Episode 18 - Growing Up With Long COVID: A Childhood Interrupted Podcast Episode · Covid Longhaulers Podcast · 20 February · 45m

Darya was making huge strides in recovery after her initial infection, only to have her progress seemingly reset by another COVID infection.

podcasts.apple.com/gb/podcast/e...

#longcovid #childhood #GrowingUp
#longcovidkids #longcovidfamilies

Children with tracheostomy remain at high risk for serious COVID illness. Most needed more oxygen or higher ventilator support when sick. Very few were vaccinated before admission. This group needs clear protection and strong, consistent support. #LongCovidFamilies

Source below.

“I can’t think.”
“I don’t know.”

These phrases can signal cognitive overload in some children after COVID. Thinking slows. Even simple questions feel like too much. Long Covid Families offers guidance to help you understand these symptoms.

#LongCovidFamilies #Kids

We spent 100+ hours inside pediatric research this year, bringing the daily reality of Long COVID into national study design. Follow this feed to stay close to the work shaping care and education for children. #PediatricLongCOVID #LongCovidFamilies

#PediatricLongCOVID #PediatricLongCOVIDAwareness
#LongCovidFamilies

COVID before or during pregnancy may confer 2 to 3 times the risk of miscarriage Although the risk was greater with moderate-to-severe infections, even mild cases were linked to more than double the risk.

🚨 New research highlights a serious risk: COVID before or during pregnancy may increase the risk of miscarriage by 2 to 3 times. This underscores the urgent need for infection prevention to protect maternal health. #LongCovidFamilies #InfectionPrevention

Families left disappointed. At LA’s Long COVID town hall, kids were barely mentioned. Public health departments have a duty to protect all community members—ignoring pediatric Long COVID isn’t just oversight, it’s a failure. Children deserve better. #LongCovidFamilies #PediatricHealth

Is COVID quietly sabotaging our immune systems? Experts are increasingly coalescing around the view that COVID has weakened our immune systems, leaving us vulnerable to other infections

Kids getting sicker more often. Strange waves of infections. Experts say COVID might be disrupting our immune systems — a theory called immunity theft. Dr. Kashif Pirzada says this is unlike anything he’s seen in 17 years.
#COVID #Health #Immunity #LongCovidFamilies

COVID-19 re-infection doubles risk of long COVID in kids, young adults, data reveal The second infection was also tied to a 50% or greater increase in several specific long-COVID conditions, including myocarditis and fatigue.

A new RECOVER study of 465,000+ kids finds that a second COVID-19 infection doubles the risk of long COVID in kids, teens, and young adults. Even mild reinfections carry increased risk. This underscores the need for prevention to protect youth from cumulative harm. #LongCovidFamilies

Layoffs begin at US health agencies responsible for research, tracking disease and regulating food Employees across the U.S. Department of Health and Human Services have begun receiving notices of dismissal in a major overhaul expected to ultimately lay off up to 10,000 people.

Massive HHS layoffs gut key health agencies—CDC, NIH, FDA—cutting 10,000 jobs. These agencies track disease, fund research, and certify safety measures. Kids with Long COVID will be especially harmed as public health capacity shrinks when they need it most.

#LongCovidFamilies

Families of kids with Long COVID deserve answers, care, and community. You’re not alone. We’re fighting for research, access, and recognition—every single day. Together, we are stronger. #LongCovidFamilies #PediatricLongCovid

Long COVID didn’t end when the emergency did. Millions, including children, are still sick. Research isn’t waste—it’s how we heal, protect, and move forward. We’ve always come together for public health. Let’s not stop now. #FundTheResearch #LongCovidFamilies

URGENT: Long COVID research is being canceled right now.

Children are still sick. Families are still searching for answers.

Call your representatives today and demand continued funding for Long COVID research.

Our kids can’t wait.

#LongCovidFamilies #PediatricLongCovid #FundTheResearch

Study links social inequalities to long COVID

A new study shows people from underserved communities are more likely to experience long COVID. Researchers found symptoms weren’t tied to pre-existing conditions, but to social factors like low income, limited education, housing, and gender. #LongCOVIDFamilies

Caring for a child with long Covid means navigating medical uncertainty, school struggles, and daily exhaustion. Caregivers fight for answers, balance work and home, and provide endless support. They need understanding, resources, and real solutions. #LongCovidFamilies

Pediatric Gastrointestinal Tract Outcomes During the Postacute Phase of COVID-19 This cohort study investigates the risk of gastrointestinal tract symptoms and disorders during the postacute and chronic phases of COVID-19 illness among children and adolescents.

New research shows children with COVID-19 face a 25% higher risk of developing GI symptoms like abdominal pain months after infection. This risk persists for over a year. Pediatric Long COVID needs more attention—clinicians should be aware of lingering symptoms. #LongCovidFamilies

Think your child may have Long COVID? 🤔 Kids experience it differently than adults. The NIH-funded RECOVER Initiative and advocates including Long Covid Families created a tip sheet to help talk to your doctor! 💜 Check it out! ⬇️ #PediatricLongCovid #LongCovidFamilies

Stellate Ganglion Block reduces symptoms of SARS-CoV-2-induced ME/CFS: A prospective cohort pilot study Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating condition characterized by fatigue, orthostatic intolerance (OI), post-exertional malaise (PEM) and unrefreshing sleep....

⭐ Hope for COVID-Induced ME/CFS

A new study suggests stellate ganglion block (SGB) may help those with ME/CFS after #COVID, improving fatigue, orthostatic intolerance, and brain fog. With no FDA-approved treatments, larger trials are needed to confirm these promising results.

#LongCovidFamilies

I'm the Mom. But No One Listened to Me. My son had Long COVID. I assumed his situation would be understood, thanks to science. But I discovered that my voice wasn't heard even though it mattered most.

When kids have ongoing symptoms after illness, moms often struggle to be heard. Advocacy matters—because no one knows your child better than you. Read one mother’s journey of fighting for answers.
#PediatricLongCovid #LongCovidFamilies

Alt text: Driving Solutions for Health and Advocacy. What LCF is Working on in February. Toolkit for Sickness Prevention in Schools. Pediatric Long COVID Toolkit for Educators. Planning Advocacy Workshops. Meeting Weekly with Researchers. Launching a New Blog Series

💜 LCF is hard at work this February!

From toolkits to advocacy workshops, research collaboration, and our new blog series—every project responds to what families, educators, and advocates need.

Kids w/ #LongCOVID deserve support, recognition, and action. Stay tuned! #LongCovidFamilies

Flu cases among children soar, forcing school closures across US Flu cases are surging, especially among children, forcing a growing number of schools across the country to close. Elevated cases of COVID, RSV and norovirus are also overwhelming the health care syst...

RSV, Flu, and COVID cases are soaring among children:

📈 Indiana: 32% increase
🏫 Tennessee: 70+ schools closed
🚨 Ohio & Kentucky: 16+ schools affected
💔 16 pediatric deaths this week

Masks help reduce the spread. Stay informed, stay protected. #StrategicMasking #PediatricHealth #LongCovidFamilies

A phase I/II study of CpG/alum-adjuvanted mammalian-derived quadruple antigen carrying virus-like particle COVID-19 vaccine Waning Spike-elicited immunity and emerging COVID-19 variants underscore the need for vaccines leveraging multiple SARS-CoV-2 antigens, rapidly adapta…

💉 A new virus-like particle (VLP) COVID-19 vaccine shows promise! Designed to target multiple SARS-CoV-2 proteins, it generated sustained antibody and T-cell responses for 180 days with a good safety profile. A potential step forward in tackling evolving variants. #LongCovidFamilies

When Podcast Episode · The Podcast by KevinMD · 01/27/2025 · 20m

🎙️ Navigating #pediatricLongCOVID, Dr. Elham Raker shares her journey advocating for her daughter’s care while challenging gaps in the medical system. Tune in for a powerful conversation on resilience, limited resources, and the urgent need for action. Listen now! #LongCovid #LongCovidFamilies

Children with Long COVID need the support of a caring community. 💜 We are grateful for everyone who has supported and continues to advocate for the health and well-being of our kids. Thank you. #PediatricHealth #LongCovidFamilies #PediatricLongCovid

Females have a 31% higher associated risk of developing long COVID, UT Health San Antonio-led RECOVER study shows - UT Health San Antonio Females have a 31% higher associated risk of developing long COVID, UT Health San Antonio-led RECOVER study shows

⭐️ Females have a 31% higher associated risk of developing long COVID. Women aged 40 to 55 years have highest risk.

#LongCovidFamilies #LongCovidAwareness #HealthEquity

Aerosol research shows how easily COVID-19 can be caught through the air The virus winter season has struck—and COVID-19 is still part of everyday life. However, unlike during the pandemic, we now know more about how it spreads through the air we breathe. Research from Lun...

🚨 New research from Lund University shows how quickly COVID-19 spreads through the air! Just minutes in the same room with an infected person can lead to exposure, especially in poorly ventilated spaces. Stay informed and protect yourself. 💜 #PediatricLongCovid #LongCovidFamilies

Immune System Damage From COVID-19 Is Different From HIV/AIDS — But the Advocacy Has Parallels Some advocates have called COVID-19 “airborne AIDS,” but this is a misnomer.

🧬 Unlike HIV, which directly targets T-cells, SARS-CoV-2 impacts various cells via ACE-2 receptors and can disrupt immune function in severe acute cases, during Long COVID, or through reactivation of latent viruses. Stigma-free public health measures remain crucial. #LongCovid #LongCovidFamilies