scoping Review of the Ways Gatekeepers May Hinder or Promote Opportunities for People With Intellectual and/or Developmental Disabilities to Learn About Research Participation #OpenAccess

onlinelibrary.wiley.com/doi/10.1111/...

Supporting young siblings of children with intellectual disabilities and/or visual impairments with the serious game ‘Broodles’: A mixed methods randomized controlled trial Siblings of children with neurodevelopmental conditions experience conflicting emotions and have an increased risk of mental health problems. Several …

🎉Happy to announce that our #RCT paper about the effectiveness of the #sibling serious game 'Broodles' has been published open access! With this game we offer an accessible, early intervention for siblings (6-9 years) of children with disabilities.

See: www.sciencedirect.com/science/arti...

Contraceptive and Pregnancy Decision-Making Autonomy and Health Care Experiences Among Women With Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...

The figures haven't changed in the past few years

Evaluating the Clinical Applicability of Multifrequency Bioelectrical Impedance Analysis for Nutritional Status Prediction in Hospitalized Persons With Severe Motor and Intellectual Disabilities

onlinelibrary.wiley.com/doi/10.1111/...

Collage of submissions for the I Open My Own Front Door, Do You Week campaign. Collage is a mixture of the photos, videos and quotes received for the campaign.

I Open My Own Front Door, Do You? Week has been fantastic! 💫

Send us stories of people opening their own front door, why they don’t get to and what you’re doing about it.

Take a look ⬇️
www.gloriouslyordinarylives.co.uk/i-open-my-ow...

@learningdiseng.bsky.social #IOpenMyOwnFrontDoor

Thank you for having us Michael @academichv.bsky.social. I really enjoyed the conversation and meeting the early minds network members

As of 📅Monday 3 March 2025, we will only be engaging via LinkedIn, Bluesky and YouTube. Join Us: 🦋Bluesky: https://bit.ly/3CzVk0j 🤝Linked In: https://bit.ly/439xQdl 🎥YouTube: https://bit.ly/3WWTihs 📰Subscribe to our newsletter: bit.ly/3WRt68c

As of 📅Monday 3 March 2025, we will only be engaging via LinkedIn, Bluesky and YouTube.

Join Us:
🦋Bluesky: bit.ly/3CzVk0j
🤝Linked In: bit.ly/439xQdl
🎥YouTube: bit.ly/3WWTihs
📰Subscribe to our newsletter: bit.ly/3WRt68c

Really enjoyed discussing our research on healthcare and autism with @mengchuanlai.bsky.social as part of the new #ICESOntario podcast #Disability #AutRes

Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University on FindAPhD.com PhD Project - Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities at Manchester Metropolitan University, listed on FindAPhD.com

Please share: new funded PhD opportunity!

Navigating the Mental Capacity Act to support Sexual Decision-Making for People with Learning Disabilities

To find out more please follow the link below:

#AcademicSky #FindAPhD #PhD #LearningDisabilitiesResearch

Nice to see you here @jidr-wiley.bsky.social