Behind her is the Long Covid Support Banner. A collective tapestry created last year for Long Covid Awareness Day, made up of contributions from people living with Long Covid and those who care for them.
Maddy Corper shares her experience of how healthcare services struggled to deal with her Long Covid, and how the Long Covid Support groups have helped her.
#LongCovid #LongCovidAwareness #LongCovidSupport
Behind Maddy is the Long Covid Support Banner. A collective tapestry created last year for Long Covid Awareness Day, made up of contributions from people living with Long Covid and those who care for them.
Maddy Corper shares her experience of life before Long Covid, and how the illness has impacted her life.
Find us on Facebook - we have a general Long Covid Support Group, a Men's Support Group and a Carers' Support Group.
#LongCovid #LongCovidAwareness #LongCovidSupport
Alan Chambers, Long Covid Support volunteer, shares his experience setting up the Long Covid Support Men's Facebook Group.
Find us on Facebook - we have a general Long Covid Support Group, a Men's Support Group and a Support Group for Carers.
#LongCovid #LongCovidSupport #LongCovidAwareness
Accessible venue | Online access available
Register here: tinyurl.com/Peer-Support...
#LongCovid #LongCovidSupport #PeerSupport
Join us for our monthly In-Person Long Covid Support Group in Birmingham, UK.
This is a free session for people with Long Covid, and their carers, to connect and support each other.
📅 Friday 24 April 2026
⏰️ 11am to 12pm
📍 Sense TouchBase, Selly Oak, B29 6NA
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Photograph of four people sat at the edge of a large wooden table having a meeting. Behind them are large windows with blinds. The four people are Jo Platt MP and three people from Long Covid Support. On the table are various documents.
The APPG on Long Covid held a successful AGM on 24th March 2026. It has been registered and is good to go for another year!
Plans were discussed for upcoming meetings, and minutes from the meeting will be available on our website soon.
@joplatt.bsky.social
@nigelrothband.bsky.social
If you or a member of your community is feeling inspired to join the campaign, don't forget we have a comprehensive fundraising guide available, which you can find here: www.longcovid.org/get-involved...
📧 You can email us at fundraise@longcovid.org to hear more about the charity and get involved
To read more about Emily's experience with Long Covid, and to watch a more in depth video of Emily bravely sharing her story, head to the Just Giving page linked here: www.justgiving.com/page/emily-m...
Please join us in sending your support to Emily, and wishing Kate and Martin luck🏃♀️➡️
Our #ForThoseWhoCant fundraising champion of the week is Emily Morrison. Emily has been deeply impacted by Long Covid and her sister Kate and her partner Martin will be running the Zurich Marathon, this Sunday, to raise awareness and donations for Long Covid Support.
Behind her is the Long Covid Support Banner. A collective tapestry created last year for Long Covid Awareness Day, made up of contributions from people living with Long Covid and those who care for them.
Jo Dainow, Founding Member and Trustee of Long Covid Support, wants to see better funding, greater awareness and more attention from policymakers for Long Covid patients.
#LongCovid #LongCovidAwareness #LongCovidSupport
Behind her is the Long Covid Support Banner. A collective tapestry created last year for Long Covid Awareness Day, made up of contributions from people living with Long Covid and those who care for them.
Jo Dainow, Founding Member and Trustee of Long Covid Support, shares the story of how the charity was founded and what it's focus is now.
#LongCovid #LongCovidAwareness #LongCovidSupport
If you are able, you can get involved by writing to your MP about joining the All Party Parliamentary Group on Long Covid, the closure of Long Covid clinics and the need for investment in research for Long Covid. A template letter is available on our website, link here: shorturl.at/qDd2K
Darren Parkinson spoke to BBC Radio Leeds about his experience living with Long Covid since 2021 and expressed his disappointment that there still isn't the investment in research needed to find treatments.
#LongCovid #LongCovidAwareness #LongCovidSupport #BBCNews
Please keep sharing information and resources to help keep raising awareness of Long Covid this month!
#LongCovid #LongCovidAwarenessMonth #EveryHeartbeatCounts
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It's Long Covid Awareness month until the end of March - there's still time to:
❤️🩹 Donate to our £6 for 6 years fundraiser: www.justgiving.com/campaign/lon...
✒️ Write to your MP asking them to ensure Long Covid services are retained across the country: docs.google.com/document/d/1...
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Nessa says: "I asked my support group to share words that describe living with this illness.
Over 300 words came in, and the larger the word on the wordclouds, the more often it was said.
It’s a powerful reminder that so many people are living with these experiences every day. ❤️ "
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These beautiful wordclouds were created by a member of our community, Nessa, who has kindly shared them with us for #LongCovidAwarenessMonth to help others understand a little more about what life with Long Covid can be like. 💙
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Six years on, too many people are still without the care and support they need. We are calling for urgent action to address these ongoing failures.
Read our full response: www.longcovid.org/impact/news/...
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Graphic with the heading “COVID-19 Inquiry” and subheading “Long Covid Groups Respond to Inquiry Report on Healthcare Systems,” with Long Covid Support logo.
Text slide stating: “Today’s Module 3 report confirms that there were widespread failures in healthcare and an inadequate response to Long Covid across all four UK nations.”
Slide titled “What did the report say?” followed by bullet points outlining findings: healthcare systems were unprepared for long-term post-viral conditions; most Long Covid patients could not access treatment; GPs lacked support to diagnose or manage the condition; many healthcare workers were exposed to risk, leading to loss of lives and livelihoods.
Quote slide featuring statement: “The Inquiry’s findings lay bare how badly people with Long Covid were let down during the early pandemic. Six years on, many still cannot access diagnosis, treatment and support. We must now build a healthcare system that properly responds to this condition.” Attributed to Nigel Rothband, Chair of Long Covid Support.
Today’s Covid-19 Inquiry Module 3 report laid bare serious failures in healthcare and in the response to Long Covid.
#LongCovid #CovidInquiry
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For Long Covid Awareness Day and this year’s theme, Every Heartbeat Counts, cardiology nurse Nicola Williams shares what may be happening and what she sees in her clinic.
🔗 Read the blog: www.longcovid.org/impact/news/...
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#LongCovidAwarenessDay #LongCovid #EveryHeartbeatCounts
❤️🩹 If you are living with Long Covid, you may know how unsettling heart symptoms can be.
Many people living with Long Covid experience palpitations, dizziness, breathlessness, or a racing heart.
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On the removal of the ring-fence fund for Long Covid services, and the return to treatment of patients by GPs or general fatigue clinics, Long Covid Support's Margaret O'Hara commented that it is "a disastrous way to run a service".
Think Global Health has reported on the closure of Long Covid clinics across the country despite millions still living with Long Covid.
🔗 Read the full article here: www.thinkglobalhealth.org/article/engl...
#LongCovidSupport #LongCovid #LongCovidClinics #LongCovid Awareness
2/2 Written by Matt Alton, this piece reflects on illness, care and interdependence, capturing both the losses Long Covid brings and the creativity and connection that can grow alongside it. A huge thank you to Naomi for sharing your story.
🔗 Read the full piece: www.longcovid.org/impact/news/...
Portrait of Naomi outdoors in a garden setting, with long dark hair and wearing a green top, surrounded by greenery and sunlight.
1/2 ✨💛 Our Long Covid Stories series continues with Naomi's story.
"Friends have been keen to underline that our relationship isn't one of dependence, but of interdependence."
