Flash Friday is coming up, and we want to feature your work! Our members-only SCDC newsletter drops the first Friday of each month—share your news, events, and resources by April 24 to be included.
Send submissions to coordinator@scdcoalition.org
Registration is still open for the ASH SCD Away Elective Rotation! This 1-month experience gives heme/onc fellows hands-on training in caring for people living with sickle cell disease.
Apply by May 1, 2026: https://ow.ly/C8xc50YN89Q
#SickleCellDisease #MedEd #HemeOnc #ASH
Can AI be trusted for sickle cell disease education? 🤖🩸
Join our Peer Learning Exchange on April 21, 2026 at 10:00 a.m. ET to explore SickleCellPedia as a real-world AI case study.
Register: https://ow.ly/TgQW50YLnLS
#SickleCellDisease #AIinHealthcare #SCDCPartner
We’re already in month four, which means you know what’s coming: the SCDC Update hits inboxes the last Friday of the month. Got news, events, opportunities, or resources for the sickle cell community? Send your submissions by April 20 to be included.
Email: coordinator@scdcoalition.org
Thank you for joining us at the SCD Unified Action Forum! 🎉
If you attended, please take a few minutes to complete our post-event survey. Your feedback will help us improve future convenings for the sickle cell community.
Take the survey here: https://ow.ly/PXA150YJ6EF
#SCDUnifiedActionForum #SCD
We’re a week away from the SC3 Leadership Summit and SCD Unified Action Forum in Atlanta — and we’re coming from Washington, DC! ✈️
We’re excited to join such a diverse group of stakeholders to advance unified action for people living with SCD.
Where are you traveling from? ⬇️
Flash Friday submissions are open! ⚡️
Looking for new items to feature in our members-only April Flash Friday newsletter.
Have news, events, resources, or opportunities to share? Send them in by April 1 (no April Fools joke 😉).
Submit to: coordinator@scdcoalition.org
Planning an event for the sickle cell community? Let’s amplify it. 🔊
Hosting a workshop, webinar, summit, training, or community gathering? We can feature it on the SCDC events calendar to help you reach more stakeholders.
Send event details to: coordinator@scdcoalition.org
Now accepting submissions for the March SCDC Update!
Have news, events, opportunities, or resources the sickle cell community should know about? Share them so we can help amplify your work in our next newsletter.
Send your items or questions to coordinator@scdcoalition.org.
#SickleCell #SCD
We’re excited to kick off the SCDC Research & Innovation Subcommittee tomorrow, March 18.
We’ll be shaping a new series that will feature priority topics in sickle cell disease research and spotlight the experts driving this work. Want to be part of it? Apply here: https://ow.ly/KYHk50Ys1Nr
Headed to Atlanta for the SCD Unified Action Forum (April 11–12)? This is your sign to lock in your travel.
Book your flight & hotel by March 24 to secure your spot and make the most of the Forum.
Let’s move sickle cell care, research & advocacy forward—together.
#SickleCell #SCD #SCDCPartner
We can’t believe Sick Cells Sickle Cell Disease Policy Forum is just a couple of days away!
Make sure you’re registered and ready to learn, engage, and advocate. Bring your voice and your commitment to advancing better policies for people living with SCD — See you there!
#SCDCPartner #PolicyForum
It's Patient Safety Awareness Week – for the sickle cell community, safety means survival. Use ASH SCD guidelines for safer care: https://ow.ly/QeSt50Ys15u #SCDC #ASH #Guidelines #PatientSafety
We’re excited to co-host the SCD Unified Action Forum with Sickle Cell Consortium, April 11–12, 2026, in Atlanta, GA. We’re bringing together SCDC & SC3 members to advance unified action in SCD. SCDC members can also attend the SC3 Leadership Summit at no additional cost.
#SCDCPartner #SCD
📬 Have you signed up for the SCDC Update?
It’s a great way to stay up to date on the latest sickle cell disease opportunities, resources, and events, and to easily share them with colleagues and others in your network.
Join the mailing list today: https://ow.ly/XHO650YcoLl
🚨 Our first U.S. Pathways to Care meeting is on March 6!
Join U.S. based stakeholders to address barriers and develop practical, community-informed solutions for equitable, high-quality sickle cell care. Apply to join the subcommittee: https://ow.ly/Wsyf50YcoGq
Reminder: 📣 Join us for #PeerLearningExchange #4 on the sickle cell disease policy landscape in 2026.
Hear from Maia Laing, Chief Policy Officer at @SickCells on the latest regulatory, funding & access trends shaping care and research in the U.S.
🔗 https://ow.ly/9IUm50Yhl5G
❤️ February is American Heart Month!
People living with sickle cell disease (SCD) face unique heart health risks. Learn practical tips to support cardiovascular health here: https://ow.ly/NeSp50Ycomr
#AmericanHeartMonth #SickleCellDisease #HeartHealth #PatientAdvocacy
📢 Flash Friday #3 is coming in March!
We’re looking for community news, events, and resources related to sickle cell disease to feature in our next Flash Friday.
🗓️ Submit by Feb 26
📩 Questions? Email coordinator@scdcoalition.org
Help us keep the SCD community informed and connected.
The SCDC is excited to join community members and advocates at the 2026 #SCDPolicyForum, hosted by Sick Cells and the Sickle Cell Consortium
🗓️ March 17–18, 2026 | Virtual
Register: https://ow.ly/wRb150YcnP7
#SickleCellDisease #Advocacy #SickleCellAwareness
📣 Join us for #PeerLearningExchange #4 on the sickle cell disease policy landscape in 2026.
Hear from Maia Laing, Chief Policy Officer at Sick Cells on the latest regulatory, funding & access trends shaping care and research in the U.S.
🔗 https://ow.ly/zvUb50YhkTq
🧬 The FDA is hosting a virtual Rare Disease Day 2026 public meeting on Feb 23.
The SCDC will be attending—will you? Let us know how you or your organization are engaging during #RareDiseaseDay or #RareDiseaseWeek.
🔗 Learn more: https://ow.ly/TNY550YcnmZ
📢 Don’t miss our third Peer Learning Exchange: “From Commitment to Change—Effective Advocacy Through Coalitions & Government Engagement.”
Hear Mario Ottiglio, MA, share actionable tips on coalition advocacy and policy engagement.
📅 Tomorrow, Feb 17
🔗 Register: https://ow.ly/NsPc50Ycnff
🩸 Today is World Anemia Day 2026!
Many confuse sickle cell anemia (HbSS) with sickle cell disease (SCD). Quick tip: HbSS is the most common & severe form of SCD. Learn more here: https://ow.ly/Sxmi50YcmLF
👥 Our first SCDC-wide meeting of 2026 is Feb 25!
We’ll share highlights from the ASH Annual Meeting and research submissions.
Members, we hope to see you there! Not a member? Apply here 👉 : https://ow.ly/PzMu50Ycmog
#SickleCellDisease #ResearchCommunity #SCDC #ASHAnnualMeeting
📣 Peer Learning Exchange | Feb 17: Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA.
🔗 Register: https://ow.ly/mi9n50YbVz3
#PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease
📣 Peer Learning Exchange | Feb 17:
Join us for 'From Commitment to Change: Effective Advocacy Through Coalitions' with Mario Ottiglio, MA.
🔗 Register: https://ow.ly/5wc650Y6Bu5
#PeerLearningExchange #GlobalHealth #Advocacy #CoalitionBuilding #SickleCellDisease
Have an event? Let’s amplify it!
Submit your workshops, summits, trainings, or other opportunities to the SCDC calendar and reach more of our community. We’ll help spread the word!
📧 Send details: coordinator@scdcoalition.org
#SickleCellDisease #HealthAwareness #Collaboration #AmplifySCDC
Today is Maternal Health Awareness Day! ACOG's theme "Holding Ground on Maternal Health" highlights our commitment to preventing maternal deaths. Check out WHO's first global guideline for SCD pregnancy care: https://ow.ly/7zl850XYhfe #MaternalHealth #SCD
January is National Blood Donor Month! Check out this PSA by our former Co-Chairs, Mapillar and Jeff.
