These courses will offer a deeper dive into more complex topics, presented in smaller lessons, to be watched at your leisure.

This is the first of LBDA's new “Unpacking” courses which will begin with a live presentation, combined with additional recorded presentations on our Lewy Learning Center about one week following the live event.

LBDA - The Lewy Learning Center Course
Unpacking Parkinsonism: Understanding Movement Changes in Lewy Body Dementia

Learn more: lewy-learning-center.thinkific.com/courses/unpa...

#lewybodydementia #lbd

MedPageToday: Parkinson's Risk Tied to Newer Drinking Water Sources

Findings support growing evidence that environmental factors are linked with #Parkinson's disease
www.medpagetoday.com/meetingcover...

Discussed strategies: prevent hospitalization and provide tips for care partners to support safety, communication and well-being during a hospital stay.

CurePSP - Ask the Expert: Staying Safe in the Hospital
April 23, 2026, 12:00 PM PST

Planned or unplanned hospital stays can be challenging, and even dangerous, for people with #PSP, #CBD and #MSA and the right preparation can make a big difference.

Register: us02web.zoom.us/webinar/regi...

Follow our new BlueSky Feed: Atypical Parkinsonism

News from organizations specializing in Atypical Parkinsonism diagnoses such as LBD, PSP, MSA, and CBD, as sell as #Parkinson's Disease, #Alzheimer's Disease, and #Dementia.

bsky.app/profile/did:...

FTD diagnoses predominantly associated with the initial gradual loss of the ability to speak, read, write, or understand what others are saying fall under the category of primary progressive aphasia, or PPA.

Dear HelpLine: Primary Progressive Aphasia (PPA) Subtypes

"My mother was diagnosed with PPA and I see that there are many different types. How do I know what type she has? How does PPA fit into the #FTD disorders?"

Read more at AFTD: www.theaftd.org/help-and-hop...

“I have joined several support groups – one for caregivers-only, one for the particular disorder I’m coping with, and one for dementia caregivers. Each is helping me.”
– Local Support Group Member

#caregiving #supportgroups

Looking back at the changing roles and relationships in Parkinson’s

As Parkinson’s progresses, changes become more noticeable in daily routines

parkinsonsnewstoday.com/columns/look...

Brain Support Network is thankful for our diligent volunteers, who are responsible for organizing brain donations, supporting group meetings, producing our events, developing materials, and managing our information systems.

Thank you, #Volunteers!

www.brainsupportnetwork.org/about-bsn/st...

Living with Parkinson's Disease 2nd edition is finally out. We can teach persons w/ disease and families from the moment of a diagnosis that PD is a livable condition. Stay Up-To-Date with Expert Guidance, Practical Tools, and Real Hope for Life with Parkinson's.
www.amazon.com/Living-Parki...

In addition to movement (or motor) symptoms such as slowness of movement, tremor, stiffness and balance issues, most people develop other health problems related to Parkinson's.

Parkinson's Foundation: Non-Movement Symptoms

Other than movement, how else can Parkinson's affect me? #Parkinson’s disease (PD) is generally thought of as a disease that only involves movement.

Read more: www.parkinson.org/understandin...

The Brain Support Network website materials on progressive supranuclear palsy (PSP) have been our biggest help. And, during the support group meetings we learned of magical things like the weighted neurological walker. So thank you!

Paige S.

Weekend Watch:
Sharing the emotional load amid Parkinson’s progression

Lori DePorter, who lives in Pennsylvania, was diagnosed with young-onset Parkinson’s disease at age 45.

parkinsonsnewstoday.com/video/sharin...

#parkinsons

The need for well-designed studies on swallowing intervention, considering the context (in- and out-patient) and the medication status, as well as other medical/behavioural/surgical therapies is also crucial.

The links between timely medication intake and swallowing function are well known; this is emphasised in most of these publications.

Seminal reviews stress the dangers of swallowing problems in people with Parkinson’s disease

Several recent publications focused on dysphagia and the importance of managing swallowing problems for patients with #Parkinson (PwP).

www.movementdisorders.org/Moving-Along...

This event is designed to bring together individuals living with PSP, CBD and MSA, care partners, clinicians, advocates and researchers for connection, education and community.

Join us at the 2026 CurePSP Spring Community Weekend on Friday, May 1, 2026, at the Hilton Culver City in California!

Find our resource table at the event! Sign up today: give.curepsp.org/SCW2026

#PSP #parkinsons

Finally, we confirm that the donated tissue arrives at the brain bank, and ensures the brain bank delivers a diagnosis to the family.

Our team customizes consent paperwork, prepares detailed instructions for the family and other parties involved in the effort, and troubleshoots the process if issues arise.

BSN selects and maintains a roster of suitable pathology specialists, as well as confirms "cooperative" funeral home that will share its facility (or arranges for donor transportation).

Our Role in the Brain Donation Process:

We offer guidance, educational materials, and active support groups to empower individuals, families, and caregivers during the process. Our goal is to make the #donation go as smoothly as possible.

Learn more: www.brainsupportnetwork.org/brain-donati...

Screenings:
MPLS/St Paul Int’l Film Festival
April 11, 4:10pm - Main Theater, Minneapolis
April 14, 2pm - FILMNORTH, St Paul
World Parkinson's Congress 2026
May 26, 11:30 am

Unable to speak or write, Christensen, and many others, face numerous hurdles in their personal relationships, work, and healthcare providers.

"COME TALK TO ME"

Filmmaker Deacon Warner follows #Parkinson’s disease (PD) activist Jackie Hunt Christensen, who works tirelessly to overcome communication barriers that people with PD face daily.

www.cometalktomefilm.com

Whether you have been diagnosed with PD and are experiencing unexpected cognitive changes, or you are living with DLB and noticing movement symptoms, “Converging Paths: The Intersection of Lewy Body and Parkinson’s” will help you understand the shared features of these conditions.