They cite studies, but they seem to be “carefully selected”…

Wieso nur habe ich den Eindruck, dass die Beobachter-Leserschaft mehr über ME weiss als 98% der 🇨🇭 Gutachter?

Keine Diskussion von Post-exertional Malaise bei „CFS“, Verwunderung dass keine Psychotherapie durchgeführt wurde, und dass mehrere Angehörige dieselbe Diagnose haben.

It will probably cost them a lot more because the long covid model they used doesn't really match reality.

As someone who is in year seven of the ME/CFS type of long COVID, this is just depressing. If they believe most people are only mildly sick for, at most, two years, there is no one who will spend the time or money to help people like me, and there are a lot of us.

“The severely affected subgroup matters disproportionately” needs to be the guiding mantra of everyone in this field.

This is not a clinical study. It’s an economic model based on unrealistic assumptions. It’s an OECD report.

P. 22

Brilliant 💯

www.instagram.com/reel/DW4GkQT...

Looks like that is a huge underestimation based on a very unrealistic model of long covid

OECD model: “88% of Long Covid mild, 11% moderate, 1% severe. Average duration 2 y. Prevalence 2026 probably below 1%”

AL Cheng, 2025: global prevalence 6%.

OECD: in 2024 cost of LC .5 to 2.3% of the GDP.

Wait – that’s the same OECD which says now LC costs .1 to .2% a year? 🤔

OECD model: “88% of Long Covid mild, 11% moderate, 1% severe. Average duration 2 y. Prevalence 2026 probably below 1%”

AL Cheng, 2025: global prevalence 6%.

OECD: in 2024 cost of LC .5 to 2.3% of the GDP.

Wait – that’s the same OECD which says now LC costs .1 to .2% a year? 🤔

ME - scotomized since 1969… 😡

Two tweets from me on March 31, 2020. The press should be asking public officials whether they expect a rise in #MECFS cases following the Corona virus and what they plan to do about that long tail of this public health crisis. ME already affects almost 1% of the population (2.8M Americans) an onset typically follows a viral infection. So that number may rise precipitously. Meanwhile there are 12 ME doctors in the entire country.

Thank you so much for speaking out about this—it resonates so closely with the concerns I had when the pandemic was first breaking out.

It’s depressing that six years on, we’ve made so little progress in addressing this crisis.

2021 wurde mir gesagt LC würde nie länger als ein Jahr dauern.

2022 hieß es dann zwei Jahre.

2023 dann drei Jahre.

2024 hat mir meine damalige Ärztin dann gekündigt.

Und Mist, das Memo, dass ich nur leicht betroffen sein sollte, hat mich auch zu spät erreicht 🤡

Das sind haltlose Behauptungen.

Ich kenne die Invalidenversicherung sehr gut, und ich habe eine gut trainierte Abneigung gegen sie.

IV Unternehmenskultur = Ignoranz + Vorurteile + rein ökonomisches Denken (Reihenfolge austauschbar)

➡️ Schema F: IV-Abklärung ist schlicht nicht ausgelegt auf PEM.

Let me guess… You don’t use AI at all, and if you do, not in a competent way.

Verrecken weil der Staat nicht hilft oder kaputt daran gehen die eigene Hilfsbedürftigkeit erst zu beweisen?

Der Staat: Why not Both?

Ähm. Ich bin Spezialistin für Long Covid und ME. Ich sehe das die ganze Zeit. Ich werde sogar durch Gutachter und IV-Stellen verhöhnt.

Ich bin die allerletzte, der du das erklären musst.

Imagine seeing this as someone suffering from the same illness, who was among thousands who predicted this from the start, and seeing the complete lack of meaningful action and indifference.

There is so much corruption in human affairs that it even ruins good things like medicine and health care.

Die OECD geht davon aus, dass die allermeisten Long Covid Patienten leicht betroffen und nach durchschnittlich zwei Jahren wieder gesund sind. (Leider haben meine Patientinnen und Patienten diese Memo nicht gekriegt! 🤡)

Die OECD geht davon aus, dass die allermeisten Long Covid Patienten leicht betroffen und nach durchschnittlich zwei Jahren wieder gesund sind. (Leider haben meine Patientinnen und Patienten diese Memo nicht gekriegt! 🤡)

👏
This has happened before. And it will happen again with the next pandemic.

If we don't break the loop, the #GreatestMEdicalScandal repeats itself. All battles are important, but this one is impervious to time. There will be no shortcut, no escape, until one generation acts on it.

So very true.

#ME/CFS

Sharing the LinkedIn link as well for anyone who’d like to upvote this important comment there too.

www.linkedin.com/posts/dr-med...

Reading the new OECD report on Long COVID as a clinician is a sobering experience. According to the model, most cases are mild, the average duration is two years, and prevalence will fall to around 1% in the coming decade. In daily practice, this does not reflect what many of us see. A substantial subgroup of patients remains significantly impaired well beyond the first months. Many fulfil criteria of ME/CFS, with post-exertional malaise, cognitive dysfunction and limited recovery over time. We need models that reflect heterogeneity, not just central estimates. Otherwise, we risk designing systems that work on paper, but fail the patients who need them most.

Reading the new OECD report on Long COVID as a clinician is a sobering experience.

www.oecd.org/content/dam/...

🇨🇭39 % der Long Covid und ME-Betroffenen werden durch die IV-Begutachtung dermassen überlastet, dass sie sich irreversibel (!) verschlechtern. Nur 12 % von ihnen erhalten eine Invalidenrente. Das ist ein eklatanter Verstoss gegen die Rechtsgleichheit, zumal das Bundesgesetz über die Invalidenversicherung klar festhält, dass die Versicherten im Rahmen des Zumutbaren kooperieren müssen! Wertvolle Interpretation diesbezüglich von Lorenz Hess. https://www.parlament.ch/de/ratsbetrieb/suche-curia-vista/geschaeft?AffairId=20263467

🇨🇭39 % der Long Covid und ME-Betroffenen werden durch die IV-Begutachtung dermassen überlastet, dass sie sich irreversibel (!) verschlechtern.

www.parlament.ch/de/ratsbetri...

Two patient encounters today left me reflecting on how far we still have to go in understanding ME/CFS. A patient with myalgic encephalomyelitis was sent to a university hospital for a second opinion. The recommendation was inpatient rehabilitation. What struck me was that post-exertional malaise (PEM) was not even mentioned. Yet PEM is the key feature of this disease and central to both diagnosis and management. At the same time, patient data from Switzerland shows that about half of people with Long COVID or ME/CFS actually worsen in inpatient rehabilitation, while only a small proportion (17 %) improve. That makes such recommendations difficult to justify if PEM is not taken into account. The same patient was also advised to stop all off-label, symptom-based treatments and to rely only on “proven” therapies. The problem is that, as of today, there is no curative, evidence-based standard treatment for ME/CFS. International consensus supports individualized, symptom-oriented care alongside pacing, rather than withholding treatment altogether.

Another patient I saw today reminded me how often terminology is misused. She had been diagnosed with “chronic fatigue syndrome” years ago. In reality, she has chronic fatigue and chronic pain, but she does not meet criteria for ME/CFS. This distinction is important. Chronic fatigue is a symptom and can have many different causes. ME/CFS, on the other hand, is a specific, multisystem disease with defined diagnostic criteria, including PEM. If we blur this line, we risk misdiagnosis and inappropriate management. Key takeaways for clinicians: 1. Always assess for PEM. PEM is essential for diagnosis and management of ME. 2. Avoid generic rehabilitation approaches that ignore exertion intolerance. 3. Recognize that symptom-oriented, individualized care is currently the standard—not the exception. 4. Use precise terminology: not every chronic fatigue is ME/CFS. We would not approach other complex diseases this way. Patients with ME/CFS deserve the same level of clinical rigor.

1. Always assess for PEM. PEM is essential for diagnosis and management of ME.
2. Avoid generic rehabilitation approaches that ignore exertion intolerance.
3. Recognize that symptom-oriented, individualized care is currently the standard.
4. not every chronic fatigue is ME/CFS.

„Wenn aerosolübertragene Infektionen langfristige Erkrankungen auslösen können, wird die Qualität der Luft, die wir gemeinsam einatmen, zu einer medizinischen und wirtschaftlichen Kernfrage.“

Dr. Maja Strasser

"[...] Der Harvard-Ökonom David Cutler kommt zum Schluss, dass Long Covid solch enorme Kosten verursacht, dass praktisch jeder Aufwand für eine frühe Diagnose, bestmögliche Therapie und effiziente Prävention gerechtfertigt ist [...]" #Prävention #CleanAir #SaubereLuft

AI isn’t a shortcut to better thinking. It’s a mirror. A recent article highlights a key differentiator among high-performing AI users: metacognition: the ability to reflect on, question, and refine your own thinking. • The best users don’t accept outputs, they interrogate them • They iterate, challenge assumptions, and guide the model • AI amplifies how you think, not just what you produce Research shows that people with strong metacognitive habits become more creative and effective with AI, while passive users see little benefit . Bottom line: AI advantage is not about tools. It’s about thinking about your thinking. https://fortune.com/2026/03/21/success-using-ai-one-secret-trait-metacognition/

AI isn’t a shortcut to better thinking. It’s a mirror.

A recent article highlights a key differentiator among high-performing AI users: metacognition

fortune.com/2026/03/21/s...