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Posts by Sarah Willey

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Jack Laidlaw

Jack Laidlaw

SPG4 is a rare neurodegenerative disease that causes progressive muscle stiffness and leg weakness.

“We will do anything to get this cure for Jack.“ - Anna Laidlaw

Jack Laidlaw’s parents joined the #RareDiseasesRealStories #podcast: direc.to/mPv1 🎧

#RareDiseases @blugenesfdn.bsky.social

1 year ago 4 1 0 0
Jennifer Siedman and Blyth Taylor Lord

Jennifer Siedman and Blyth Taylor Lord

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Graphic showing images of kids with rare diseases and their families says Rare Diseases, Real Stories: A UMass Chan Medical School podcast. All episodes streaming now.

Through the Courageous Parents Network, Jennifer Siedman and Blyth Taylor Lord support and empower parents whose children are diagnosed with rare diseases. Their stories are part of the #RareDiseasesRealStories #podcast series: direc.to/mNfv 🎧

#RareDiseases @courageousparentsnetwork.org

1 year ago 2 1 0 0
Preview
National Academy of Sciences President Marcia McNutt to deliver UMass Chan Commencement address on June 1 UMass Chan will celebrate the Classes of 2025 at Commencement on Sunday, June 1, and recognize four inspiring individuals with honorary degrees.

Marcia McNutt, PhD, president of the National Academy of Sciences, will address UMass Chan Medical School’s Classes of 2025 June 1. Dr. McNutt, Majid Jafar, Lynn Barghout Jafar & Carolyn Clancy, MD’79, will receive honorary degrees: direc.to/mNzU #UMassChan2025 @nasonline.org @nationalacademies.org

1 year ago 2 1 0 0
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Rare Diseases, Real Stories Science Podcast · 7 Episodes · Series

Why is it important to invest in scientific research? Listen to this podcast series. #RareDiseasesRealStories by @umasschan.bsky.social. podcasts.apple.com/us/podcast/r... #RareDiseaseDay #podcast

1 year ago 5 0 0 0
Video

Coming Feb. 10: Rare Diseases, Real Stories, a special podcast series that celebrates families transforming the world of rare diseases. Through their stories, you’ll learn about research at UMass Chan: direc.to/mta3

#RareDiseases #podcast #RareDiseasesRealStories #RareDiseaseMonth

1 year ago 8 2 0 0