Learn About ALK+: Guardant360 Liquid Biopsy
This blood-based test detects tiny amounts of tumor DNA, helping guide treatment when tissue biopsies aren’t feasible.
Learn more: alkpositive.org/blog/underst...
#ALKPositive #PrecisionMedicine #LiquidBiopsy
🎥 REPLAY NOW AVAILABLE | ALKtALK with Dr. Jonathan Riess & Johanna Han
The replay is ready for you. 👇
▶️ youtu.be/ZExawDp9tAE?...
Dr. Riess and Johanna Han break down single-patient INDs, eligibility, timelines, and emerging therapies like ivonescimab for ALK+ patients.
🔬 ALK Positive is at #AACR26 in San Diego!
Our Executive & Medical Director Dr. Ken Culver and Medical Team Project Manager Sadia Yaakov are on the ground advocating for the ALK-positive community. If you're attending, come say hello — they'd love to connect! 👋
Research Update: TKI + Chemo
A multi-center study in ALK+ NSCLC found continuing ALK TKI with platinum/pemetrexed after progression may improve survival and lower brain progression risk—supporting current clinical practice.
Learn more: alkpositive.org/blog/continu...
#ALKPositive
At the Genentech Experience Exchange for Patient Advocates this week in San Francisco, Ken Culver, our Executive and Medical Director, joined more than 120 organizations coming together to support the cancer community.
#ALKPositive #StrongerTogether #PatientAdvocacy
New Healing Arts Group: Non-Metastatic ALKies 🎨
For those with Stage 1–3c ALK-positive cancer, whether in treatment or navigating what’s next, you’re not alone.
Join us April 13, 7–8pm ET. Learn more: alkpositive.org/event/non-me...
#ALKPositive #HealingArts #CancerSupport
We’re proud to be at the 2026 Texas Lung Cancer Conference, joining 100+ key opinion leaders and many oncologists advancing lung cancer care.
Encouraged to see ALK fusions gaining focus and patient-centered discussions taking the stage.
#ALK #cancercare #research
Applications are still open for the John Pender Scholarship Fund.
Created in honor of John, who was diagnosed with stage IV lung cancer at 37 and lived nearly 10 more years, this fund supports students in the ALK-positive community.
Apply by May 3
alkpositive.org/blog/honorin...
Don’t miss this Sunday’s ALKtALK at 7pm ET!
Join us live with Dr. Alexander Spira to discuss TRI-611 and Gilteritinib trials and what they may mean for ALK-positive patients.
>Live Q&A
>Recording will be available on YouTube
#ALKpositive #ClinicalTrials
The John Pender Scholarship Fund is now accepting applications. Established in 2025 to honor his legacy in the ALK-positive community.
For students living with ALK+ cancer or children of a parent with ALK+ cancer.
Learn more & apply: alkpositive.org/blog/honorin...
Deadline: May 3, '26
Missed it live? We’ve got you 💙
Watch the latest Clinical Trials Connect session to learn how to find, track, and understand clinical trial options—plus insights from the ALK+ community.
🎥 Replay: youtu.be/wkpiBb4u6CU?...
ALKtALK | Sunday 7pm ET
Be informed. Be empowered.
This Sunday, Jonathan Riess, MD & Johanna Han, MSc (UC Davis) break down ALK+ clinical trials and single-patient INDs—what they are, what they’re not, and what to realistically expect.
What does it actually mean to be here at ESMO ELCC?
In this video, Ken Culver shares how we’re spending our time — not just attending lectures, but speaking with investigators, connecting with other advocates, and meeting with industry.
Improving outcomes one meeting at a time.
Living with ALK+ cancer comes with important decisions. You deserve clarity and confidence in your path.
The ALK Positive Second Opinion Program connects you to:
✔️ Curated ALK-educated providers
✔️ Financial assistance
✔️ Remote consult options
alkpositive.org/living.../se...
Join us TONIGHT for Clinical Trials Connect—a supportive space to learn, ask questions, and explore your options.
Featuring Ellee Urban + Hosted by Jeff Sturm
🗓 March 19 | 7 PM ET
🔗 alkpositive.org/event/clinic...
Missed it live? The ALKtALK replay with Dr. Alex Drilon is now available.
Learn about new data and emerging directions for neladalkib (NVL-655) and how precision oncology continues to shape treatment for ALK-positive lung cancer.
🎥 Watch the replay:
youtu.be/PRrfLmIQb9I?...
Join ALKtALK this Sunday:
New Data, New Directions: Neladalkib (NVL-655) & Precision Oncology in ALK+ Cancer
Featuring Alexander Drilon, MD (MSK)
🧬 Latest clinical data
🔬 How trials move toward access
🧪 Biomarker-driven insights
💬 Live Q&A
📅 March 1, 2026
🕖 7 PM ET
Today is National Care Partner Day, to all those supporting loved ones with ALK-positive cancer — your strength and love carry more than most will ever know.
We are deeply grateful.
Join our next Care Partner Check-In
Feb 26 @ 9PM ET
alkpositive.org/events/categ...
🎥 Clinical Trials Connect Recording Now Available
youtube.com/playlist?lis...
Missed it live? Watch our Clinical Trials Connect session with Jeff Sturm, Dr. Ken Culver, Sadia Yaakov, and ALK Positive Medical Committee members.
Learn what clinical trials mean for ALK-positive patients—now or later.
We’re at TTLC 2026 in Huntington Beach, CA!
Targeted Therapies of Lung Cancer focuses on breakthrough targeted treatments, resistance research, and the future of precision care. We're here to stay close to the science, build partnerships, and advance progress in ALK+ research.
This Sunday at 7pm ET 💙
tALKing about Treatments: An ALKtALK Roundtable for ALK-positive patients & care partners.
Connect. Share. Learn from others who truly get it.
No medical advice — just real conversation and community.
Join us: alkpositive.org/event/alktal...
See you there!
ALK+ community,
Join us tonight at 7pm ET for a Healing Arts discussion on clinical trials with Jeff Sturm, Dr. Ken Culver, and Sadia Yaakov.
A patient-centered space to ask questions, learn what to expect, and explore your options with clarity and support.
See you there!
An ALK diagnosis can turn your world upside down. In this community, we learn how to turn it downside up—finding people who understand the scans, the waiting, and the hope.
This #WorldCancerDay, we celebrate our ALK family. 💙
#UnitedByUnique #LungCancer #Community
13 years after a stage IV ALK+ lung cancer diagnosis at age 15, Jake Legasse is not just living, but thriving—and even running marathons. Learn how Jake thinks about mindset and copes with uncertainty—and his advice to people with ALK+. alkpositive.org/blog/patient...
In this clip from Cancer Nurses Today, Dr. Ken Culver shares how nurses help people with lung cancer navigate treatment and decisions.
At ALK Positive Inc., we support those conversations so our community is never left to figure it out alone.
✨ Together, we did something extraordinary. ✨
Thanks to our community, donors, partners, and advocates, we raised $3.5M+ in 2025 to support ALK-positive patients and families worldwide.
Every gift fuels hope, research, and connection.
From the bottom of our hearts—thank you. 💙
#Grateful
🌟 Watch Our First ALKtALK of 2026!
Watch the recording of world-renowned thoracic oncologist Dr. Alice Shaw, the “Queen of ALK,” as she shares the latest in ALK-positive lung cancer research and what it could mean for future treatment. youtu.be/Au-DrJ4WAq0?...
What does progress look like for the ALK-positive community?
At #ESMO25, Dr. Ken Culver shared how ALK Positive Inc. advocates for people living with ALK+ lung cancer—bringing science, real-world patient insight, and unmet needs directly to industry and researchers.
💙 We’re feeling the love.
In-person tickets for the 2026 ALK+ Summit are sold out.
You can still join the waitlist or attend live virtually — with real-time Q&As, interactive chats, and chances to win prizes, all from wherever you are.
secure.qgiv.com/for/2026alks...
Meet Sara J. 💙
A facilitator of our Multilingual Chat / Charla Multilingüe, a welcoming space for patients & caregivers worldwide—where language is never a barrier to belonging.
📅 Jan 13, 3 PM ET
🔗 Link in bio
#StrongerTogether
