Donate to Help the Beauforte-Paars survive institutional failings, organized by Ess Paar Hi. My name is Ess and I care for my partner, who has severe epilepsy… Ess Paar needs your support for Help the Beauforte-Paars survive institutional failings

Sharing a comrade's fundraiser for visibility note: CW for acute mental health struggles : gofund.me/ed8174ac8 #autistic #disabled #trauma #epilepsy #financialstruggles 🏳️‍🌈🏳️‍⚧️💚🐸

Deep Brain Stimulation Improves Seizure Control and Quality of Life - Epilepsy Explained 💜 Discover how Deep Brain Stimulation for Epilepsy enhances seizure control and improves quality of life for those with drug-resistant epilepsy.

Deep Brain Stimulation can help improve seizure control and overall quality of life for people with drug-resistant epilepsy. Learn more about this exciting treatment option. #EpilepsyExplained #Epilepsy 💜.

New Insights on Brain Signals for Better Epilepsy Treatment - Epilepsy Explained 💜 Discover how brain signals for better epilepsy treatment through deep brain stimulation can transform lives for those unresponsive to medication.

New research shows that deep brain stimulation can improve treatment for epilepsy, especially for those who don't respond to medication. This could lead to better outcomes and a brighter future. #EpilepsyExplained #Epilepsy 💜.

Original post on mastodon.social

My brain...

...Is complicated.

So I have finally pieced the whole thing together and I am essentially the person they point to for #neuroscience curiosity.

I have:

#epilepsy (probably, temporal seizures, working diagnosis).
#tourettes #adhd #autism #obsessivecompulsivedisorder #cptsd and […]

I wasn’t doing so well, so Vox gave me one of my PRN controller meds last night. I ended up having a dream about sorting through junk and arguing with my former best friend about how bad it was living with her fiancé. Now I’m having difficulty with time. I should call the doctor. 🧟‍♂️
#irl #epilepsy

Zonisamide Shows Promise for Children With Drug-Resistant Epilepsy - Epilepsy Explained 💜 Discover how zonisamide for drug-resistant epilepsy offers hope for children with developmental epileptic encephalopathy in our latest study insights.

Zonisamide may provide new hope for children with drug-resistant epilepsy, especially those with developmental epileptic encephalopathy. Learn more about the promising findings. #EpilepsyExplained #Epilepsy 💜.

Supporting Self-Determination in Individuals with Epilepsy and ID - Epilepsy Explained 💜 Discover insights on Supporting Self-Determination in Epilepsy, exploring how families and professionals empower individuals with epilepsy and ID.

Empowering individuals with epilepsy and intellectual disabilities is crucial for their self-determination. Learn how families and professionals can support this journey. #EpilepsyExplained #Epilepsy 💜.

Understanding Seizures in Organophosphate Poisoning Cases - Epilepsy Explained 💜 Discover the link between Epilepsy and Organophosphate Poisoning, and learn how OP exposure can trigger severe seizures and status epilepticus.

Organophosphate poisoning can lead to severe seizures and status epilepticus in some individuals. It's important to understand this connection for better management and prevention. #EpilepsyExplained #Epilepsy 💜.

Study reveals how calcium channel mutations disrupt early brain development in childhood epilepsy This discovery opens new possibilities that could one day improve outcomes in children with epilepsy and related neurodevelopmental disorders.

This discovery could one day improve outcomes in children with #epilepsy and related #neurodevelopmentalDisorders. J Noebels, S. Thompson, Q-L Miao et al. @bcmhouston.bsky.social #bcmneurology #Neuron @cellpress.bsky.social #calciumChannel blogs.bcm.edu/2026/04/03/f...

Focal Epilepsy Most Common in Tanzanian Children with Seizures - Epilepsy Explained 💜 Discover insights on Focal Epilepsy in Tanzanian Children, exploring its prevalence and impact on young patients with seizures in this vital study.

Focal epilepsy is the most common type of epilepsy in Tanzanian children. Understanding its impact can help improve care and support for young patients. #EpilepsyExplained #Epilepsy 💜.

Walking Can Help Reduce Anxiety for People with Epilepsy - Epilepsy Explained 💜 Discover how walking reduces anxiety in epilepsy, improving well-being for those with drug-resistant epilepsy through environmental influences.

Walking can be a simple yet effective way to reduce anxiety for people with epilepsy. Enjoying the outdoors can enhance well-being, especially for those facing drug-resistant epilepsy. #EpilepsyExplained #Epilepsy 💜.

Man had 800 seizures a day - but hasn't had any in 3 years after major change Billy Caldwell’s life has been transformed by "miracle" medical cannabis treatment, after medics had warned his severe epilepsy could be life-threatening

"A young man who was having 800 seizures a day has had none for three years after being prescribed “miracle” medical cannabis."
#MedicalMarijuana #MedicalCannabis #Marijuana #Cannabis #CannabisOil #Epilepsy #Seizures #SeizureFree #MarijuanaIsMedicine

Rare Genetic Disorder Causes Seizures and Skin Issues in Child - Epilepsy Explained 💜 Discover how a rare genetic disorder causes seizures and skin issues in a child, highlighting the connection between epilepsy and rare genetic disorder.

A rare genetic disorder can lead to seizures and skin problems in children. Understanding this connection is important for effective care. #EpilepsyExplained #Epilepsy 💜.

DSF is one of 150 #epilepsy organizations behind the bipartisan #NationalPlan4Epilepsy Act (S. 494 / H.R. 1189).

Take 5 minutes to contact your members of #Congress + ask them to sign on. Your voice matters.

🗣️ Take action → tr.ee/6S079tmRv2
💡 Learn more → tr.ee/EvThhtYM2z

Cenobamate Shows Promise for Treating Epilepsy in Children - Epilepsy Explained 💜 Discover how cenobamate for treating epilepsy in children offers hope for those with drug-resistant epilepsy in this promising study.

Cenobamate may provide new hope for children with drug-resistant epilepsy, according to recent research. This treatment shows promise in improving their quality of life. #EpilepsyExplained #Epilepsy 💜.

Caregivers Share Insights on Epilepsy in Juvenile Huntington Disease - Epilepsy Explained 💜 Discover valuable insights on epilepsy and juvenile Huntington disease from caregivers, highlighting effective management strategies for children with JHD.

Caregivers are sharing important insights on managing epilepsy in children with juvenile Huntington disease. Learn effective strategies to support your loved ones. #EpilepsyExplained #Epilepsy 💜.

‼️ 30% of people have refractory #epilepsy. Thats when we look to #Neuromodulation!
Consultant neurologist Prof. John Duncan 🤩 speaks of potential for surgeries and neuromodulation types!
Tune in! 👇🏻
youtu.be/-RjyOs7Aq7k

Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.

Genetic Causes Found in Many Kids With Status Epilepticus - Epilepsy Explained 💜 Discover the genetic causes of epilepsy in kids and how they relate to status epilepticus, enhancing understanding and treatment options for affected….

Researchers have identified genetic causes of epilepsy in many children with status epilepticus, which may improve understanding and treatment options. This discovery is an important step for families affected by epilepsy. #EpilepsyExplained #Epilepsy 💜.

Delays in antiseizure medication access can have serious consequences.

New survey insights and a position statement from AES highlight key barriers—and opportunities to improve care.

Get the resource: buff.ly/XmmuS5S

#Epilepsy #HealthEquity #PatientAccess

Safety and Efficacy of Stereoelectroencephalography-guided Resection and Responsive Neurostimulation in Drug-resistant Temporal Lobe Epilepsy: A Systematic Review Temporal lobe epilepsy (TLE) is the most common focal epilepsy, with many patients developing drug-resistant epilepsy. Surgical interventions, including stereoelectroencephalography (SEEG)-guided temporal lobe resection (TLR) and SEEG-guided responsive neurostimulation (RNS), are key treatment options. This systematic review compares the efficacy and safety of these interventions in drug-resistant TLE.

🔬 For drug-resistant temporal lobe epilepsy, both SEEG-guided resection and responsive neurostimulation can help-but seizure freedom remains higher after resection. @neurosurgerynm.bsky.social
#Epilepsy
🔗 www.xiahepublishing.com/2472-0712/ER...

Pediatric Epilepsy Surgery Shows High Success Rates and Safety - Epilepsy Explained 💜 Discover the impressive Pediatric Epilepsy Surgery Success Rates, backed by research on 100 procedures, ensuring safety and improved outcomes for children.

Pediatric epilepsy surgery has shown high success rates and safety, offering hope for improved outcomes in children. Learn more about this promising option. #EpilepsyExplained #Epilepsy 💜.

AI Tool Improves Detection of Epileptic Spasms in Patients - Epilepsy Explained 💜 Discover how our AI Tool for Epilepsy Detection enhances the identification of epileptic spasms using advanced video and EEG data analysis.

Our new AI tool helps detect epileptic spasms more accurately by analyzing video and EEG data. This advancement can lead to better care for those with epilepsy. #EpilepsyExplained #Epilepsy 💜.

📢 paper alert 📢 #epilepsy associaties RNU2-2 description by @christeldepienne.bsky.social @nickywhiffin.bsky.social
-> recessive cases often include one de novo and one inherited variant
-> complex architecture of non-coding RNU genes, many novel questions for the field #genetics #raredisease

D is for Distance (2026) Film Review In D Is For Distance, Christopher Petit and Emma Matthews narrate their son’s struggle with epilepsy in a unique and not entirely effective way.

With a heartbreaking portrayal of their son’s battle with severe memory-erasing epilepsy, Christopher Petit and Emma Matthew tackle a personal & unique subject matter in D IS FOR DISTANCE, out Friday in UK & Irish cinemas!

Read @clotildechinnici.bsky.social's review!

#DIsForDistance #epilepsy

#CSMD1 is identified as a novel causative gene in generalized epilepsies and #DEE, with strong genotype–phenotype and severity correlations, offering new insights for diagnosis, prognosis, and clinical management of #epilepsy patients.

#OpenAccess: doi.org/10.1016/j.ge...

New MRI Guidelines for Infants with Seizures or Epilepsy - Epilepsy Explained 💜 Discover essential MRI Guidelines for Infants with Epilepsy, designed to enhance diagnosis and treatment for infants experiencing seizures.

New MRI guidelines can improve diagnosis and treatment for infants with seizures or epilepsy. Stay informed for better care. #EpilepsyExplained #Epilepsy 💜.

Higher Neurodevelopmental Disorder Risks for Children of Mothers with Epilepsy - Epilepsy Explained 💜 Discover how epilepsy and neurodevelopmental disorder risks affect children of mothers with epilepsy, highlighting crucial genetic insights for families.

Research shows that children of mothers with epilepsy may face higher risks for neurodevelopmental disorders. Understanding these genetic insights can help families prepare and support their children's health. #EpilepsyExplained #Epilepsy 💜.

Coroner highlights delays in pharmacies processing repeat prescriptions after patient death A coroner has raised concerns over delays in some pharmacies processing repeat prescriptions, after a patient died from an epileptic seizure after running out of his epilepsy medication. Emma…

A coroner has raised concerns over delays in some pharmacies processing repeat prescriptions, after a patient died from an epileptic seizure after running out of his epilepsy medication

#ukpharmacy #communitypharmacy #epilepsy

a man is sitting in front of a counter and asking for help . Alt: Tom Cruise from Jerry Maguire pleads "Help me help you."

If you post a great #epilepsy story, please mention us. We will help you promote it! Help us help you raise #EpilepsyAwareness

Longer Epilepsy Duration Increases Brain Connectivity in Children - Epilepsy Explained 💜 Discover how Epilepsy Duration and Brain Connectivity in Children impact brain activity, based on groundbreaking research on self-limited epilepsy.

Research shows that longer epilepsy duration can enhance brain connectivity in children, influencing their brain activity. Understanding this can help caregivers provide better support. #EpilepsyExplained #Epilepsy 💜.