A picture of the landscape of St John’s - Newfoundland.
A poster presented at an academic conference.
We’re really happy to be sharing our work at the @longcovidweb.bsky.social symposia in the wonderful city of St John’s, Newfoundland 🇨🇦
If you’re attending the event either online or in person, please come and say hello!!
This update is therefore to let all of you in the community know that we are still here and continuing to work hard in our bid to help the many millions of people living with Long Covid.
Once the results have been fully analysed and then checked by other independent researchers (a process called peer review) we will let you know the outcome. This process takes a long time.
Next steps will be to analyse the data to see how feasible it is for people with Long Covid to receive this drug and look for any suggestions as to how the drug has affected participants.
Sorry for the silence:
The ERASE-LC trial is making steady progress. All participants have now received their infusions of remdesivir and completed their post-treatment testing.
So good to have you join us for the day!! Lots of great discussions and ideas.. now to find ways to implement them!
Three people stood looking directly at a camera.
An exercise bike next to laboratory equipment.
A door sign.
A medicine bag on a drip stand.
And just like that we have completed ERASE in Derby
A patient-led study with @derbyuni.bsky.social, University Hospitals Derby and Burton, Peninsula CTU and Exeter University to help people with #LongCovid
Thanks to everyone, especially the participants who gave so much to this work.
Exercise-induced Changes in Microclotting and Cytokine Levels Point to Vascular Injury and Inflammation in People with #LongCOVID.
Important preprint work from our Team Clots:
@profmarkfaghy.bsky.social and @resiapretorius.bsky.social
👏👏
www.researchsquare.com/article/rs-6...
Our global effort to raise the urgency of research into Long Covid in children published in The ERJ ⬇️
Huge thanks to @buonsenso.bsky.social and @laelyonker.bsky.social for leading on this.
#longcovidkids
@longcovidkids.bsky.social
publications.ersnet.org/content/erj/...
We’re recruiting a fixed term (3 years) researcher in clinical exercise science and Long COVID. If you want to join a team that is at the forefront of the pathophysiology/lived experience research then please get in touch.
Please share with your network!
www.derby.ac.uk/jobs/current...
An infusion bag hanging from a drip stand.
54 Patients..
270 infusion days..
A whole lot of tea and biscuits..
@derbyuni.bsky.social and @UHDBTrust are completing their last round of ERASE infusions today!
Great teamwork from all involved, and big thanks to the participants for making the last 8 months so enjoyable.
Delphi consensus paper on #LongCovid
link.springer.com/article/10.1...
University of Derby: 'University embarks on ground-breaking long Covid research project'
'The £1.25 million trial, which is the first of its kind in the UK, is exploring whether anti-viral medications can be used as an effective treatment option...'
www.marketingderby.co.uk/news/univers...
#LongCovid
@profmarkfaghy.bsky.social
@lindsayskipper.bsky.social
@sarahbarleymc.bsky.social
@longcovidadvoc.com
@mikster-derby.bsky.social
@michaeltikus.bsky.social
Access has been a “postcode lottery”, says @profmarkfaghy.bsky.social, an associate professor in respiratory physiology at @derbyuni.bsky.social
and policy advisor for @longcovidkids.bsky.social
He adds that children and young people are at a “disadvantage from the outset”.
An insight into our #LongCovid #research at the @DerbyUni
www.youtube.com/watch?v=pSwH...
Thank you @profmarkfaghy.bsky.social and your brilliant team 🙌
You might be interested in this, @jonathandaviesmp.bsky.social
#LongCovid #Derbyshire
More than happy to chat @jonathandaviesmp.bsky.social 🙏🏼
More media coverage of our #LongCovid research..
Thanks to Ryan for his time and energy in helping with this piece!
www.bbc.co.uk/news/article...
Please if you haven't already consider signing this petition to urge important investment in paediatric research in #longcovid
Without research, we cannot progress the mechanistic knowledge needed to develop diagnostic tests and treatments!
you.38degrees.org.uk/petitions/in...
Scientists are investigating whether anti-viral drugs could provide an effective treatment for LongCovid
“It is vital research for the people who are living with LongCovid now but also the people who will go on to develop LC in the future” @profmarkfaghy.bsky.social
t.co/kfLzV0B0fy
Ondine was a big voice and a strong advocate for #Longcovid and will be sorely missed by everyone.
I shared many lovely moments with Ondine as part of our involvement in the
@covidinquiryuk
I am gutted and lost for words!
We will continue to advocate with Ondine looking down!
Here is our piece that was featured on @itvnews.bsky.social yesterday, which talks about #longcovid research.
www.itv.com/news/2025-03...
What a fine piece of academic literature this is from Amy Proal @resiapretorius.bsky.social and others:
www.thelancet.com/journals/lan...
Science overload that paves the way for the development of future diagnostic investigations and potential treatments for LC!
Decided to get back on the socials after a short break due to personal issues where my time and attention was needed elsewhere.. we've still been working hard but just not public facing but I'm back and we have some important updates and information to share over the course of the next few weeks!
Apologies Maureen. This was my error, we have included alt text on previous posts.
A sign displaying the words merry Christmas with a small Christmas tree.
Thank you to everyone who has contributed to and engaged with the #12waysofERASE
This initiative was led by our wonderful PPIE team and we are forever grateful for them and the work they do. The impact we are having is because of them!!
We will not give up!
And for those of us in the team living with this truly life-altering disease, we will always know just how important it is that some people never give up on us.
The team is full of very determined (some would say stubborn) people.
We will keep having uncomfortable conversations and keep mentioning the elephant in the room - which is that COVID-19 has done great harm to many people and continues to do so.
#12waysofERASE
Day 12
We have and continue to have knockbacks as a team… funding refusals, paper rejections and many more!
But we are trying to research a condition which some of the world is trying to pretend does not exist and in a life where infections are still spreading in great volumes.