Congratulations @sdesgraupes.bsky.social
#AcuteNecrotizingEncephalopathy

Congratulations Sophie and thank you so much from all of us in the ANE community. 👏👏👏👏👏👏

Thank you for raising awareness of #acutenecrotizingencephalopathy.
It's such a devastating diagnosis to receive. ANE, whilst typically affecting under 5's can affect healthy kids of any age. www.aneinternational.org #ANEawareness #influenza

We love this little guy and his family. Like many ANE parents, they are such great advocates. ##vaccinessavelives #AcuteNecrotizingEncephalopathy
#influenza
#AcquiredBrainInjury

This organization does important work around a complication of vaccine-preventable disease, and has helped us share some stories about influenza.

You should follow them!

Neurological complications from #influenza - ANE is one that Doctors dread. It typically occurs in previously healthy children. ##vaccinessavelives #ANEawareness
Check our website for symptoms to be aware of. www.aneinternational.org

#ANEawareness
#AcuteNecrotizingEncephalopathy

Thank you for helping to raise #ANEawareness. #AcuteNecrotizingEncephalopathy is a devastating disease. So many of our community were not vaccinated for influenza. Of those that survive, many live with severe brain injury. #vaccinessavelives

#AcuteNecrotizingEncephalopathy
#RanBP2
#Genetics

5/
A really bad form of this is acute necrotizing encephalopathy, leading to literal brain damage 🧠
37 kids got this - from flu
And the worst bit is only 16% of the kids with flu-related encephalopathy who could get a flu shot had actually gotten one
GET 👏 YOUR 👏 FLU 👏 SHOT

Pediatric Influenza-Associated Encephalopathy ... This report describes 109 U.S. cases of pediatric influenza-associated encephalopathy during the 2024–25 flu season – a high-severity season.

Pediatric Influenza-Associated Encephalopathy and Acute Necrotizing Encephalopathy — United States, 2024–25 Influenza Season | MMWR
www.cdc.gov/mmwr/volumes...

We know first hand the severity of influenza. #ANEawareness is crucial. Thankyou for sharing.

More kids are severely ill or dying from the flu, CDC reports As fewer children get their flu shots, cases of a rare, severe complication are rising. Last season, the U.S. experienced the highest number of pediatric flu deaths in 15 years.

#influenza #AcuteNecrotizingEncephalopathy
www.nbcnews.com/health/healt...

Rare but Serious Complication Shows Flu’s Potential Harm

Acute necrotizing encephalopathy is a rare but incredibly serious complication of infections like flu & covid. It often causes severe disability or death. Please get your kids their covid & flu vaccines; the families reported on in this story have to live w/ regret.

www.nytimes.com/2025/09/12/h...

👏👏#ANEawareness

Influenza and acute necrotizing encephalopathy – the genetic dimension

ANE. A rare complication with hidden genetic clues. Imagine a healthy child who goes to bed with a fever and wakes up unable to recognize their parents, slipping rapidly into coma. This is the terrifying course of acute…

1️⃣ ANE while rare, is extremely serious, it can be deadly within a short period of time.
2️⃣ Most children with ANE were previously healthy.
3️⃣ Most of those with ANE & nearly all of those who died had not received the flu vaccine that season."

#influenza #vaccineswork #acutenecrotizingencephalopathy

Thank you for sharing and raising awareness of this devastating complication. #ANEawareness
www.aneinternational.org

👶Jasper was a happy, thriving 11 month old.
Then, an unknown virus triggered ANE.
📖 In this new story, Jasper's mother shares their experience & captures the devastating speed & impact of #AcuteNecrotizingEncephalopathy.
Read Here➡️ aneinternational.org/jasper/
#PedsICU #medicalemergency #virus

Why it's not "just the flu." YouTube video by Voices for Vaccines

“I felt like I was robbed, we were robbed, of the opportunity to protect our children.”

Zach lost his daughter to influenza before the vaccine was recommended for all kids. If you’re a parent here’s what he has to say. youtu.be/5zBrARHsayE?... #NIAM2025

Influenza, not Tamiflu, may raise risk of neuropsychiatric events in kids

Treatment with oseltamivir was associated with an approximately 50% reduction in the incidence of serious neuropsychiatric events.

www.cidrap.umn.edu/i...

Acute Necrotising Encephalopathy in Childhood: Genetic vs Sporadic | Dr. Ming Lim at ANEmone 2025 YouTube video by ANE International

🎥 In this expert talk, Dr. Ming Lim, Head of Children’s Neuroscience at Evelina London Children’s Hospital and King’s College London, breaks down the science behind ANE—and explains why early recognition and genetic testing matter.
#medsky #genetics #ANEawareness

m.youtube.com/watch?v=edV0...

We certainly appreciated this work! 👏👏👏

#ANEawareness
#AcuteNecrotizingEncephalopathy

📌 We’ve laid out the facts. Now, we share another experience with #AcuteNecrotizingEncephalopathy (ANE)—because no two journeys are the same.

📖 One name. Many paths. Here's one more.
Read here ➡️ aneinternational.org/meredith/

#ANEawareness #i̇nfluenza #covid #RSV #virus #acquiredbraininjury #HHSV

#AcuteNecrotizingEncephalopathy (ANE) may be the shared diagnosis—but every story unfolds uniquely.
🫶❤️📖 By sharing these diverse paths, we deepen awareness. One story at a time.

#ANEawareness #i̇nfluenza #VaccinePreventableDisease #virus #acquiredbraininury

aneinternational.org/stories/aust...

Two major points on influenza-associated acute necrotizing encephalopathy

- High mortality (27%)
- Most affected children were unvaccinated & did not have major comorbid conditions

#PedSky #IDSky

📋 We've shared the facts. Now, it’s time to meet the voices of lived reality.
#AcuteNecrotizingEncephalopathy isn’t just numbers—it’s real people, real families, and stories that deserve to be heard.

#ANEawareness #i̇nfluenza #RSV #covid #VPD

Video ➡️ aneinternational.org/grayson/

Thanks so much Kevin, we really appreciate you helping us to raise awareness. 👏 More information is on our website - www.aneinternational.org #ANEawareness