I’m fine - my old Victorian terrace house is leaky as hell! No danger of co2 buildup.
I’m curious though - Co2 levels are a fraction of a % in the atmosphere, and it’s not directly toxic. Mildly Raised levels usually just make you breathe more. What leads you to suspect it might do that?
Benefits
There has barely been any increase in the number of people claiming benefits if you take into account population growth, aging population, increase in morbidity & pension age rising so it include more people
Not the narrative you hear in media
obr.uk/wtr/welfare-...
John McDonnell is great.
Nearly 4 million households will also receive an income boost with the main rate of Universal Credit set to increase above inflation every year for the next four years – estimated to be worth £725 by 2029/30 for a single household 25 or over. This is around £250 higher than an inflation only increases. The Bill will also rebalance Universal Credit rates by reducing the health element for new UC claims to £50 from April 2026, fixing a system which encourages sickness by paying health element recipients more than double the standard amount.
I’ve been making my way through the Welfare Reform Bill and this paragraph on the gov.uk website is genuinely disgusting.
Receiving a decent disability benefits rate “encourages sickness”, does it? Funny, I thought it just enabled severely ill and disabled people to eat.
If we want change, we need to fundraise for it.
Around half of medical research is funded through the charity sector.
Many people won't be able to donate, but for those who can, I cannot think of a more deserving cause than driving change for people with ME.
Great presentation made by Prof Chris Ponting (@cgatist.bsky.social) to the UK APPGs on ME & Long Covid about the ongoing failure to fund research into ME.
UKRI is failing #pwME and #LongCovid
Time for Wes Streeting to step in: @tessamunt.bsky.social
Please share.
Pt2 in next post.
Awareness Month petition - final call
If you haven't signed yet, please do - and just as importantly, share the link with everyone you know. You can do this from the petition web page. Thanks!!
you.38degrees.org.uk/petitions/ri...
An excellent response to recent opinion in the BMJ that behavioural treatments address the right approach to ME/CFS. www.bmj.com/content/389/...
👏👏👏
Me too - first generation Englishman
My grandmas were immigrants, my mum & sisters in law are immigrants; my sister & nephews are migrants. My kids study maths, Shakespeare, dance, act & score tries alongside the kids of immigrants. My dad’s life was saved by immigrants. Immigrants have made us richer, wiser, stronger
Win the fight
Ely Cathedral Octagon Tower illuminated in blue for Cambridge ME and Long Covid Support, on World ME Day
At the same time others have reported serious harm from some of them. PWME are left wandering in a morass of possibilities which may help or harm them. Properly controlled trials are desperately needed before any technique can be recommended for or against.
I’m very glad to hear that you are recovering from this horrible disease. That’s life changing and to be celebrated. Others have reported recovery or improvement using gigantic doses of vitamin D, LDN, nimodipine, the lightning process, the Gupta technique and many other approaches.
This proposal, backed by some of the major charities, is to establish a national-funded research consortium on ME.
Please sign the open letter calling on public Funders to back it.
A proposal for an ME/CFS, Long Covid and Post-Infectious Disease research platform
organise.network/s/167c15ca80c0
Text of an open letter by Disability organisations to our Cambridge MP Daniel Zeichner MP (Cambridge)
For ME, they’re actually dangerous because they encourage sufferers to ignore PEM.
had hundreds of reports of further damage to health (including children).
One of the problems we have is the conflation by health professionals of chronic fatigue with ME. The former may well be amenable to “change your mind”, “neuroplastic” approaches./
If the proposed interventions are behavioural, the question is whether they work rather than which area of the brain we ascribe their effects to. Schubiner’s approach seems to be very close to CBT/GET and the Lightning Process, both of which have been shown not to work and have/
The #MECFS community should be concerned about this. A right-wing bias is likely to play into the hands of powerful vested interests who betray ME/CFS as a psychological problem.
ME and LC may well involve the brain and CNS but nothing based on changing people’s minds has achieved anything. The one big trial of the “biopsychosocial” approach - the PACE trial of 2011 - fell flat on its face.
If we really want to take on chronic diseases....
by @virusesimmunity.bsky.social and @hmkyale.bsky.social
#LongCovid, post-infection syndromes, immune system assessment and intervention
gift link www.wsj.com/opinion/how-...
