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💛 Les cœurs ont battu. Partout.

Vos mots, vos histoires, vos vies avec le #CovidLong.

Cette vidéo, c’est la vôtre.
Un mouvement pour rendre visible l’invisible.

🫶Merci à toutes celles et ceux qui ont participé.

#ApresJ20
#LongCovidAwarenessDay #LongCovidHeartBeats @lcawarenessint.bsky.social

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International Long Covid Awareness 
Today is the last day of International Long Covid Awareness Month, but for millions of people suffering from Long Covid, this is not the end of anything. It is ongoing, daily, and life-altering.

Long Covid continues to impact peoples’ livelihoods and futures, yet the global response still falls incredibly short. Governments and healthcare systems must do more! 

We saw many buildings/landmarks lit teal for Long Covid, politicians speaking about Long Covid, proclamations, resolutions, and demonstrations. Awareness is important and creates a base of knowledge we hope continues to spread. What we need to see further is real and immediate action from our governments, health agencies, researchers, and medical fields!

We need more than words. We urgently need prevention. We need care. We need tests. We need treatments. We need solutions!

Long Covid must be recognized for what it is: an international public health emergency that needs dedicated funding and support. 

Grateful to all the Long Covid patients who have worked so hard to raise awareness this month. Your voices and efforts matter so much!
A heartfelt thank you as well to the allies, caregivers, and supporters who stand beside this community, we appreciate you more than words can express!

Long Covid awareness is every single day. For some, that means using whatever limited energy we have to push through the year to keep working on awareness projects behind the scenes or continuing to raise awareness in our daily lives, all while managing appointments and getting through each day with our symptoms.

We’re starting planning for next year now, so please start sharing your ideas and suggestions for 2027 International Long Covid Awareness Day/Week/Month!

Email your ideas to:
LongCovidAwareness@gmail.com

Solidarity

International Long Covid Awareness Today is the last day of International Long Covid Awareness Month, but for millions of people suffering from Long Covid, this is not the end of anything. It is ongoing, daily, and life-altering. Long Covid continues to impact peoples’ livelihoods and futures, yet the global response still falls incredibly short. Governments and healthcare systems must do more! We saw many buildings/landmarks lit teal for Long Covid, politicians speaking about Long Covid, proclamations, resolutions, and demonstrations. Awareness is important and creates a base of knowledge we hope continues to spread. What we need to see further is real and immediate action from our governments, health agencies, researchers, and medical fields! We need more than words. We urgently need prevention. We need care. We need tests. We need treatments. We need solutions! Long Covid must be recognized for what it is: an international public health emergency that needs dedicated funding and support. Grateful to all the Long Covid patients who have worked so hard to raise awareness this month. Your voices and efforts matter so much! A heartfelt thank you as well to the allies, caregivers, and supporters who stand beside this community, we appreciate you more than words can express! Long Covid awareness is every single day. For some, that means using whatever limited energy we have to push through the year to keep working on awareness projects behind the scenes or continuing to raise awareness in our daily lives, all while managing appointments and getting through each day with our symptoms. We’re starting planning for next year now, so please start sharing your ideas and suggestions for 2027 International Long Covid Awareness Day/Week/Month! Email your ideas to: LongCovidAwareness@gmail.com Solidarity

AWARENESS➡️ACTION

#LongCovid #CureLongCovid
#LongCovidAwareness
#LongCovidKids #Mask #COVID
#LongCovidHeartbeats
#OneInfectionAway
#LitForLongCovid
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
#LongCovidMakesUsOne

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#LongCovidAwarenessDay #LongCovidAwarenessMonth #LongCovidHeartBeats @info.gouv.fr @lcawarenessint.bsky.social @santepubliquefrance.fr @ameli.fr

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Medscape®
COVID long : patients et recherche scientifique en déshérence
Fabienne Rigal
26 mars 2026
La journée internationale de sensibilisation au
Covid long, du 15 mars dernier, a été l'occasion de rappeler que cette forme de Covid a toujours du mal à être reconnue par les médecins et peu investiguée en termes de recherche.
L'association #ApresJ20 Covid Long France dénonce un désengagement politique.

Medscape® COVID long : patients et recherche scientifique en déshérence Fabienne Rigal 26 mars 2026 La journée internationale de sensibilisation au Covid long, du 15 mars dernier, a été l'occasion de rappeler que cette forme de Covid a toujours du mal à être reconnue par les médecins et peu investiguée en termes de recherche. L'association #ApresJ20 Covid Long France dénonce un désengagement politique.

🧵#CovidLong : patients et recherche en déshérence

À l’occasion du #LongCovidAwarenessDay , un constat inquiétant :
➡️ Une maladie toujours mal reconnue
➡️ Une recherche qui ralentit
➡️ Des patients laissés de côté

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#LongCovidAwarenessDay
#LongCovidAwarenessMonth
#LongCovidAwareness
#LongCovidHeartBeats
#ApresJ20 #CovidLong

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Children’s symptoms look different depending on their age, so @cancovsoc.bsky.social is sharing a list of signs & symptoms of different age groups, published by leading researchers in JAMA Pediatrics.
#LongCovid #ILCAD2026 #LongCovidAwarenessDay #LongCovidAwarenessMonth #March #PediatricLongCovid

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#CovidLong #LongCovid
#SantéPublique
#InformationSanté #ApresJ20
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
@info.gouv.fr
@santepubliquefrance.fr @anrs-mie.bsky.social @whoeurope.bsky.social
@institutpasteur.bsky.social
@who.int

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#CovidLong #LongCovid
#SantéPublique
#InformationSanté #ApresJ20
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
@info.gouv.fr
@santepubliquefrance.fr @anrs-mie.bsky.social @whoeurope.bsky.social
@institutpasteur.bsky.social
@who.int

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Covid: March 19, 2026 | Threat Model Get more from Threat Model on Patreon

📣 Mar. 19's #ThreatModelCovid: 🌍 #LongCovidAwarenessDay pics, NZ rejects WHO pandemic rule changes, & more 🦠

Please share & support 𝙏𝙝𝙧𝙚𝙖𝙩 𝙈𝙤𝙙𝙚𝙡 newsletters (𝘛𝘶𝘦𝘴𝘥𝘢𝘺𝘴 #infosec / 𝘛𝘩𝘶𝘳𝘴𝘥𝘢𝘺𝘴 #covid) & their maker, investigative journalist @violetblue.bsky.social

www.patreon.com/posts/covid-...

𝟷/𝟹

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Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Going. Millions of people around the world came together for Long COVID Awareness Day 2026—and what we witnessed was powerful. Patients and caregivers shared their lived experiences. Researchers and clinicia...

Millions Showed Up Globally for Long COVID Awareness Day! Now We Keep the Momentum Moving Forward!

Check out today’s email reviewing #LongCOVIDAwarenessDay actions and continuing actions throughout the month and beyond. ⬇️

longhauler-advocacy.org/so/2cPq6SQYQ...

#LongCOVIDAwarenessDay
#LongCOVID

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#CovidLong #LongCovid
#SantéPublique
#InformationSanté #ApresJ20
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
@info.gouv.fr
@santepubliquefrance.fr @anrs-mie.bsky.social @whoeurope.bsky.social
@institutpasteur.bsky.social
@who.int

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Long Covid Advocacy (@longcovidadvoc.com) Fantastic interview with Dr Rupert Higham from the Institute of Education at UCL and Prof David Putrino 'On Medical Education for Long Covid, ME and IACI' It is divided into short named chapters for…

Link to our talk 'On Medical Education' with Prof David Putrino @putrinolab.bsky.social and some of the clips we shared on #LongCovidAwarenessDay #medsky
bsky.app/profile/long...

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Long Covid Support To learn more visit LongCovid.org

For Long Covid Awareness Day and this year’s theme, Every Heartbeat Counts, cardiology nurse Nicola Williams shares what may be happening and what she sees in her clinic.

🔗 Read the blog: www.longcovid.org/impact/news/...

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#LongCovidAwarenessDay #LongCovid #EveryHeartbeatCounts

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„Viele Ärzt*innen kennen die Krankheit nicht, behandeln sie falsch, man wird psychologisiert.“ Nach dem #longcovidawarenessday haben wir mit Helmut Frahs gesprochen, der seit 4 Jahren seine an #MECFS erkrankte Tochter pflegt, die mit jetzt 14 täglich 24 h im Bett bleiben muss. rdl.de/beitrag/von-...

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#CovidLong #LongCovid
#SantéPublique
#InformationSanté #ApresJ20
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
@info.gouv.fr
@santepubliquefrance.fr @anrs-mie.bsky.social
@institutpasteur.bsky.social
@who.int @whoeurope.bsky.social

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Ressources | ApresJ20 Parce qu'un engagement se partage, retrouvez ici les documents utiles, les affiches et visuels que l'association met à votre disposition. N'hésitez pas à les télécharger, à les utiliser et à les parta...

👉 Vous pouvez toujours participer :

💛Téléchargez un cœur, imprimez-le, écrivez votre histoire, collez-le dans votre ville (ou dans un lieu symbolique) et partagez la photo avec :
#LongCovidAwarenessDay #LongCovidHeartBeats

Visuels disponibles ici : www.apresj20.fr/ressources

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#LongCovidAwarenessDay #ILCAD2026 #CanadianCovidSociety @cancovsoc.bsky.social #Calgary #Vancouver #Toronto #Montreal #LongCovidAwareness #LongCovidHeartbeats 💔

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Preview
Protest von ME/CFS-Betroffenen: "Man lässt Menschen im dunklen Kammerl verrecken" Tausend Menschen forderten vor dem Parlament in Wien bessere Versorgung der Patienten und kritisierten "willkürliche Gutachten", mit denen Betroffenen Pflegegeld verwehrt wird

Ein Bericht über den Protest zum #LongCovidAwarenessDay, wo es auch um #MECFS ging.

Bemerkenswert, wie lange manche Stakeholder weiter aggressiv den inadäquaten Status quo verteidigen.

Gewinnen tut dabei niemand.

www.derstandard.at/story/300000...

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Strange when politicians who've said nothing about Long COVID, not even on #LongCovidAwarenessDay, are congratulating themselves on their public health leadership

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« La journée internationale de sensibilisation au Covid long a eu lieu ce dimanche 15 mars. Comme Soizic, 400 millions de personnes en souffriraient dans le monde. »

#LongCovidAwarenessDay

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#CovidLong #LongCovid
#SantéPublique
#InformationSanté #ApresJ20
#LongCovidAwarenessDay
#LongCovidAwarenessMonth
@info.gouv.fr
@santepubliquefrance.fr @anrs-mie.bsky.social
@institutpasteur.bsky.social
@who.int

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Man kann es nach Jahren nicht mehr erklären, warum man zu Kindern/Erwachsenen, die um ihr Leben kämpfen, keinen Arzt nach Hause schickt

Bitte hört es euch an 🫶🙏

#MECFS
#LongCovidAwarenessMonth
#LongCovidAwarenessDay

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#Medsky🧪 #IDsky #publichealth For #LongCOVIDAwarenessDay, we’re calling out the myths.
Misconceptions about #LongCOVID still hinder care.
With the EU, @who.int co-created #LongCOVID Mythbusters with patients & experts ,pairing harmful myths with real stories.

www.who.int/europe/event...

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We need stories about avoiding infection. About stopping spread. About ending the pandemic.
#CovidIsAirborne #CovidAwarenessMonth #longcovidawareness #longcovid #covidisntover #longcovidawarenessday

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Large bold black text on white. Gothic sans-serif font. COVID IS STILL SPREADING, DISABLING, KILLING. (smaller) YOU'RE NOT THE EXCEPTION. WEAR A MASK. (then in handwritten script font) #COVIDisntOVER
#STOPtheSPREAD #NotMILD #SafeCOMMUNITY (bottom small in black) circle with line thru it and inverse colored letters for covid action network: cAn. https://covid.aktion.network

Large bold black text on white. Gothic sans-serif font. COVID IS STILL SPREADING, DISABLING, KILLING. (smaller) YOU'RE NOT THE EXCEPTION. WEAR A MASK. (then in handwritten script font) #COVIDisntOVER #STOPtheSPREAD #NotMILD #SafeCOMMUNITY (bottom small in black) circle with line thru it and inverse colored letters for covid action network: cAn. https://covid.aktion.network

Unlike most of the damaging mainstream coverage & #LongCovidAwarenessDay advocacy missing the crucial opportunity to remind the public that the pandemic is not in the past, today we continue to focus on the problem: we are all still at risk from COVID spread. #CovidIsNotOver

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Welcome @lcawarenessint.bsky.social to @longcovidriseup.bsky.social. We will keep fighting for the recognition of #LongCovid, treatments and prevention 🙏🔥

#LongCovidAwarenessDay #longcovidawarness

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#LongCovidAwarenessDay
#LCAD26
#CovidIsNotOver

Sigh.

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Square graphic with a lavender blue background. Brown text in the center reads: “The irony of Long Covid Awareness Day is that the people raising awareness are the ones who will be down for days afterward.”

In the lower left corner, an illustration shows a person lying face down on a pillow surrounded by scattered papers, suggesting exhaustion. In the lower right corner is the Long Covid Collective logo in brown with the letters “LC.” Along the bottom of the graphic is the website: www.longcovidcollective.org.

Square graphic with a lavender blue background. Brown text in the center reads: “The irony of Long Covid Awareness Day is that the people raising awareness are the ones who will be down for days afterward.” In the lower left corner, an illustration shows a person lying face down on a pillow surrounded by scattered papers, suggesting exhaustion. In the lower right corner is the Long Covid Collective logo in brown with the letters “LC.” Along the bottom of the graphic is the website: www.longcovidcollective.org.

Anyone else wiped out from raising awareness?

#longcovidawarenessday #longcovidawareness #chronicillness

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Despite the cold, people with Long COVID, doctors, and allies gathered across Canada for #LongCOVIDawarenessday

Great to see familiar faces like @robertderosa.bsky.social and Dr. Angela Cheung from @longcovidweb.bsky.social

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#LongCovid #ILCAD #covid #world #health #longcovidawarenessday

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