Congratulations @sdesgraupes.bsky.social
#AcuteNecrotizingEncephalopathy
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#acutenecrotizingencephalopathy
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After 3 years, I’m very happy to share my postdoc work which has been published in @natcomms.nature.com 🎉
doi.org/10.1038/s414...
✨ Thank you @arhelnathalie.bsky.social for your guidance and support !
#influenza #NPC #RANBP2 #Nup358 #Inflammation #ANE #AcuteNecrotizingEncephalopathy
#virology
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Thank you for raising awareness of #acutenecrotizingencephalopathy.
It's such a devastating diagnosis to receive. ANE, whilst typically affecting under 5's can affect healthy kids of any age. www.aneinternational.org #ANEawareness #influenza
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We love this little guy and his family. Like many ANE parents, they are such great advocates. ##vaccinessavelives #AcuteNecrotizingEncephalopathy
#influenza
#AcquiredBrainInjury
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Thank you for helping to raise #ANEawareness. #AcuteNecrotizingEncephalopathy is a devastating disease. So many of our community were not vaccinated for influenza. Of those that survive, many live with severe brain injury. #vaccinessavelives
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1️⃣ ANE while rare, is extremely serious, it can be deadly within a short period of time.
2️⃣ Most children with ANE were previously healthy.
3️⃣ Most of those with ANE & nearly all of those who died had not received the flu vaccine that season."
#influenza #vaccineswork #acutenecrotizingencephalopathy
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👶Jasper was a happy, thriving 11 month old.
Then, an unknown virus triggered ANE.
📖 In this new story, Jasper's mother shares their experience & captures the devastating speed & impact of #AcuteNecrotizingEncephalopathy.
Read Here➡️ aneinternational.org/jasper/
#PedsICU #medicalemergency #virus
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📌 We’ve laid out the facts. Now, we share another experience with #AcuteNecrotizingEncephalopathy (ANE)—because no two journeys are the same.
📖 One name. Many paths. Here's one more.
Read here ➡️ aneinternational.org/meredith/
#ANEawareness #i̇nfluenza #covid #RSV #virus #acquiredbraininjury #HHSV
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#AcuteNecrotizingEncephalopathy (ANE) may be the shared diagnosis—but every story unfolds uniquely.
🫶❤️📖 By sharing these diverse paths, we deepen awareness. One story at a time.
#ANEawareness #i̇nfluenza #VaccinePreventableDisease #virus #acquiredbraininury
aneinternational.org/stories/aust...
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📋 We've shared the facts. Now, it’s time to meet the voices of lived reality.
#AcuteNecrotizingEncephalopathy isn’t just numbers—it’s real people, real families, and stories that deserve to be heard.
#ANEawareness #i̇nfluenza #RSV #covid #VPD
Video ➡️ aneinternational.org/grayson/
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#AcuteNecrotizingEncephalopathy
The impact of #influenza assoc ANE - www.aneinternational.org
"No one saw this coming. All of his symptoms were masked by “regular” flu symptoms. All we were told by every Dr from then on was to pray & hope for a miracle”.
aneinternational.org/jesse-3/ #braininjury
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Thank you so much for helping to raise awareness of ANE. 👏#influenza #acutenecrotizingencephalopathy
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🤒#ANEawareness Day - Learn more about ANE at www.aneinternational.org
#AcuteNecrotizingEncephalopathy. A disease that affects healthy kids from common viruses such as #influenza. Help us spread awareness today.
www.nbcnews.com/news/amp/rcn...
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ANE: The Brain Emergency Every Doctor Should Recognize.
#AcuteNecrotizingEncephalopathy
#ANEAwareness #ANE1 #SickKidsToronto #PediatricNeurology #Influenza #BrainHealth #EmergencyPediatrics #RareDiseaseAwareness #ViralEncephalopathy
@arhelnathalie.bsky.social
m.youtube.com/watch?v=ywrf...
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⚡️ANE can strike without warning in anyone, at any age.
Read more: aneinternational.org/thestrongfam...
#influenza #braininjury #acutenecrotizingencephalopathy
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Our latest collaborative study with the Pasteur Institute and University of Toronto on the role of RANBP2 in #influenza -associated hyperinflammation #AcuteNecrotizingEncephalopathy @aneinternational.bsky.social @ribonucleicacids.bsky.social @irim-life.bsky.social
www.biorxiv.org/content/10.1...
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In adults, heightened awareness of #acutenecrotizingencephalopathy is crucial because early recognition & Tx have the potential to enhance prognosis. ANE is a rare, clinically distinct subgroup of acute encephalopathy, which may be a complication of #COVID
link.springer.com/article/10.1...
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#RareDiseaseDay is a globally coordinated movement dedicated to rare diseases, striving for equity in social opportunities, healthcare, & access to diagnosis and therapies for people living with a rare disease.
#AcuteNecrotizingEncephalopathy
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Thanks for helping to raise much needed awareness of this devastating disease. #Acutenecrotizingencephalopathy
www.aneinternational.org
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It's Rare Disease Day tomorrow.
Rare Disease Day is the opportunity to advocate for rare diseases as a human rights priority at local, national and international level as we work towards a more inclusive society.
#rarediseaseday #Acutenecrotizingencephalopathy
#ANEawareness
www.aneinternational.org
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“In children, .. #NeurologicComplications, including devastating #BrainSwelling that leads to tissue death — a condition called #AcuteNecrotizingEncephalopathy, or ANE.
In adults, ..pneumonia caused by flesh-eating superbug bacteria.
“#MRSAPneumonia and really bad”
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