UPDATE: They responded. Long Covid Families secured a seat in LA County’s Long COVID workgroup. The pediatric perspective will now be in the room where decisions get made. This is why we exist.​​​​​​​​​​​​​​​​ #PediatricLongCOVID

#CanadianCovidSociety #LongCovidAwarenessMonth #ILCAD2026 #March #PediatricLongCovid #LongCovidKids #Canada

Watch the full Long Covid in Children webinar, featuring leading pediatric Long Covid physicians and researchers Dr. Rachel Gross and Dr. Alexandra B. Yonts:
covidsociety.ca/priorities/l...

#LongCovid #pediatriclongcovid #LongCovidAwareness

Parents, physicians and researchers can join the Children’s Long Covid Network Facebook group to connect and share information: www.facebook.com/groups/99369...

Disclosure: The founder of the Children’s Long Covid Network is a member of our Long Covid Committee.

#LongCovid #pediatriclongcovid
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Graphic with a computer screen showing the change.org petition titled “Demand Federal Action on Biomedical Care for Children Living with Long COVID” The French translation of this title is immediately below. Below the titles is the Children’s Long Covid Network (CLCN) logo. This includes a graphic of a highly stylized hand, palm up, in a dark teal colour. In the hand are three figures in a coral pink colour. Beside this graphic is the organization’s name and tagline, which reads: “Children’s Long Covid Network Their strength. Their journey. Our responsibility.” The French translation of this text is directly below. The computer screen sits on a background featuring a navy and teal gradient. There are blue-toned dots scattered across the background.

Last fall, the Children’s Long Covid Network launched a petition calling on the federal government to take action for children living with Long Covid. Learn more, and add your name to those calling for action: chng.it/7ZSzLXnp5n
#LongCovid #ILCAD2026 #LongCovidAwareness #pediatriclongcovid
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As this paper notes, up to 10-20% of children with a history of Covid-19 infection develop Long Covid. The symptoms vary by age groups, so it’s important for parents and caregivers to know what to watch for.

#LongCovid #ILCAD2026 #LongCovidAwareness #pediatriclongcovid
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Screenshot of JAMA Pediatrics journal article. Text reads: JAMA Pediatrics Patient Page Long COVID in Young Children, School-Aged Children, and Teens Rachel S. Gross, MD, MS; Megan Carmilani, Med; Melissa S. Stockwell, MD, MPH [links to] Author Affiliations | Article Information JAMA Pediatr Published Online: May 27, 2025 2025;179;(7):809. doi:10.1001/jamapediatrics.2025.1415

We’re wrapping up Long Covid Awareness Month with a focus on children. Today, we’re sharing this list of Long Covid symptoms in kids, published by leading researchers in JAMA Pediatrics: jamanetwork.com/journals/jam...
#LongCovid #ILCAD2026 #LongCovidAwareness #pediatriclongcovid
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Children’s symptoms look different depending on their age, so @cancovsoc.bsky.social is sharing a list of signs & symptoms of different age groups, published by leading researchers in JAMA Pediatrics.
#LongCovid #ILCAD2026 #LongCovidAwarenessDay #LongCovidAwarenessMonth #March #PediatricLongCovid

COVID During Pregnancy and Brain Development New research on COVID during pregnancy and child brain development shows mixed findings. Learn what two 2026 studies found and what it means for your child.

What does COVID during pregnancy actually mean for a baby's brain? Researchers are starting to find out. Here's what the science says, and what it doesn't.

Read more: longcovidfamilies.org/covid-during...

#PediatricLongCOVID

The irony: an article about Long COVID patients being ignored that itself ignores the estimated tens of thousands of children with Long COVID in LA County.​​​​​​​​​ #PediatricLongCOVID

#PediatricLongCovid #LongCovid
myeloid CCR6 suppression
immune dysregulation

Most families have no idea their child can develop Long COVID. They aren’t hearing it from pediatricians, schools, or public health agencies. Parents can’t advocate for their children if they don’t know there’s something to advocate for.​​​​​​​​​​​​​​​​ #PediatricLongCOVID

FREE 10-week Pediatric Long COVID training! For healthcare professionals & educators. Tuesdays 12-1pm ET, March 3-May 5. Learn best practices for kids with persistent COVID symptoms. CE credits available.

Register: discover.kennedykrieger.org/jfe/form/SV_...

#PediatricLongCOVID

Long COVID affects millions of children. The largest pediatric trial so far launches this year. There’s still a ways to go before doctors and scientists fully understand pediatric long COVID, but three upcoming clinical trials are on the horizon.

Long Covid affects millions of kids and teens — and the largest pediatric trial yet is launching this year to finally study treatments. #PediatricLongCOVID

Read more:

What Covid in Pregnancy May Mean for a Generation of Children A growing body of research shows that exposure to Covid-19 in the womb can have a subtle but lasting impact on brain development.

New research finds babies exposed to Covid in utero can show subtle brain changes and later developmental and anxiety concerns, underscoring the need for prevention, monitoring, and support for pregnant people and young kids. #PediatricLongCOVID

New JAMA Peds: food insecurity increases pediatric long COVID risk by 2.4x. Discrimination and low social support also major factors.

Study tracked 4,584 kids across 52 US sites. The connection between social adversity and prolonged illness is undeniable.

#PediatricLongCOVID

Pediatric Long COVID cannot be understood by simply adapting adult models.

Children show different symptom patterns and developmental impacts.

Research design and interpretation must reflect pediatric realities.

#PediatricLongCOVID

The data are finally catching up. Long-term follow-up shows a broad spectrum of chronic complications. #PediatricLongCovid #MISC

We spent 100+ hours inside pediatric research this year, bringing the daily reality of Long COVID into national study design. Follow this feed to stay close to the work shaping care and education for children. #PediatricLongCOVID #LongCovidFamilies

At the Long COVID International Conference today, Dr Sindhu Mohandas from Children’s Hospital Los Angeles presented new findings on why some children develop long COVID after infection while others do not.
#PediatricLongCOVID

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COVID vaccination cuts risk of long-term symptoms in teens by over a third, data suggest

Even after infection, vaccination still matters.

A new study found teens vaccinated before getting COVID were 36% less likely to develop Long COVID.

Study in Vaccine, summary via CIDRAP:

#PediatricLongCOVID

Including pediatric cancer facilities. Some children contract COVID while receiving cancer treatment and go on to develop Long COVID. Protecting them means stronger infection control everywhere care happens and family education on importance of avoiding infection.

#PediatricLongCOVID

Long Covid Is Real -- And It's Changing an Entire Generation Long Covid is affecting hundreds of thousands of kids in America, and many doctors and schools refuse to recognize their illness.

Gratitude to the families—many from our community—who shared their stories in Rolling Stone. Speaking about your child’s illness means revisiting pain and uncertainty, yet you do it so others understand. That courage changes what’s possible.

#PediatricLongCOVID

Nirmatrelvir-Ritonavir Reduces Long COVID Risk in Older Adults, Not Adolescents Vaccine Advisor In nonhospitalized patients, treatment of acute COVID-19 with nirmatrelvir-ritonavir reduced long COVID risk in older vs younger adults, supporting its use in high-risk patients to …

A new study found Paxlovid (nirmatrelvir-ritonavir) lowers the risk of Long COVID in adults over 50 — but not in teens. We still need research focused on children and how to protect them from Long COVID.

#PediatricLongCOVID #LongCOVID

Children Must Be Part of Every Long COVID Plan Long Covid Families supports those who have been affected by Post Viral Illness due to Covid-19 infection.

Six million children live with Long COVID. HHS announced new steps, but kids must be clearly included in every plan.

Here’s why pediatric research and policy cannot wait:
🔗 longcovidfamilies.org/children-mus...

#PediatricLongCOVID #LongCOVID

Long-term influence of pediatric long COVID syndrome on the visual perception and neuropsychiatric symptoms Long COVID presents with a wide range of persistent symptoms and durations following COVID-19 infection. However, data on children and adolescents remain limited. This study aims to explore visual per...

A child keeps losing their place reading, complains of headaches, struggles with memory. Teachers may see distraction, but a new study shows brain changes months after COVID. Symptoms: headaches, dizziness, attention & memory issues, mood shifts, sleep trouble. This is #pediatricLongCOVID.

RECOVER TLC Workshop Day 1 (Part 2)
Megan Carmilani joined the panel on pediatric clinical trials to highlight what families face in an LDN study:
• Kids’ bodies feel side effects more intensely
• Younger children can’t always explain what feels wrong
#PediatricLongCOVID

Long Covid Families is on the ground at the RECOVER-TLC Workshop. Over the next two days, we’ll share key updates about the national effort to find treatments for Long COVID—and why it matters for children. Stay tuned.

#PediatricLongCOVID

compartment and lower levels of anti-RBD IgG and IgA. This correlated with reduced neutralizing capacity against SARS-CoV-2.
#LongCOVIDKids #PediatricLongCOVID

🏷️ @buonsenso.bsky.social