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Posts by Dr Simon Stones

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🌍 Our 2026 #WORDDay2026 webinar brings the theme: “Children Are Not Small Adults: Why Young People Need Dedicated Paediatric Rheumatology Care”.

We are pleased to have Caroline Kirsten from EULAR Young PARE as one of our speakers. Join us 👉https://pulse.ly/3npd35i5ur

#eularPARE #eularPAED

1 month ago 4 3 0 0
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EULAR PARE is offering up to 10 World Arthritis Day (WAD) bursaries of up to EUR 5,000 each to support national activities that raise awareness of #RMDs.

📅 Open until 31 March 2026
✅ Open to EULAR member organisations and scientific affiliates

Apply now 🔗 https://pulse.ly/k6znsqnhz2

2 months ago 2 2 0 0
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Apply for a travel bursary to support your attendance at the EULAR European Congress of Rheumatology.

✔️ Free EULAR 2026 registration (+On-Demand access)
✔️ 3 nights’ hotel accommodation (3–6 June 2026)
✔️ €350 towards travel & living expenses

Apply here: https://pulse.ly/m2cokv4vzp

2 months ago 2 1 0 0
Visit of the
Prime Minister of Denmark
22nd Jawary 2026
We'll get by with a little help from our friends

Visit of the Prime Minister of Denmark 22nd Jawary 2026 We'll get by with a little help from our friends

Sky News: Danish PM Mette Freideriksen’s note in the visitors book when she visited UK today

2 months ago 9349 1789 127 99

Happy New Year to all of the @eular.org family! 💙

3 months ago 0 0 0 0
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As we wrap up another year of progress and collaboration in rheumatology, we extend our heartfelt thanks to our incredible community of patients, healthcare professionals, researchers, and partners. 🙌

Here’s to continued progress together in 2026! 🔬

#StrongerTogether

3 months ago 4 1 0 0
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Our incredible @eular.org International PARE Working Group! Uniting the voices of the global patient community with RMDs beyond Europe. #pare2025

5 months ago 1 0 0 0
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Opportunities like this week are critical for bringing together patient organisation CEOs to learn, listen, and grow together! #pare2025 @eular.org

5 months ago 1 0 0 0
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Our wonderful @eular.org PARE Committee and Young PARE Working Group! Proud to know and work with everyone. 💙 #pare2025

5 months ago 2 0 0 0
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Wrapping up and summarising our key reflections on managing multiple priorities as volunteers - be kind to yourself, and clear with boundaries #pare2025

5 months ago 0 0 0 0
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We must not underestimate the importance of stepping back and reflecting, which is why our @eular.org PARE training programme is so critical for our volunteers. So much self-reflection taking place! #pare2025

5 months ago 0 0 0 0
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Time for coffee and networking! LOVE hearing so many ideas and experiences being shared. #pare2025

5 months ago 0 0 0 0
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A productive morning for our new volunteers in their ‘communicating impactful messages’ training! #pare2025

5 months ago 0 0 0 0
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We see the importance of investing in all members of our @eular.org PARE community, which is why our annual training programme is vital so no volunteer is left behind! #pare2025

5 months ago 0 0 0 0
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Stay tuned across platforms this week for updates from @eular.org #pare2025!

5 months ago 1 0 0 0
I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."

I'm honoured to serve on the international steering committee for the PxP Conference 2025, a virtual global event championing the leadership of patient experts in healthcare transformation. The time has come to unleash the full power of lived experience... patients are no longer passive participants, but active drivers of research and care that truly reflect the needs of our diverse society. This is the democratisation of healthcare: bold, inclusive, and guided by those with the deepest expertise - people living with health conditions every day. Together, we're redefining what meaningful, equitable, and person-led health systems look like."

PxP Steering Committee Member Simon Stones shares a quote on the importance of patient partner leadership and why they should be at the forefront of initiatives like PxP.

Learn more about PxP 2025 here:
pxphub.org/event/

#PxP25 #PatientEngagement

8 months ago 4 3 1 0
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The fabulous @lynnlaidlaw.bsky.social showcasing how patient-led research is possible! The system forces people to choose their silo, which is crazy - time to move towards an expertise and interest-led model I say!

9 months ago 3 0 1 0
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Delighted to be at the British Society for Rheumatology ‘Patient Voices in Rheumatology’ conference in London! #rheumatology

9 months ago 2 0 0 0
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You’ve already had a sneak peek at what’s happening at this year’s Brain Health & Sustainability booth — now it’s your turn to get involved! 🧠🪴

Collect stamps on your Brain Health Bingo card for a chance to win a prize!

#BrainHealthMission #ean2025 #Neurology @EANeurology

10 months ago 4 1 0 0
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Excited to be in Helsinki for the next few days at @ean.org #ean2025! Please say hello if you’re attending!

10 months ago 2 0 0 0
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🙌Thank you for attending the #EULAR2025 Congress!
We hope you had a memorable experience!

📺Access the On-demand Congress Platform until 31 December 2025 👉 https://pulse.ly/vl0sg17x4k

✈️We Look forward to seeing you at #EULAR2026 in London!

#EULAR #EULAR2025 #Rheumatology

10 months ago 6 4 0 0
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🦋Impossible to summarise all #EULAR2025 has meant for us.

While we prepare more content to share scientific highlights, here’s a short video with some special, human moments.

From this energy & passion come projects like #LupusGPT 

🙏 Thanks to all who make all this possible

10 months ago 3 1 0 0
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Best picture of the entire Congress 🤣 #eular2025

10 months ago 3 0 0 0
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💥 The 3 “Move Together” sessions were a great success at #EULAR2025!
Hands-on, inclusive, and packed with practical tools to bring exercise science into daily care for people with RMDs.
A huge thank you to all who joined us!
posted by thomasdavergne.bsky.social

10 months ago 9 4 0 0
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#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social

10 months ago 1 1 1 0
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😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.

A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025

10 months ago 2 1 0 0
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Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵

10 months ago 7 3 1 0
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Peter and Michael representing PARE in the @eular.org 2025 Highlights Session #eular2025

10 months ago 3 0 0 0
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"This congress as a living example of what meaningful collaboration looks like" Simon Stones at #eular2025 @eular.org

10 months ago 4 1 0 0