so i guess this explains why i get horrible side effects from nerve blocks

got prescribed steroids for status migrainosus and it turns out methylprednisolone contains lactose. which can be contaminated with whey. which i am allergic to. and no one ever mentioned it the dozen times i've had it INJECTED despite having whey allergy documented in my chart

Long ago, a cat died from being fed four minutes past feeding time. Cats have told their children of this for 3,000 generations.

wow it's gorgeous!!

i know nothing about whether social media is addictive but i do know that legislation is being passed in this country that purports to protect children but is actually used to surveil and monitor members of at risk communities, and it’s getting passed fast.

Early #MECFS career investigators in Europe!

The Young EMERG Symposium will be held May 25-26, 2026 at the Wellcome Genome Campus, Cambridge, UK.

Learn more here: youngemerg.com/yemerg07.shtml

If you're not an early career investigator or not in #MECFS, please share with your networks!
🧪

i strongly regret attempting to push through symptoms in order to exercise more. be extremely careful. start with recumbent exercises too, no walking or anything like that. bed yoga is good.

my main advice is to take it extremely slow and watch out for signs of post-exertional malaise. take 3 days between each attempt. if you find yourself less functional for hours to days after exercise, physically or mentally, stop and look into ME/CFS

Can’t stress enough that this is terrible news for researchers, especially those of us without institutional library access. There are alternatives suggested in the comments but …

Happy polio vaccine announcement anniversary. "There is no patent. Could you patent the sun?" remains one of the hardest remarks of all time. Kind of quote every child should be taught

this week in "everything is a disability issue"

Oh, the usage of "colonized" here is a tell

The "I'm actively trying to piss you off" icing on the Bad Take Cake

MEICFS ADVOCACY WEEK 2026 • FEDERAL ADVOCACY DAY ME/CFS has No FDA-Approved Treatments. Ask your Senators and Representatives to sign onto Dear Colleague letters in support of our community appropriations requests — we need medical research funding. Takes 5 minutes • Federal Advocacy Day • March 25, 2026

ME/CFS affects ~9 million Americans. There are no FDA-approved treatments. We need medical research funding to change that.

Today advocates are asking Congress to change that - join us! It takes 5 minutes:
solvecfs.quorum.us/campaign/157943/

why would you read harry potter (weird race science, main character grows up to be a cop) when you could read his dark materials (kids find and kill god)

Celebration of Life Welcome & Introduction On November 14, 2025, our beloved Alice Wong became an ancestor. In her own words, she told us: “Hi everyone, it looks like I ran out of time. I have so many dreams that …

"Many disabled people in media, myself included, owe a
debt of thanks to Alice, whether she helped us personally
or indirectly by fundamentally reshaping the culture around
us."

Very much agree with these words by @sesmith.lol on Alice Wong.

disabilityvisibilityproject.com/celebration-...

i love this passage

You know what can contribute to latent TB activation? Weakened immune systems like, say, if we let an unchecked immune-weakening virus repeatedly pummel school kids. N95 masks and cleaning the air would help a lot but those are Not Allowed because why address a problem when you can ✨ignore✨ it? /s

literally leaving them for dead!!! and for what???
thankfully my ex didn't go that far but the fact that this is a whole genre of mistreatment is scary

i want Boston to NYC or Montreal in 2.5 hours, and NYC to Chicago in 8 hours. LA to SF in 4 hours. LET'S GO

“Tuberculosis spreads through the air, & a cough isn’t required to infect someone else—regular breathing can do the trick.”

then why oh why are clean air practices—filtration, purification, n95s—never mentioned in this piece? burying one’s head in the sand doesn’t do nearly as much as a mask.

oh wait reading a lighter version of this happened to me twice with my ex lol. not surprised by how common it is for men to be personally offended when you don't hike at their pace

jeeeesus

usually a few days to a week, but i'm not sure where your baseline is. i'm on the moderate-severe end. limit any and all exertion as much as you can, including cognitive. that's probably the hardest part

This is musicology.

it's never worth the cognitive exertion

Seeing ICE detaining people at airports is so sickening and so are the details about the LGA plane crash. Just a fraction of the money they’re using to brutalize families could be spent on rehiring air traffic controllers, who they fired so they could brutalize more people

Overstock 3M Aura 1870+ Request Form About these masks: There are a few hundred cases of overstock 3M Aura 1870+ masks that we are redistributing. Each case contains 440 individually packaged masks and measures 24”L x 12”H x 21”D. They...

Local maskbloc Masks4EastVan is redistributing FREE boxes of N95s (3M Auras) to anyone/group/organization who needs them. 440 masks per case.

Request form here: docs.google.com/forms/d/e/1F...

we used to be a real country etc

Universities: do digital humanities!
Also universities: no, we won’t pay to host it. Good luck.