open.substack.com/pub/thinkhor...
#PublicHealth #Healthcare #Decolonize #HIV #AIDS #CVID #ChronicIllness #ImmuneDeficiency #SouthAfrica #Health #Medicine #Patient #Diagnosis #Leftist #Politics #RareDisease #Disability #SocialJustice #ThinkHorsesNotZebras #PrimaryImmuneDeficiency
🌟 Grand Rounds with Dr. Megan Cooper 🌟
One patient’s story can unlock diagnoses for dozens more. 🧬
From inborn errors of immunity to targeted therapies, genome sequencing is transforming care for #PrimaryImmuneDeficiency.
#Genomics #PrecisionMedicine #Pediatrics #RareDisease
A new post
open.substack.com/pub/thinkhor...
#PublicHealth #Healthcare #Decolonize #HIV #AIDS #CVID #ChronicIllness #ImmuneDeficiency #SouthAfrica #Health #Medicine #Patient #Diagnosis #Leftist #Politics #RareDisease #Disability #SocialJustice #ThinkHorsesNotZebras #PrimaryImmuneDeficiency
We're delighted to announce a Charity Drive next week for the launch of #TrashGoblin on Steam, and @ironmouse.vshojo.com will be leading the charge! We promise to donate $1 for each hour streamed by the community - up to $5k - donating to the Immune Deficiency Foundation! #primaryimmunedeficiency
Great advice by Troy Torgerson about what to do when you have VUS “variable unknown significance “ at @clevelandclinic.bsky.social #PrimaryImmuneDeficiency symposium
Anyone else get IVIG infusions for treating their chronic illness? Recently been getting stuck in a 2-3 day post-infusion haze. Curious if others might be having increased or prolonged downtime post-infusions over the last few months?
#ivig #primaryimmunedeficiency #plasma #zebra #chronicillness
