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Hashtag
#LCAD26
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Side by side image. On the left a person wearing a red ski jacket, black helmet, and goggles stands on skis at the top of a snowy mountain slope with their arms raised, holding ski poles. Snow-covered mountains stretch across the background under dramatic clouds with sunlight illuminating the peaks. On the right a woman with blonde hair tied back, wearing sunglasses, a pink cardigan, blue cropped trousers sits on a mobility scooter. Her hands are holding the handlebars. There are grey railings, trees and water in the background.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Side-by-side image. On the left, a woman with dark curly hair exercises outdoors wearing a blue-grey crop top and grey leggings. She holds a small weight in each hand, lifting one with her right arm bent at the elbow while her left arm rests by her side. She stands next to a white wall, with exposed brick and red railings behind her. On the right, a partially completed crocheted piece in purple, blue, and cream is draped over a black mannequin. The chunky yarn forms textured horizontal stripes, with a peach-coloured crochet hook still attached to the working yarn. Loose strands hang from the piece, and a tiled wall is visible in the background.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Two contrasting images illustrating changes in health and physical ability. The top image shows a hiker from behind walking along a forest trail while carrying a large backpack with camping gear attached. Overlaid text reads: “Hiking the John Muir Trail for 7 days with a 50lb+ pack at elevation 10k–12k feet.” The setting is a sunny woodland area with trees, rocks, and a small stream. The bottom image shows a person lying on the floor at work with their legs resting on a fluffy white chair, wearing burgundy trousers and sandals, in an office space with shelves and equipment nearby. Overlaid text reads: “Laying on the floor at work to get my HR down, so I can complete 2 hours of work
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Six years on, I am so grateful that I am still able to walk, because so many can't.
#LongCovid #LongCovidAwarenessDay #LCAD26
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COVID is still here. Every infection is a roll of the dice & I wouldn't wish this on my worst enemy. If it happened to me, it could happen to you or someone you care about. Clean air is a human right!
#LCAD26
#LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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On 22nd March it will be 6 years since the infection that changed my life forever.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Before Covid I never thought about my heart. Now I live with IST & POTS and my heartbeat makes itself known & impossible to ignore! I use my heart rate to guide how I pace and conserve energy each day.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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If I could simply stop these medications and be better, don’t you think I would?
Every tablet represents years of trial and error, symptoms that stole my independence and the fight to survive.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Yet on the rare occasions I see people from my old life I still hear things like:
“You look well.”
“Have you tried not thinking about it?”
"Have you tried not taking the meds?"
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Even this is missing many of the medicines that help me get through the day, e.g. migraine medications, inhalers, supplements etc
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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This collage shows just one day of tablets needed to manage the conditions I developed after my Covid infection.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Now my days are spent resting in bed, carefully managing energy, symptoms and medications.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Before Covid I was an occupational therapist specialising in neurorehabilitation with an active life and career ahead of me. I wasn't on any medications!
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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A collage of eight photos arranged in a grid. In each image, a hand is held open with different groups of tablets, capsules, and supplements resting in the palm. The pills vary in size, shape, and colour, including white, cream, pink, blue, and black tablets, as well as clear and white capsules. Some photos show just a few pills while others show larger mixed groups. The background appears to be a pale patterned bedsheet. The sequence of images illustrates multiple sets of medication taken throughout the day, highlighting the large number of tablets required to manage chronic illness.
Every tablet in this photo tells a story about what Long Covid has taken from my life.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Side-by-side images showing outdoor scenery and a painting activity. On the left, a person with curly hair walks down a grassy hillside path with a black dog on a lead, overlooking a wide green valley with fields, trees, and scattered buildings in the distance. They wear dark clothing with a red jacket tied around their waist. On the right, a tabletop art setup shows a small watercolour palette, a mixing tray with diluted paint, cups of water, and a sheet of paper with a finished watercolour painting of a sailboat on calm water at sunset, with warm orange light reflecting across the waves and distant hills on the horizon.
Before their Covid infection, our members were free to choose how they used each heartbeat.
Now, #LongCovid limits what they can use each beat for.
The change from before to after is obvious
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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This Long Covid Awareness Day, try to hear people's experience, and don't assume it can never affect you. So many people, often young and fit, have had their worlds turned upside down in the last 6 years. Each infection is a roll of the dice. How lucky do you feel?
#LongCOVIDAwarenessDay #LCAD26
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Before infection, our members chose how to use each heartbeat.
Now #LongCovid limits what each beat can be used for.
Turn your phone landscape for the best viewing experience.
#LCAD26 #LongCOVIDAwarenessDay #LongCovidHeartbeats #EveryHeartbeatCounts
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Muted soft grey background radiating from dark to lighter with 2 Long Covid SOS life rings shown faintly. Long Covid SOS logo top centre with dark green Open Letter text underneath reads “Open letter: Patient-led charity, Long Covid SOS is calling for sustained funding for Long Covid research” in bold. “Six years after the start of the pandemic, people across the UK are still living with Long Covid. Many of your constituents remain unable to work, rely on ongoing NHS care, and face financial insecurity and uncertainty about their future. Long Covid has not disappeared. For many families it continues to reshape daily life, while also affecting workforce participation across the country.”
#LONGCOVIDAWARENESSDAY
Stop scrolling
1️⃣ Read our open letter
2️⃣ Use our template to write to your MP
3️⃣ Demand funding for #LongCovid research
Six years after the start of the pandemic millions are still living with Long Covid.
On #LCAD26 we ask UK policymakers for sustained funding for LC research
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Billboard in Melbourne - Sunflower, wrapped in teal ribbon with the words "Long COVID Awareness Day". Text: This March 15th, Help make the Invisible, Visible - Proudly supported by Pandemic Resistance Inc - pandemicresistance.org
Artwork - Sunflower, wrapped in teal ribbon with the words "Long COVID Awareness Day". Text: This March 15th, Help make the Invisible, Visible - Proudly supported by Pandemic Resistance Inc - pandemicresistance.org
Tomorrow is Long COVID Awareness Day.
Long COVID is affecting millions, but too often it remains unseen and unspoken.
Help make the invisible visible.
How will you mark the day?
Share your ideas, actions, or events below.
#LongCovidAwarenessDay #LCAD26
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