🚀 #LupusGPT & #EasyLupus are currently offline as we continue improving them.
🛠️You thought they couldn’t get better? We know they can, & we’re making it happen.
In the meantime, for reliable, multilingual lupus information👉 https://lupus100.org/
💜Thanks for your support!
💥 KABOOM!
Our #LupusGPT work is now published in @thelancetrheum.bsky.social‼️
🏆 A big moment for LupusGPT, but also for what can happen when patient voice is built in from the start, not added at the end.
Free. Multilingual. Valid information on lupus
doi.org/10.1016/S266...
🦋 Turn to your association for support.
🇪🇺 There are many orgs across Europe that can help you & your child cope with #lupus.
Look for the one closest to you: www.lupus-europe.org/lupus-members/
More, at #Lupus100 & #LupusGPT lupus100.org/en/questions... lupusgpt.org
#WORDDAY2026
✅ For all questions about #lupus, remember you can visit #LupusGPT & #EasyLupus: multilingual AI tools developed by Lupus Europe, powered by 🔝sources including #Lupus100.
🌐 Visit https://f.mtr.cool/adnlzftnyx & https://f.mtr.cool/ozemfhjjsl for reliable answers to your lupus questions!
😃 Throwback to the HMA/EMA Multi-Stakeholder Workshop on AI.
Watching Alain Cornet present #LupusGPT at a high-level regulatory forum confirmed something important: patient-led innovation belongs in the future of AI in medicine.
Try it now! https://lupusgpt.org/
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
📣 #LupusGPT was at the European Patients’ Forum Congress! The largest European event for patient involvement in healthcare, policy & research.
💜Big thanks to Jeanette Andersen for her work & to Cathrine Hjelmeset for representing us & showing patient-led innovation!
#EPFCongress2025
📣 TODAY, our General Secretary, Zoe Karakikla-Mitsakou, will present #LupusGPT at the ERN ReCONNET Sharing Good Practice Initiative 2025!
🗓️ 1 Dec, 15:00–17:00 CET
💻 Online
🔗 Register: reconnet.ern-net.eu/2025/11/24/r...
Proud to see patient-led innovation recognised at European level!
🌟 New milestone!
Lupus Europe has been invited to the HMA/ @ema.europa.eu Multi-Stakeholder Workshop on AI.
🎤 #LupusGPT, a patient-driven tool, is recognised alongside major regulatory and industry innovations.
👀 Don't miss the event! Watch it at www.ema.europa.eu/en/events/hm...
🦋Kudos to our Vice-Chair & Secretary, Annemarie Sluijmers, who joined the #GlobalSkin-Europe Health Policy Influencers Forum to share the impact of #LupusGPT & #Lupus100 in improving validated #lupus info for better care.
Thank you, GlobalSkin, for ensuring the lupus patient voice is heard!
🚨 Misconceptions can appear anywhere.
🤝 Turning to patient orgs & resources like #Lupus100 & #LupusGPT helps avoid misconceptions that can cause harm & ⬇️ QoL of people with lupus.
Share this post & encourage others to visit https://lupus100.org/ & https://lupusgpt.org/
🌟Unlike other AI tools, #LupusGPT will 𝗻𝗼𝘁 make up answers. It will let you know if the information is unavailable in its database.
✅Every response is based on a rigorously curated repository of scientific documents, including @eular_org recommendations & #Lupus100 website
📹Check out this video to see #LupusGPT in action!
💁♀️While the interface might appear in English, you can type your questions in your preferred language. LupusGPT is designed to understand & respond in the same language you use, making it truly accessible to everyone, everywhere
✅ #LupusGPT has been developed by Lupus Europe & validated by leading lupus experts & patients.
This AI tool ensures 100% reliability by exclusively using information meticulously verified and sourced from top-tier scientific publications and #Lupus100.
https://f.mtr.cool/kscmvkgxhf
Thanks @bellamehta.bsky.social & @rheumnow.bsky.social for highlighting #LupusGPT, the first AI tool answering lupus questions with evidence‑based science in almost any language!
If you haven't done it yet, give it a try & let us know what you think!
lupusgpt.org
www.youtube.com/watch?v=lYGY...
🦋 Thank you to @drminidey.bsky.social from RheumNow for this great interview on #LupusGPT & #EasyLupus!
Don’t miss our Chair, Jeanette Andersen, and Zoe Karakikla-Mitsakou (General Secretary) as they reveal the story behind these innovative AI tools!
www.youtube.com/watch?featur...
Likewise!
It was a pleasure to share how #LupusGPT is breaking barriers in access to valid, lupus information in almost all languages.
Thank you for helping us ensure that every lupus patient, no matter their language or background, has access to trusted information
🤩 So excited about this interview!
💻 #LupusGPT was winning awards at #EULAR2025
🎙️ Delighted to meet with Zoe & Jeanette from #LupusEurope to find out about this exciting development in patient information & use of #AI in #rheumatology
@rheumnow.bsky.social
youtu.be/Iq4w7pwF0f8?...
Thank you! That fishbowl discussion was the spark that led to what is now a globally recognised AI tool. Through the discussion we had, patients and doctors together, we shaped the foundations of #LupusGPT — a real-life example of what can be achieved throguh patient / doctor dialogue ❤️
Thank you!
We are so proud to see #LupusGPT — entirely made by patients and validated by doctors — receiving this global recognition! ❤️
Thank you!
We are so proud to see #LupusGPT — entirely made by patients and validated by doctors — receiving this global recognition! ❤️
Thank you! 😍 It’s the energy we put into everything we do- that’s how projects like #LupusGPT come to life! 😃
We hope we can meet next year in London!
BEST thing out of #EULAR2025 this year. You have to check this out.
#LupusGPT #medsky @lupus.org @lupuschat.bsky.social
AND YES… this was made with patients. 🏆
🤩What an amazing #EULAR2025 Congress!!
🔝Congratulations to @eular.org & the whole team for the outstanding organisation and speaker line-up!
Happy with our performance and extra proud this year— #LupusGPT won the #MadeWithPatients Award 2025!
See you in London at #EULAR2026!
😃 #LupusGPT has been highlighted once again at @eular_org PARE Highlights session, recognising its value as a patient-driven, multilingual tool that makes reliable lupus info accessible worldwide.
A great example of how co-creation with patients leads to🔝innovation!
#EULAR2025
Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org
✅ Meaningful patient collaboration X GenAI = real impact
Congratulations to #LupusGPT on winning the #MadeWithPatients Award 🏆 at #EULAR25
🔊LISTEN IN 👇🏽
@lupuseurope.bsky.social @lupuschat.bsky.social @lupusdnadoc.bsky.social @lupuswarrior69.bsky.social @lupus.org @disorderlupus.bsky.social
Digital health has evolved a lot, but there’s still a lot we can improve.
That’s where tools like #LupusGPT can make a change!
Great and dynamic talk by @rafaprieto4.bsky.social!
#EULAR2025
