Three people smiling and showing painted hands in different colors stand indoors. They are wearing shirts with "Rake" and "Rock for Cure" designs. The graphic at the bottom reads "Unite to Cure Epilepsy April 23" in bold letters.

Save the date! UNITE to CURE Epilepsy is April 23. This is a day for the community to drive research forward and accelerate the search for a cure. Thanks to the generosity of Jonathan and Julia Tuteur, your gift will help unlock a $25,000 match. More: https://bit.ly/4vxbyhg

Pipeline of Progress: Epilepsy Medications on the Horizon An interactive review of some of the epilepsy medications in phase III clinical trial as of April 2026 with audience Q&A.

ICYMI: The first Pipeline of Progress series webinar covered epilepsy meds on the horizon. Watch the recording here: www.cureepilepsy.org/webinars/pipeline-of-pro...

This series is supported by Lundbeck, Stoke Therapeutics, and Xenon Pharmaceuticals.

A poster for the "Weeks of Action: National Plan for Epilepsy" event. It invites people to join from March 23, 2026, to April 3, 2026. It encourages contacting legislators to support the National Epilepsy Plan. The hashtag #NationalPlan4Epilepsy is included. The background features the US capitol building.

150 epilepsy orgs are united behind the bipartisan #NationalPlan4Epilepsy Act (S.494 / H.R. 1189). We need your help to move this legislation forward.

Take 5 minutes to contact your members of Congress and ask them to sign on. 👉 Take action here: https://bit.ly/NP4E

This episode of Epilepsy Explains, we explore catamenial epilepsy. Dr. Alexa King answers questions like:
💜 What is it?
💜 How is catamenial epilepsy diagnosed?
💜 When should someone find a specialist?
Catch the episode on our website here: https://bit.ly/4utpOqE

Night of Discovery event invitation for CURE Epilepsy. Scheduled for Saturday, September 19th, 2026, at Fairmont Millennium Park, Chicago, IL, from 5:30 PM to 11:00 PM. Contact information is provided for attendance or sponsorship inquiries. The background features a celestial theme with star-like patterns.

Save the date! Night of Discovery is happening 9/16. CURE Epilepsy's annual Chicago Benefit is an exciting evening of cocktails, dinner, and dancing that brings together more than 500 of Chicagoland’s leading business and philanthropic voices.

More info: https://bit.ly/4lBY13m

A medical professional is showing a human brain model to a person. Above, text reads "Pipeline of Progress Webinar Series: Epilepsy Medications on the Horizon, April 8, 2026, 4 PM CT.

Join us for a webinar and Q&A about epilepsy medications in Phase 3 clinical trial. You’ll get clear information, real insights, and a hopeful look at what the future of epilepsy treatment may hold. Register now here: us02web.zoom.us/webinar/register/5217730...

We have selected 5 organizations to collaborate with for the next round of Rare Epilepsy Partnership Awards! We'll be partnering with Channeling Hope Foundation, The Rory Belle Foundation, YWHAG Foundation, and ZTTK SON-Shine Foundation. We can't wait to see what exciting projects follow!

Harmonizing Epilepsy Research: Common Data Elements CDEs provide universal “sheet music” for epilepsy research, providing a standardized way of describing and collecting data.

CDEs standardize ways of describing and collecting data, harmonizing biomedical research. Learn how we fueled the creation, review, and dissemination of CDEs for epilepsy, most recently for preclinical SUDEP research: https://bit.ly/4b8z6Rd

The best seizure action plan is one that fits your real life. Your plan should reflect where you go and who is around you, especially because you may not be able to explain what you need. A plan makes sure the right steps are in place.

➡️ Learn more: https://bit.ly/4c7PfaA

Rescue meds can stop certain seizures, but only if others know when and how to use them. A seizure action plan spells this out clearly, so that teachers and colleagues can act quickly and confidently. Learn more here: https://bit.ly/4c7PfaA

#SAPAW2026 #SeizureActionPlans

Welcome Drew, 2026 Community Enrichment Program intern! Drew has lived with epilepsy since age 12. This internship will help him reach his goal of making a difference for others in the epilepsy community.

Thank you to SK Life Science, Inc. for their generous support of this program!

Is your seizure action plan up-to-date? Seizure Action Plan Awareness Week is a great time to check! And if you don't have a plan, consider this your sign to consider making one.

Learn more about seizure action plans here: https://bit.ly/4c7PfaA

#SAPAW2026 #SeizureActionPlans

Join us at CURE Epilepsy Takes Manhattan, an evening of music, laughter, and stories with Miguel Cervantes and his Broadway friends! Past performers include Tamar Greene (Hamilton), Ginna Claire Masón (Wicked), David Josefsberg (Waitress), and more. Get your tickets here: https://bit.ly/4rsNDwp

Ten Years of Accumulation: Snow-Day Thoughts Between Jonas and Fern Decade. Over the past week, winter storm Fern has blanketed large parts of the United States with several feet of snow, leading to a virtual standstill in many regions. When I looked back, I realiz…

What's changed in the field of #epilepsy #genetics and precision medicine over the past 10 years? Dr. Ingo Helbig reflects on that exact question in a recent blog post. Check it out here: epilepsygenetics.blog/2026/01/27/ten-years-of-...

Use of the AES Behavioral Health Toolkit will help clinicians identify symptoms of #anxiety, #depression, or suicide risk in people with #epilepsy or seizures. buff.ly/BCCS3mP

Join us in congratulating our latest grantees!
Dr. Christos Lisgaras, Nathan Kline Institute
Drs. Sonja Bröer, Florian Heyd, Rossella Di Sapia, Free University of Berlin
Dr. Mahboubeh Ahmadi, University of California, Riverside
Dr. Aswathy AmmothumKandy, @usc.edu
Dr. Alex Felix, @upenn.edu

Editor's Choice 2025: The Journal of Physiology <em>The Journal of Physiology</em> publishes research in all areas of physiology and pathophysiology that illustrates new physiological principles or mechanisms.

Congrats to Dr. Gordon Buchanan! A study supported by a CURE Epilepsy Award, in partnership with the Joanna Sophia Foundation, was listed as a 2025 Editor's Choice at Journal of Physiology (June): physoc.onlinelibrary.wiley.com/doi/toc/10.1111/(ISSN)14...

Research News + Latest Research Stay up to date with the latest developments across the epilepsy research community--from publications to news articles.

In this month's Epilepsy Research News:
🧠 Reducing Seizures and Restoring Memory
❤️‍🩹 Depression Increases Epilepsy Risk, Makes it Harder to Treat
🧈 Linking Metabolic Defects to Dravet
👵 Late-Onset Epilepsy a Distinct Neurodegenerative Subtype?

https://www.cureepilepsy.org/news/

Genetic Testing in Adult Epilepsy: GEAN’s Plan to Standardize Practice and Study Adult Outcomes | NeurologyLive - Clinical Neurology News and Neurology Expert Insights Elizabeth Gerard, MD, an epileptologist at Northwestern Medicine, provided clinical insights on a new consortium, GEAN, which aims to expand genetic testing and define adult phenotypes for rare geneti...

Dr. Gerard joined @neurology_live to give insights on a new consortium, GEAN, aiming to expand genetic testing and define adult phenotypes for rare genetic epilepsies. Check it out: www.neurologylive.com/view/genetic-testing-adu...

A wonderful result from the lab of our good friend, Dr. Baraban! Here's to many more sea-zure free years.

If you're a new parent, read this to understand more about febrile seizures.

8-Year-Old Has Disease So Rare It Doesn't Have a Name. Now He's First in the World to Receive Treatment (Exclusive) Amber Freed tells PEOPLE how she worked for years to find a treatment for her son Maxwell's SLC6A1 diagnosis, and finally got the treatment administered in September, making history in the process.

8-year-old Maxwell, with a disease so rare it didn’t even have a name, just became the first to receive a breakthrough gene therapy thanks to relentless research and breakthrough gene therapy. Hope in action. 💙 #raredisease #epilepsy #gentics

Full story: https://bit.ly/4oRXtWV

Febrile Seizures – CURE Epilepsy Seizure types are classified by where they begin in the brain, consciousness changes, and symptoms. Learn how each type presents and is managed.

Our febrile #seizures overview provides a clear summary of febrile seizure types, causes, risk profiles, diagnostic considerations, and current understanding of recurrence and future epilepsy risk. Learn more: https://bit.ly/4pZozN2

#epilepsyresearch #neurology #pediatrics

North East epilepsy brain implant trial gives ‘bit of hope’ - BBC News Adam Atkinson has an implant in his brain which is tracking the seizures he experiences.

A UK #epilepsy trial using a #brain implant is uncovering #seizures doctors couldn’t detect before—including during sleep. Families say the research is giving them “a little bit of hope.” 🧠 #Epilepsy #Neurotech #Hope

Learn more: https://bbc.in/44wsZmn

IS can look like reflux or a startle reflex. When in doubt—record, refer, and get an EEG. Every day of delay increases the risk of permanent damage. Learn more at infantilespasms.org.

#ISAW2025 #TimeIsBrain #PediatricCare

Risks can be minimized by avoiding bright flashing lights, covering one eye, wearing dark glasses, and staying far back from screens.
doi.org/10.1111/epi....

#epilepsy #ILAE #epilepsia #guidelines #patternsensitiveseizures #photoparoxysmalresponse #photosensitiveseizures #reflexepilepsy

Every moment matters. Infantile spasms require rapid recognition and referral. Treatment within the first week can change a child’s life. Learn more at infantilespasms.org
#ISAW2025 #Pediatrics #TimeIsBrain

🚨 It’s Infantile Spasms Awareness Week. IS can look like quick head drops or small jerks, but they’re a medical emergency that can cause brain damage. Early action can change a child’s future. When it comes to IS, Time is Brain. Learn more at infantilespasms.org.
#ISAW2025

Childhood absence epilepsy (CAE) often appears as brief staring spells that can be easy to miss. In our new Epilepsy Explained episode, we breaks down what CAE looks like, how it’s diagnosed, and what treatments can help: https://bit.ly/4oUNKjK

A background image of researchers with text that says, "Federal Funding Cuts Hinder Lifesaving Brain Research, written by Michelle Heritage. Featured in USA Today."

Executive Director Michelle Heritage contributed an opinion piece in today’s edition of @usatoday.com in support of #MedicalResearch funding. Scientists are on the verge of breakthroughs; the government should value and continue to fund research. #ResearchFunding

🔬🧠 Read the essay ➡️ buff.ly/Tc4CiJ4