Great news!!! See image 👇

Full 🧵 with list of senators on board:
threadreaderapp.com/thread/20452...

Thank you! I just called my Senators @schumer.senate.gov @kirstengillibrand.bsky.social and told them we desperately need #LongCOVID funding 🙏

Thank you @padilla.senate.gov & @schiff.senate.gov for supporting Long COVID & ME patients!

More details about this campaign can be found below /end bsky.app/profile/lcca...

Links again for our free, customizable @lccampaign.bsky.social tools to ask YOUR SENATORS to sign-on to the $210+ million #FundLongCOVID FY27 Appropriations letter:

📞 #FundLongCOVID Senate call tool: tinyurl.com/LongCOVIDCall

☎️ #FundLongCOVID Senate email tool: tinyurl.com/LongCOVIDEmail 5/x

📣📣📣with the deadline extended to Monday, let's keep the emails & calls going! These Senators signed the FY26 #FundLongCOVID letter last year, but haven't yet this year: @kirstengillibrand.bsky.social, @kim.senate.gov , @warnock.senate.gov, @wyden.senate.gov Let's try & grow the list for FY27! 4/x

And these senators have signed on to the #FundLongCOVID letter as well @warren.senate.gov, @welch.senate.gov, & @whitehouse.senate.gov
All thanks to your incredible advocacy 👏👏👏3/x

Along with FY27 #FundLongCOVID letter leads @markey.senate.gov @kaine.senate.gov @duckworth.senate.gov, these senators have now signed on too: @alsobrooks.senate.gov, @booker.senate.gov, @klobuchar.senate.gov, @lujan.senate.gov, @padilla.senate.gov, @schiff.senate.gov, @smith.senate.gov …2/x

📣GREAT NEWS📣 Just spoke to Hill champions: your hundreds of calls & emails are making such a difference, they've extended deadline for Senator sign-on to #FundLongCOVID Dear Colleague letter to MONDAY APRIL 20 10am ET! More @lccampaign.bsky.social details incoming, senators now signed: 1/x

Exciting update!

The drive to ask Senators to sign a request for Long Covid funding is going so well that the deadline has been extended to Monday—calls and shares this weekend will continue to help!

And 13 Senators have already signed on!

Ask yours to join: tinyurl.com/LongCOVIDCall

Please call or email your Senators by close of business Friday 4/17 & ask them to sign on to the “Dear Colleague” letter for Long Covid funding:

Call tool: win.newmode.net/longcovidcam...

Email tool:
win.newmode.net/longcovidcam...

Deadline for this is tomorrow! Make a pair of quick calls to ask your Senators to support funding for Long Covid in FY27 Appropriations!

Call tool:
tinyurl.com/LongCOVIDCall

#LongCovid #NEISvoid

Sending an email took me less than a minute via the link in the thread — if you have the energy, please join me!

I’m out of talking spoons today but I’m gonna try to call tomorrow!

#FundLongCovid

Re-upping this important advocacy opportunity for Americans because Bluesky was not working yesterday. Deadline is today at end of business day!

#pwLC #pwME #POTS #NEISVoid LAST DAY to call! Easy tool with script that routes to your Senators tinyurl.com/LongCOVIDCall Info in thread about appropriations ask here. Please call, like, and reshare. Email tool in next post (if needed)

Last day!

Study links long COVID in kids to worse grades, attention, and social life

Study links long COVID in kids to worse grades, attention, and social life www.cidrap.umn.edu/covid-19/stu...

imagine what conscientiously maintained air purifiers and—dare i say—an open window or two could change.

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

🚨📞CALLS needed TODAY! Final push to get Senators to sign on to $210M to fund LC & related conditions in FY27 budget appropriations. This call tool routes to Senators with a script: tinyurl.com/LongCOVIDCall Leave a msg., if needed. More in 🧵on this #FundLongCOVID campaign.👇

If you have the time/energy to make a call by Friday, this is one the best bets for new research funding for #LongCovid.

Led by hill wiz @meighanstone.bsky.social — asking your Senators to sign on to this "Dear Colleague" letter is one of most important ways to ask for new funding for FY27.

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

Why This Campaign Matters
21M+ Americans are living with #LongCOVID — and, right now, there's a critical window to fight for the funding they desperately need. Help us send a powerful message to the Senate that we are still here and we need help NOW. #FundLongCOVID /end

A screenshot of language from the FY “Dear Colleague” letter which says: “Research on Long COVID. The Committee remains concerned about the lack of FDA-approved diagnostics and treatments for the estimated 1 in 19 Americans living with Long COVID. To accelerate the NIH’s initial clinical trials on Long COVID, the Committee provides not less than $200,000,000 for new Long COVID research. With these funds, the Committee directs NIH to focus on interventional drug trials, biomarker discovery, and the development of diagnostic tests and therapeutics. Such research should also examine and target conditions commonly associated with Long COVID, including dysautonomia, postural orthostatic tachycardia syndrome (POTS), and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). The Committee further directs NIH to brief the Committee not later than 180 days after enactment detailing the agency’s progress, including projected timelines and barriers to research progress.” The part that says “directs NIH to focus on interventional drug trials, biomarker discovery, and the development of diagnostic tests and therapeutics” and “including dysautonomia, postural orthostatic tachycardia syndrome (POTS), and myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)” is highlighted.

The Senate letter centers patient needs: 1) monies are directed to drug trials, biomarkers, & therapeutics AND 2) LC-related conditions like dysautonomia, POTS, & ME/cfs will be included in research. Let’s remind leaders that THESE are the interventions we want and need. 8/X

Stock photo showing the words “Thank you” in the middle with a sprig of leaves on the bottom right corner

If you have additional spoons OR are outside the U.S.… you can also post on socials, tag, & thank Senators Markey (D-MA) @markey.senate.gov, Kaine (D-VA) @kaine.senate.gov, Duckworth (D-IL) @duckworth.senate.gov, & Young (R-IN) for their continued support of the #LongCOVID community. 7/x

3. 📢 Share this thread and these tools with friends, family, and fellow advocates so they too can use them advocate to #FundLongCOVID. Tag those you especially think may want to see it so the algorithm doesn’t prevent views. 6/x

2. ✉️ Email your Senators with the same ask using this handy LCC email tool tinyurl.com/LongCOVIDEmail which provides an email template & sends directly to your 2 Senators asking them to sign on to the Dear Colleague Letter and #FundLongCOVID in 2027 Appropriations. 5/x

#pwLC #POTS #pwME #NEISVoid in the U.S. – Here are THREE WAYS You can help
1. 📞 Calls to Senators' offices make a BIG impact & this handy LCC call tool automatically identifies your 2 senators based on address tinyurl.com/LongCOVIDCall Letter deadline is COB Friday April 17th 4/x

Map of the United States showing the political affiliation of the 100 Senators found here https://us.onair.cc/files/2023/12/map-of-us-senators.jpg

BUT we need more Senators to sign on to the FY 27 “Dear Colleague” appropriations letter. ANY of the 100 U.S. Senators can support this request. EVERY U.S. patient can call or email their Senators to highlight the need to #FundLongCOVID in 2027 appropriations. 3/x

Stock photo of a person wearing rubber gloves and a labcoat looking at something under a microscope

Senators Markey @markey.senate.gov, Kaine @kaine.senate.gov, and Duckworth @duckworth.senate.gov are once again championing a FY27 "Dear Colleague" letter calling for over $210 MILLION in appropriations for research funding at NIH, ARPA-H, and AHRQ clinics #LongCOVID & related conditions. 2/X

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

📣U.S. Action Item: #pwLC #POTS #pwME #NEISVoid we need your help! Will you contact your Senators & ask them to sign on to the FY27 Senate “Dear Colleague” Letter for over $210 million to #FundLongCOVID in 2027 Appropriations using our EASY low-spoons call/email tool?🧵

Transferring IgG antibodies from patients with #LongCovid to mice recapitulates many symptoms
www.sciencedirect.com/science/arti...