So proud to be part of these studies and advance #GeneEditing therapies for #SCD and #TDT by editing gamma globin promoters and mimic nature like persistent feral haemoglobin. Thanks 🙏 for patients , research team @clevelandclinic.bsky.soci and great team of investigators 👏🎉
so honored and excited tos hare on behalf of all our team and co-investigators the results of RUBY study #EditasMedicine that used novel first-in human CRISPR-Cas12a Gene Editing of HBG1 & HBG2 Promoters to treat #SickleCell Disease which was published today in @nejm.org www.nejm.org/doi/full/10....
#ASH25 #bmtsm Soiffer: although cGVHD reduced overall, this benefit of cryo was not seen in pts getting PTCy. Given higher OS in spite of lower GRFS with cryo, fresh grafts remain the preferred standard (but still reasonable when logistically useful).
Dr. Lucy Fox for outstanding talk at #LBA #ASH25
Whole Genome Sequencing upfront in large cohort of adult & pediatric pts with suspected IBMFS found high diagnostic rate (37.1%)
- cost is ~8100 $ but expected to 📉
- impact on patient counselling & therapy
- new discoveries
Grateful for the wonderful ‘You Have Been ASH’d experience ✨. WE are the ones who should be thanking @ash.hematology.org for bringing us together, building community, and inspiring the next generation of trainees 🙌. Hem is simply the best — a family and a field that inspires us every day ❤️ #ASH25”
It’s always inspiring to meet global colleagues, mentors, and mentees at the #ASH25 meeting. Medicine is the ultimate team sport — we learn, grow, and advance together. Grateful to @ash.hematology.org for fostering a truly global hematology community. 🌍🩸
#ASH25 #bmtsm Kuball: no strong evidence for different outcomes using frozen G mobilized DLI (ie, leftover from graft collection) vs fresh steady state collection.
Dr. Lachelle Weeks presented interesting data about #CHIP present in #SCD patient and I am surprised to see it as early in childhood (up to 7% by age 11) and how the incidence increases. It was not observed in sickle trait. Unknown are the implications for 🧬 #GeneTherapy #ASH25
Congratulations 🎉👏 Dr. Crawford Strunk @clevelandclinic.bsky.social for a powerful #ASH25 presentation on integrating palliative care into SCD management. Inspiring to see how this approach not only enhances patient well-being but also improves length of stay #SickleCell
🚀 Calling all ASH trainees! This is your chance to shape the future of hematology. Join the ASH Trainee Council and amplify your voice, your ideas, and your impact.
Scan the code below and apply today! 🌟 #ASH25 #HemeTrainees #Leadership
Grateful for the opportunity to join #BloodBuddies at #ASHApalooza #ASH25 @ash.hematology.org Fast-paced mentorship, big ideas, and even bigger passion from trainees — truly energizing.
I also learn from them more than they know- it is like highway /knowledge flows both ways
Excited to participate in #ASH-a-palooza at #AS25 #BLOODBUDDIES
Designed for undergraduates, medical and graduate students, residents, and fellows, ASH-a-Palooza provides a variety of opportunities for trainees attending @ash.hematology.org meeting #ASH25
youtu.be/aVAJg-qp99Y
How immuniry change wuth age - age-dependent TH2 bias in CD4 T cells and CD8 T cells is broadly driven by reduction in T cell signalling strength over time
www.nature.com/articles/s41...
Grateful to our amazing @CleClinic_PHO team for shining so brightly at #LightTheNight 🌟 Your passion and advocacy bring hope to leukemia & lymphoma patients and families every day. Together, we’re lighting the path toward a cure. ❤️🕯️ #LLS #TeamClevelandClinic @bloodcancerunited.bsky.social
You want to feel good and 🤩👏… come to @velosano . Nothing feels as good as being with previous #ChildhoodCancer patients who are now #Survivors and #riding for the #Cure
Here we go ; safe ride to all #Riders @bikeVeloSano 25 miles. 🙏thank you so much for all you do to raise $ for #CancerResearch at @ClevelandClinic 💯 for the #Cure . Cancer impact goes beyond one patient , one family … it affects the community and together 💪 can make an impact
The impact of CMV reactivation on mortality after chimeric antigen receptor T-cell therapy url: ashpublications.org/bloodadvance...
Join us on July 26 at the Cleveland Metroparks Zoo for a one-of-a-kind bike ride for kids ages 3–10 to raise funds for pediatric #cancer #research at @clevelandclinic.bsky.social
. www.velosano.org/trike-bike
www.velosano.org/trike-bike/
This is sad news abd huge loss to #Medicine #Pediatric and #Science in general . May his menory be a blessing . pioneerpressobits.space/atul-butte-s...
Mentorship is a powerful way to give back in #PedsHemOnc. I am so honored to be among #mentors at the American society of pediatric hematology - oncology speedy mentorship supporting the next generation boosts career satisfaction, fosters personal growth & strengthens our field for the future.
Dr. Caitlyn Duffy from @stjude.bsky.social presented great talk at poem_group about Implementation science in leukemia
1- discussed the 17 year odessy - translation of discovery to delivery
2- EPIS implementation framework
So grateful to be invited to #POEM 4th Scientific Conference! Connecting with ped oncologists to improve care & access for kids with cancer has been truly inspiring. 👏🎉 Dr. rawad rihani and Dr. Gevory Tamamyan for fantastic reception to start #POEM2025 #PediatricOncology #CancerCare
A heartfelt thank you to our incredible team at Cleveland Clinic Children’s for coming together in support of St. Baldrick’s Foundation. Your dedication, generosity, and passion for making a difference in the lives of children with cancer is truly inspiring
#StBaldricks
m.youtube.com/watch?v=azNy...
Thank you 👏 Dr. Jim Fernandez for organising great conference #PrimaryImmunodeficiency at @ClevelandClinic and great talk about #IVIG . It is amazing to see the use increase significantly.
Did you know it takes 8-9 months to make IVIG and it approximately collected from 15,000 donors
Great advice by Troy Torgerson about what to do when you have VUS “variable unknown significance “ at @clevelandclinic.bsky.social #PrimaryImmuneDeficiency symposium
Still time to join us at #UodateInPrimaryImmunodeficiency at @clevelandclinic.bsky.social endorsed by immune deficiency foundation
Very educational agenda and world renowned experts discussing diagnosis and management of different immune deficiencies
www.clevelandclinicmeded.com/live/courses...
Celebrating a Second Chance at Life Symposium
May 3 - 9, 2025
A week packed full of information, inspiration and community.
symposium.bmtinfonet.org
The fight against # ChildhhodCancer is not just medical challenge - it is calling - beyond medication to wholistic care
So proud of our music therapist 🎉👏 Emily Ervin @CleClinicKids for supporting kids - see picture below 👇 with one of our kids cutting her hair
So proud and inspired by our team : Preston , Katie and Stacey participating in @clevelandclinic.bsky.social #StBaldrick shave for the cure event
We are doing what we do to support kids & their families and organisations like St Baldrick so we can do research to find more cure and better therapies
