🎯Objectif : comprendre ses limites pour mieux se protéger
Dans le #CovidLong, écouter son corps fait partie intégrante du soin.
#ApresJ20
#LongCovidHeartBeats
#LongCovidAwareness
#EveryHeartbeatCounts
@lcawarenessint.bsky.social
Dans le #CovidLong,
👉 s’adapter, c’est se préserver
#ApresJ20
#CovidLong
#LongCovidHeartBeats
#LongCovidAwareness
#EveryHeartbeatCounts
Please keep sharing information and resources to help keep raising awareness of Long Covid this month!
#LongCovid #LongCovidAwarenessMonth #EveryHeartbeatCounts
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❓Did you know that…?
Children can also experience palpitations following Covid, sometimes accompanied by fatigue or difficulties at school.
#LongCovid
#LongCovidAwareness #ApresJ20
#LongCovidKids #EveryHeartbeatCounts #LongCovidHeartBeats @lcawarenessint.bsky.social
For Long Covid Awareness Day and this year’s theme, Every Heartbeat Counts, cardiology nurse Nicola Williams shares what may be happening and what she sees in her clinic.
🔗 Read the blog: www.longcovid.org/impact/news/...
2/2
#LongCovidAwarenessDay #LongCovid #EveryHeartbeatCounts
📄Demain : Comment observer son cœur au quotidien dans le #CovidLong.
#ApresJ20
#LongCovidHeartBeats
#LongCovidAwareness
#EveryHeartbeatCounts
@associationcle.bsky.social
Le #CovidLong touche des millions de personnes.
Informer, reconnaître les symptômes et écouter son corps est essentiel.
Partagez pour aider à sensibiliser.
#CovidLong #LongCovidHeartBeats #LongCovidAwareness
#ApresJ20 #EveryHeartbeatCounts #LongCovidAwarenessDay
Together, we can amplify the call for answers, care, and research for #LongCovid.
Longcovidsos.org/researchfunding
#longcovid #longcovidawarenessday #everyheartbeatcounts
Side by side image. On the left a person wearing a red ski jacket, black helmet, and goggles stands on skis at the top of a snowy mountain slope with their arms raised, holding ski poles. Snow-covered mountains stretch across the background under dramatic clouds with sunlight illuminating the peaks. On the right a woman with blonde hair tied back, wearing sunglasses, a pink cardigan, blue cropped trousers sits on a mobility scooter. Her hands are holding the handlebars. There are grey railings, trees and water in the background.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
/4
Millions of people are still waiting for answers, treatments and a path to recovery. Progress depends on sustained research.
Fund Long Covid research for the answers.
Longcovidsos.org/research
#longcovidawareness #fundlongcovidresearch
#everyheartbeatcounts
Side-by-side image. On the left, a woman with dark curly hair exercises outdoors wearing a blue-grey crop top and grey leggings. She holds a small weight in each hand, lifting one with her right arm bent at the elbow while her left arm rests by her side. She stands next to a white wall, with exposed brick and red railings behind her. On the right, a partially completed crocheted piece in purple, blue, and cream is draped over a black mannequin. The chunky yarn forms textured horizontal stripes, with a peach-coloured crochet hook still attached to the working yarn. Loose strands hang from the piece, and a tiled wall is visible in the background.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
3/
Two contrasting images illustrating changes in health and physical ability. The top image shows a hiker from behind walking along a forest trail while carrying a large backpack with camping gear attached. Overlaid text reads: “Hiking the John Muir Trail for 7 days with a 50lb+ pack at elevation 10k–12k feet.” The setting is a sunny woodland area with trees, rocks, and a small stream. The bottom image shows a person lying on the floor at work with their legs resting on a fluffy white chair, wearing burgundy trousers and sandals, in an office space with shelves and equipment nearby. Overlaid text reads: “Laying on the floor at work to get my HR down, so I can complete 2 hours of work
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
2/
Key text in the middle: What can we do to prevent Long Covid? Top: Image: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) + text “Greens Against Covid”. #LongCovidAwarenessDay. The Long Covid Awareness Day ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
Our members highlight key protections:
#CleanAir - #ventilation #filtration , #FFP3 #RespiratorMasks - the correct standard for #airborne viruses. The right to #mask in all public spaces. Masking in all #Healthcare.
#LongCovidAwarenessDay #LongCovid #EveryHeartbeatCounts #LongCovidStandUp
Key text in the middle: What is the Green Party Covid and Long Covid Policy offering those with Long Covid that other parties aren’t? Top: Image: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) + text “Greens Against Covid”. #LongCovidAwarenessDay. The Long Covid Awareness Day ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
What is the @greenparty.org.uk policy offering those with Long Covid that other parties aren’t?
- research
- access to better treatments
- prevention
- following the science
- hope not abandonment #LongCovidAwarenessDay #LongCovid #EveryHeartbeatCounts #LongCovidStandUp #fundlongcovidresearch
Millions are still waiting for answers, treatments and a path to recovery. Progress depends on sustained research.
Fund Long Covid research for the answers.
Longcovidsos.org/researchfunding
#longcovidawareness #fundlongcovidresearch
#everyheartbeatcounts
Key text: “My thoughts are with everyone whose life has been affected by Long Covid. The government must do more to address Long Covid, and act more widely to prevent further pandemics. That means supporting more research into Long Covid and ensuring those living with the illness can access support they need, as well as implementing the recommendations of the Covid Inquiry and investing much more into our NHS and pandemic preparedness.” - Ellie Chowns MP. Sidebar Images: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) . Photo of Ellie in a teal jacket and white blouse smiling against a background of a hedge. The Long Covid Awareness Day ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. #LongCovidAwarenessDay. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
Thanks @elliechowns.bsky.social . #LongCovid sufferers are some of the most #marginalised in our society. @greenparty.org.uk is the only party with policy on this. @zackpolanski.bsky.social @carladenyer.bsky.social @nataliegreenpeer.bsky.social #LongCovidAwarenessDay #EveryHeartbeatCounts
Chaque personne touchée pourra présenter un ensemble plus ou moins fortement symptomatique de ces phénotypes, qui très souvent s'entrecroisent.
Chaque présentation compte,
#EveryHeartbeatCounts
COVID is still here. Every infection is a roll of the dice & I wouldn't wish this on my worst enemy. If it happened to me, it could happen to you or someone you care about. Clean air is a human right!
#LCAD26
#LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
On 22nd March it will be 6 years since the infection that changed my life forever.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Before Covid I never thought about my heart. Now I live with IST & POTS and my heartbeat makes itself known & impossible to ignore! I use my heart rate to guide how I pace and conserve energy each day.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
If I could simply stop these medications and be better, don’t you think I would?
Every tablet represents years of trial and error, symptoms that stole my independence and the fight to survive.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Yet on the rare occasions I see people from my old life I still hear things like:
“You look well.”
“Have you tried not thinking about it?”
"Have you tried not taking the meds?"
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Even this is missing many of the medicines that help me get through the day, e.g. migraine medications, inhalers, supplements etc
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
This collage shows just one day of tablets needed to manage the conditions I developed after my Covid infection.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Now my days are spent resting in bed, carefully managing energy, symptoms and medications.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Before Covid I was an occupational therapist specialising in neurorehabilitation with an active life and career ahead of me. I wasn't on any medications!
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
A collage of eight photos arranged in a grid. In each image, a hand is held open with different groups of tablets, capsules, and supplements resting in the palm. The pills vary in size, shape, and colour, including white, cream, pink, blue, and black tablets, as well as clear and white capsules. Some photos show just a few pills while others show larger mixed groups. The background appears to be a pale patterned bedsheet. The sequence of images illustrates multiple sets of medication taken throughout the day, highlighting the large number of tablets required to manage chronic illness.
Every tablet in this photo tells a story about what Long Covid has taken from my life.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
A muted grey background gradiating from light to dark with 2 Long Covid SOS liferings faintly in the background. Long Covid SOS logo in top left corner. A graphic of a teal envelope with the text “A call for sustained funding for Long Covid research Dear MP I am writing as your constituent to ask for your support in securing sustained funding for research into Long Covid. Long Covid has not gone away. “ on white paper half out of the envelope. Dark green text ranged left at the bottom reads “Stop scrolling.Take one minute. 1. Read our open letter 2. Use our template to write to your MP 3. Demand funding for Long Covid research”
Your voice matters.
Take one minute to write to your MP and demand urgent #LongCovid research funding.
Every message counts.
longcovidsos.org/researchfunding
Fund Long Covid Research - we need answers.
#longcovidawarenessday #fundlongcovidresearch #everyheartbeatcounts
Side-by-side images showing outdoor scenery and a painting activity. On the left, a person with curly hair walks down a grassy hillside path with a black dog on a lead, overlooking a wide green valley with fields, trees, and scattered buildings in the distance. They wear dark clothing with a red jacket tied around their waist. On the right, a tabletop art setup shows a small watercolour palette, a mixing tray with diluted paint, cups of water, and a sheet of paper with a finished watercolour painting of a sailboat on calm water at sunset, with warm orange light reflecting across the waves and distant hills on the horizon.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
Key text in the middle: How serious a problem is Long Covid? How bad can it be? Top: Image: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) + text “Greens Against Covid”. #LongCovidAwarenessDay. The Long Covid Awareness Day ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
Key text in the middle: “As a healthy 39 year old woman I was reassured that Covid was not a risk to me. What no one ever mentions is that it can make you chronically ill & wheelchair bound. The Greens are the ONLY party with a long covid policy.” Anne-Marie. Top: Image: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) + text “Greens Against Covid”. #LongCovidAwarenessDay. The Long Covid Awareness Day ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
Key text in the middle: “I’m a witness to lives devastated by Long Covid. Covid remains ndiscriminate, regardless of your passions and life missions. While Covid’s bodily damage is often quiet until it’s too late, the Green Party’s actions won’t be. This party’s Long Covid policy remains the only one in the running.” Georgia Leach. Top: Image: Greens Against Covid logo (a picture of the Covid virus in white with a X through it surrounded by the Green Party of England and Wales petals) + text “Greens Against Covid”. #LongCovidAwarenessDay. The Long Covid Awareness Day ribbon in teal and grey. Background colours: Fair Green and shades of teal, green and grey. Imprint: Promoted by Covid and Long Covid Campaign Working Group (Green Party), c/o PO Box 78066, London SE16 9GQ.
On #LongCovidAwarenessDay, We recognise that in its seventh year, Covid continues to devastate lives.
#LongCovid #EveryHeartbeatCounts #LongCovidStandUp #fundlongcovidresearch @nataliegreenpeer.bsky.social @carladenyer.bsky.social @zackpolanski.bsky.social @elliechowns.bsky.social
