🦋 Turn to your association for support.
🇪🇺 There are many orgs across Europe that can help you & your child cope with #lupus.
Look for the one closest to you: www.lupus-europe.org/lupus-members/
More, at #Lupus100 & #LupusGPT lupus100.org/en/questions... lupusgpt.org
#WORDDAY2026
🍏 A well-balanced diet, with plenty of fruits, vegetables and whole grains, is key for #lupus patients.
🦋 The only specific diet that has been proven to improve #lupus activity and symptoms is the Mediterranean diet.
More ℹ️ on #Lupus100 https://f.mtr.cool/lpwwrvswqq
#WORDDAY2026
💊Apart from pharmacological treatment, other non-pharmacological measures can help in #lupus management.
🏃Did you know exercise has been shown to improve SLE symptoms like #fatigue?
More at #Lupus100 https://f.mtr.cool/jyyuwigvne
Also, follow our exercise programme!
#WORDDAY2026
#Lupus might sound scary at first, but the diagnosis doesn't mean your child will not be able to have a normal life.
Talk to your doctor about infection prevention & self-care measures.
Find reliable information on #Lupus100 https://f.mtr.cool/zrbceqdwgg in your language
#WORDDAY2026
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🛠️ Maintenance alert:
We are carrying out maintenance work on our main website.
🌐 During this time, you may experience limited access or temporary disruptions.
In the meantime, you can visit #LupusGPT and #Lupus100 for lupus info!
Thank you for your support & understanding!
🦋 We can say it louder, we can say it clearer… &, with #Lupus100, also in 19 languages!
❌ Lupus is NOT contagious.
✨ Help break the myth:
-Share a post on social media
-Use lupus100.org to find the explanation in your language and share -links in this thread! ⤵️
🦋Kudos to our Vice-Chair & Secretary, Annemarie Sluijmers, who joined the #GlobalSkin-Europe Health Policy Influencers Forum to share the impact of #LupusGPT & #Lupus100 in improving validated #lupus info for better care.
Thank you, GlobalSkin, for ensuring the lupus patient voice is heard!
🚨 Misconceptions can appear anywhere.
🤝 Turning to patient orgs & resources like #Lupus100 & #LupusGPT helps avoid misconceptions that can cause harm & ⬇️ QoL of people with lupus.
Share this post & encourage others to visit https://lupus100.org/ & https://lupusgpt.org/
📅Save the date!
@eurordis.bsky.social Patient Partnership Webinar – The #Lupus100 Project
🗓️18 Sept | 18:00 CET
With Prof Eric Hachulla, our Chair Jeanette Andersen, our General Secretary Zoe Karakikla-Mitsakou, & Alain Cornet (our Organisation Coach).
Register now! us02web.zoom.us/meeting/regi...
🌟Unlike other AI tools, #LupusGPT will 𝗻𝗼𝘁 make up answers. It will let you know if the information is unavailable in its database.
✅Every response is based on a rigorously curated repository of scientific documents, including @eular_org recommendations & #Lupus100 website
💡 #Lupus100, developed by ERN ReCONNET & Lupus Europe, is a multilingual free lupus resource.
Do you want to know more? Register for this EURORDIS webinar with Prof E Hachulla; our Chair, Jeanette Andersen & Zoe Karakikla-Mitsakou, our General Secretary.
www.eurordis.org/improving-pa...
🛠️Scheduled maintenance alert
Today, between 12:00 and 18:00 CET, we will be carrying out maintenance work on both our main website & #Lupus100 website.
🌐 During this time, you may experience limited access or temporary disruptions.
Thank you for your support & understanding!
👏Excellent session by our Chair, Jeanette Andersen, on #LupusGPT & #Lupus100: multilingual AI-powered tools offering free, validated & accessible info.
Want to learn more or replicate it in other diseases? Visit us at Booth O15- NPO area, glass walkway, near Hall 8.1!
#EULAR2025
🦋 While #Lupus100 is a very powerful tool, it is static.
🌈 That’s why we, at Lupus Europe, have created #LupusGPT: a multilingual, dynamic AI tool built on specific, validated resources to ensure patients receive high-quality information.
lupusgpt.org
#EULAR2025
🔔Don’t miss this session that our Chair, Jeanette Andersen, will deliver today at @eular.org Congress!
🎤“Developing new AI resources: #Lupus100 & #LupusGPT”
🕝14:30- Room C3
💡Discover how patient-led innovation can shape #lupus education
https://lupusgpt.org/
https://lupus100.org/
#EULAR2025
It is estimated that about 50% of #SLE patients will suffer from #lupus nephritis, one of SLE's 🔝dangerous & frequent complications.
Routine checkups➕available treatments make it possible for 60–70% of patients to achieve complete or partial remission
#WorldLupusDay
#Lupus100
#Lupus is an autoimmune disease that affects nearly 500,000 people in Europe and over 5 million people in the world.
It affects not only patients but also their loved ones.
Let's raise awareness of the importance of an early diagnosis
#WorldLupusDay
#MakeLupusVisible
#Lupus100
🚨 #Lupus is a complex and heterogeneous systemic autoimmune disease in which the body's immune system attacks your own tissues and organs, causing inflammation and damage in any part of the body
Visit #Lupus100 & #LupusGPT for more!
#WorldLupusDay
#MakeLupusVisible
🦋 𝐓𝐨𝐝𝐚𝐲 𝐢𝐬 #𝐖𝐨𝐫𝐥𝐝𝐋𝐮𝐩𝐮𝐬𝐃𝐚𝐲❗
And now it is easier than ever to raise #LupusAwareness thanks to #Lupus100 and #LupusGPT!
Check https://lupus100.org & https://lupusgpt.org & find reliable information about #lupus in many languages!
#MakeLupusVisible
🦋 How much do you really know about lupus?
Try #SLAKE — a quick, easy tool (available in 20 languages) to assess your #lupus knowledge!
👉 Take it now + keep learning at #Lupus100 & #LupusGPT!
https://maladie-autoimmune.fr/SLAKE/
🦋 Turn to your #lupus association for support.
🇪🇺 There are many organisations across Europe that can help you and your child cope with the disease.
👀 Look for the one closest to you here ➡️ https://f.mtr.cool/crflcqlovr
ℹ️ More, at #Lupus100 https://f.mtr.cool/wswnsdvtdu
#WORDDAY2025
🍏 A well-balanced diet, with plenty of fruits, vegetables and whole grains, is key for #lupus patients.
🦋 The only specific diet that has been proven to improve #lupus activity and symptoms is the Mediterranean diet.
More ℹ️ on #Lupus100 https://f.mtr.cool/upjssjygws
#WORDDAY2025
💊Apart from pharmacological treatment, other non-pharmacological measures can help in #lupus management.
🏃Did you know exercise has been shown to improve SLE symptoms like #fatigue?
More at #Lupus100 https://f.mtr.cool/zthpwqrolr
Also, follow our exercise programme!
#WORDDAY2025
#Lupus might sound scary at first, but the diagnosis doesn't mean your child will not be able to have a normal life.
Talk to your doctor about infection prevention & self-care measures.
Find reliable information on #Lupus100 https://f.mtr.cool/jwfrgklhmj in your language
#WORDDAY2025
✅ #LupusGPT has been developed by Lupus Europe & validated by leading lupus experts & patients.
This AI tool ensures 100% reliability by exclusively using information meticulously verified and sourced from top-tier scientific publications and #Lupus100.
https://lupusgpt.org/
⁉️ Do you want to know more about diet & #lupus?
✅ Check out the #Lupus100 website, where you can find reliable information about lupus in a patient-friendly language.
🔊 Available in multiple European languages! ⤵️
lupus100.org/en/questions/should-we-f...
🇩🇰 ht…
