A new project is exploring how women living with MS experience menopause, aiming to identify gaps in care and support.
Research in this area is still limited, so this study will help improve understanding and future support. 💜
ms-uk.org/news/new-pro...
#MSUK #MSResearch #LivingWithMS
Planning a break or day out but not sure where to start?
Our latest blog shares useful tips and trusted resources to help you find accessible holidays, city breaks and days out across the UK. 😊
Comment below if you have any trips or days out planned for 2026!
ms-uk.org/blog/plannin...
📢We are inviting people with MS to take part in Patient and Public Involvement (PPI) to help us ensure a new app is relevant, useful, and works as intended.
Click the link below or message us directly if interested!
forms.cloud.microsoft/e/REfPC4e5zQ
Researcher Richard Edwards from University of Wolverhampton is currently looking for participants to take part in his study focusing on time to MS diagnosis. Participants can take part remotely. If this sounds of interest to you, please contact Richard for more information: r.c.edwards@wlv.ac.uk
Considerations for family planning with multiple sclerosis. Authors @drruthdobson @KerstinHellwig pubmed.ncbi.nlm.nih.gov/41925496/
Multiple sclerosis (MS) has more than doubled in recorded prevalence in England from 2000 to 2020, increasing by 6% per year, largely due to improved diagnosis and longer life expectancy, finds a new study by UCL and Imperial College London researchers.
www.ucl.ac.uk/news/2026/ma...
A photo of the hardback book and a yellow wellbeing journal that came with (and a sticker set, for fun).
So lovely to get this package from @thehealthpsych.bsky.social to celebrate the upcoming publication of It’s All In Your Body.
If you have a chronic health condition, this book really could be a life-changer. Pre-order: www.waterstones.com/book/its-all...
Real lived experience shaping tools for people with MS
If this speaks to you, please consider getting involved 💙
This retrospective study from Norway of over a million people found that maternal diabetes is linked to doubling of future risk of multiple sclerosis of the child (HR 2.15 (95% CI, 1.37-3.37). pubmed.ncbi.nlm.nih.gov/41525064/
We’re looking to include example scripts and real tips on what helped you share your MS diagnosis with friends, family, colleagues, or bosses.
Let us know!
Brain scans reveal that mindfulness meditation for pain is not a placebo
Mindfulness meditation engages separate neural pathways from the well-documented “placebo effect”
www.eurekalert.org/news-release...
A speaker stands at a podium giving a presentation. Their body is partially obscured by a tall laptop stand, with only their upper torso and head visible. Behind them, a large projected slide shows the title and content of their presentation on adapting Compass MS from a web-intervention to a standalone app in a conference
Thrilled to have won Best Oral Presentation at the Health Sciences DTC Symposium🎉
I presented my work adapting Compass MS into a self-guided mobile app for MS-related distress, and the panel chose it as their top talk.
Pictured: me, the same height of the laptop stand😄
@kingsioppn.bsky.social
Such an energising session!🤗
I'm so grateful for this amazing, thoughtful group. Your insights are truly shaping the app into something meaningful and practical for people living with MS.
Every conversation moves us a step closer to creating tools that support, empower and make a real difference👊
There’s no holiday from type 1 diabetes (T1D). The constant management can take a real toll on mental health.
We have been looking at how to best detect and support mental health difficulties in people living with T1D.
I wrote a blog post that breaks it down in an easy read 📝
Can we study mental health in people with type 1 diabetes at scale? 🧠📊
We tested it and it’s doable.
Read our new paper in @springernature.com Pilot and Feasibility Studies on what worked, what didn’t, and what’s next!
Link to article: rdcu.be/eCYFj
#T1D #MentalHealth #Research
Such a great session, Scot, thank you for all your feedback! 🙌 It’s amazing to work with you and the wider group to help shape this app! 🎉
1️⃣ NEW *open access* measure alert 🧵 We’ve just published the Illness-Related Distress (IRD) Scale in Psychological Medicine doi.org/10.1017/S003... It's a 14-item, trans-diagnostic PRO for distress related to living with any long-term physical condition (LTC). But WHY does this matter 🤔 ⬇️
Looking forward to speaking at the
@midshealthpsych.bsky.social Conference! ✨
I'll be presenting on user engagement in mHealth apps for adults with long-term conditions.
Get your tickets below and let’s chat about all things health psychology!
🎟️ f.mtr.cool/tbvntqqauj
Participants needed 📣✨
We're developing a digital support tool for people living with MS experiencing sexual difficulties.
Click the link below to access the survey and enter a prize draw for a chance to win 1 of 5 £20 vouchers!
shorturl.at/bMjEz
Your input makes a difference 💜
When we talk about MS, finding the right words can be tough – but it doesn’t have to be.
That’s why, this MS Awareness Week, the UK’s leading MS charities are teaming up start #MSConversations
This year’s theme is designed to break the stigma and get people talking about MS!
Are you a health psychology researcher? We would love to hear from you about your engagement with #OpenScience! Follow the link below to be taken to a brief survey:
psychologygalway.qualtrics.com/jfe/form/SV_...
MS doesn’t just affect the body — it can impact mental health too. This MS Awareness Week, we’re talking about it.
Watch the video and join the conversation. #MSAwareness"
Follow @kcl-ms-research.bsky.social for updates on our upcoming project aiming to support people living with MS! 👇
So lucky to be a part of this incredible team!
Exciting things in the works! 🚀
Together with people living with MS, @kingsioppn.bsky.social are creating mobile interventions for the invisible symptoms of MS. 📱
Follow the page for updates as we turn research into reality! 💡🧡
#MultipleSclerosis #DigitalHealth #Research
Huge congrats to the @refuelms.bsky.social team on their app launch last week! 🎉
Excited for the upcoming projects in the health psychology team at @kingsioppn.bsky.social, where we're developing an app for psychological distress and other invisible symptoms of MS forming my PhD 🧠📱
International Women's Day 2025! The Register are especially grateful for the women we work alongside who have a positive impact on our work and our lives. Read our IWD 2024 blog on inspirational women of the UK MS Register:
blog.msregister.org/celebrating-...
#AccelerateAction
#IWD2025
🚨 We're still recruiting! 🚨
If you're interested in getting involved, please don't hesitate to contact us or repost this message to help spread the word!
We'd love to hear from you! 🙌
#MultipleSclerosisResearch #MS #ResearchOpportunities
📢 🔬 Seeking PPI participants with MS! Help us design a mobile app for pain, psychological distress and sexual difficulties.
Your voice matters 📱🌟
Sexual difficulties in #MS are often not asked about or treated. If you want to hear more about our recent trial and how we trying to change this join Dr Ashley Brown, our patient advisers and me on Thurs 16th Jan from 5:00-6:30pm GMT.
bit.ly/421VuHN
