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Posts by Darren Brown OBE

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Breaking barriers: advancing health equity for persons with disabilities in HIV care and treatment The International Disability Alliance and World Health Organization invite you to join the webinar "Breaking barriers: Advancing health equity for persons with disabilities in HIV care and treatment" ...

Really important webinar by @who.int and International Disability Alliance to highlight effective approaches for disability-inclusive HIV responses

www.who.int/news-room/ev...

2 months ago 1 0 0 0
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Evaluation of the psychometric properties of the Episodic Disability Questionnaire (EDQ) among women living with HIV in the United Kingdom: a self-reported repeated measure study Background Disability is an increasingly common health outcome as women age with HIV and multimorbidity. The Episodic Disability Questionnaire (EDQ) measures the presence, severity, and episodic natur...

Pre-Print available during peer-review

β€œEvaluation of the psychometric properties of the Episodic #Disability Questionnaire (EDQ) among women living with #HIV in the United Kingdom: a self-reported repeated measure study”
www.medrxiv.org/content/10.1...

@bhiva.bsky.social @sophiaforum.bsky.social

5 months ago 1 2 0 0
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Want to dive in deeper into how #Physiotherapy prevents falls and frailty, and the role of activity in healthy ageing? Check these out #WorldPTDay @worldphysio1951.bsky.social

7 months ago 0 0 0 0
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@worldphysio1951.bsky.social giving us the myth busters about healthy ageing for #WorldPTDay

7 months ago 1 0 1 0
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Today is #WorldPTDay and the theme for 2025 is healthy ageing

Want to learn more about how Physiotherapy prevents falls and frailty? Today is the day. Take a look at the images, or say hello to your friendly physio πŸ’™

Happy World Physiotherapy Day
🌍🌎🌏

@worldphysio1951.bsky.social

7 months ago 9 1 1 0

Stunning scenery. Have the best time πŸ’™

8 months ago 1 0 0 0
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Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States - Discover Public Health Background Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from t...

New publication: Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States
doi.org/10.1186/s129...
@longcovidsupport.bsky.social
@lcaireland.bsky.social
@patientled.bsky.social
@longcovidphysio.bsky.social

8 months ago 3 3 1 0
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Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study Introduction Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and i...

New publication: Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study

doi.org/10.1111/hex....

@longcovidsupport.bsky.social @lcaireland.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social

8 months ago 5 3 1 0

Great to see this qualitative study:

"Conclusion
Pacing is a challenging and complex strategy used to mitigate symptoms of Long COVID. Healthcare providers should work collaboratively with patients to further refine and implement this strategy, when appropriate."

8 months ago 5 1 0 0
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Experiences of pacing to reduce symptoms among adults living with Long COVID in Canada, Ireland, the United Kingdom and the United States - Discover Public Health Background Long COVID is a multisystem condition that negatively impacts daily function. Pacing is a self-management strategy to mitigate symptoms. Our aim was to describe experiences of pacing from t...

Another new publication out today πŸ“£

Experiences of #pacing to reduce symptoms among adults living with #LongCOVID in Canada, Ireland, the UK and the US

@kellyobrien25.bsky.social @longcovidphysio.bsky.social @patientled.bsky.social @longcovidsupport.bsky.social

link.springer.com/article/10.1...

8 months ago 5 1 0 1

@margaretohara.bsky.social

8 months ago 1 0 1 0
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Community Engagement in Long Covid Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study Introduction Long Covid and other infection-associated chronic condition communities have been integral in advocating for patient engagement in all stages of research, from design and conduct, and i.....

Published today πŸ“£

Community Engagement in #LongCOVID Research: Process, Evaluation and Recommendations From the Long COVID and Episodic Disability Study onlinelibrary.wiley.com/doi/10.1111/...

8 months ago 12 4 1 0
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Just out! Our peer-reviewed critique of the Cass Review has been published by BMC Medical Research Methodology. Please read and share. We show that the Cass Review is fatally flawed and should not be the basis for policy or practice in transgender healthcare.

link.springer.com/article/10.1...

11 months ago 5634 2860 129 224
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β€œSkeletal muscle properties in #LongCOVID and #ME/CFS differ from those induced by bed rest”

Objective science debunking deconditioning theories! πŸ’₯ 🎀

@patientled.bsky.social

www.medrxiv.org/content/10.1...

11 months ago 64 30 1 0
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This could be your chance to be part of World Physiotherapy congress programme committee and help develop the programme for World Physiotherapy Congress 2027 in Guadalajara, Mexico, in May 2027.

Find out more and apply: world.physio/news/call-be-par...

11 months ago 2 1 0 0

Thank you. Always happy to share our research.

1 year ago 0 0 0 0

β€œThe Framework provides guidance for future measurement of disability, and health and rehabilitation approaches to enhance practice, research, and policy in #LongCOVID.”

1 year ago 9 2 1 0

β€œThe Episodic Disability Framework provides a way to conceptualize the multi-dimensional and episodic nature of disability experienced by adults living with #LongCOVID.”

1 year ago 10 2 1 0
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Published today in @plosone.org

β€œEpisodic disability framework in the context of #LongCOVID: Findings from a community-engaged international qualitative study”

@kellyobrien25.bsky.social @longcovidsupport.bsky.social @patientled.bsky.social

journals.plos.org/plosone/arti...

1 year ago 14 11 2 0
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@darrenabrown.bsky.social

Darren Brown you are deserving! Thank you for being authentic, a visionary and a leader in our noble profession of physiotherapy! The Order of the British Empire!!! Continued blessings!!!!

1 year ago 4 1 1 0

Thank you Stacey for your support and friendship πŸ™πŸ»πŸ’™

1 year ago 1 0 1 0
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What an honour to meet #kingcharlesiii at #buckinghampalace yesterday and share a laugh together

#obe #investiture #royalfamily

1 year ago 8 0 0 0

Many Congratulations to our founding Chair @darrenabrown on this marvellous recognition for his outstanding work in the HIV and LongCovid fields.
Very well deserved.
Thank you for all that you have done for our LC community πŸ™πŸŽ–οΈ

1 year ago 18 9 0 0
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Yesterday was the most incredible experience, receiving my #OBE from the #King #royalfamily at #buckinghampalace with my loved ones.

The day was spectacular and full of lifetime memories.

1 year ago 17 2 5 1

Here we go people … after many years of hard work by so many people the #LongCOVID Video Series translations has its first fully complete series in French πŸŽ‰πŸŽ‰πŸŽ‰

Huge thanks to @apresj20.bsky.social
MylΓ©ne πŸ‡«πŸ‡·
Annie-Claude πŸ‡¨πŸ‡¦
@fisiocamera.bsky.social

1 year ago 28 15 2 1
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What is Safe Long COVID Rehabilitation? - Journal of Occupational Rehabilitation Journal of Occupational Rehabilitation -

Thank you for sharing. This was one of the main outputs of #LCPForum with others including

What is Safe Long COVID Rehabilitation? J Occup Rehabil 33, 227–230 (2023) doi.org/10.1007/s109...

Website:
longcovid.physio/forum

Recordings:
youtu.be/b-q9pWEPy1k?...

1 year ago 4 4 0 0
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It’s #NewYearsEve so what better time to share #NewYear new #Headshots #newprofilepic

Happy New Year πŸŽ‰πŸ’™πŸ₯³

1 year ago 2 0 0 0
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What a fantastic achievement. Well done to you both πŸŽ‰

1 year ago 2 0 1 0
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Long COVID Physio International Forum β€” Long COVID Physio Long COVID Physio International Forum #LCPForum 9th-10th September 2022

If you want to see #LCPForum sessions recordings they are all publicly available on either:

Website longcovid.physio/forum

YouTube youtube.com/playlist?lis...

1 year ago 2 0 0 0

I am so very proud to see this published

The Long COVID Physio International Forum #LCPForum was a huge undertaking by so many and this is the final output πŸŽ‰

Congrats to all involved #LongCOVID #GlobalPT

1 year ago 13 3 1 0