Woke up in the middle of the night genuinely confused as to why I haven't had DOMS in ages. Sad realisation its because I'll probably never go to the gym again. ME is just constantly grieving everything you liked about yourself and your life.

May I End My Life With You?

May I End My Life With You? www.nytimes.com/2026/04/03/s...

I want to go for a run and then come home, shower and get changed. Have a cup of tea and go for a nice relaxing long walk.
I want my life back.
I hate MECFS and I hate my life now

How does anyone live with ME? I genuinely don't think I can do it, I'm just a shell of a person now and I was so happy and active before

Ignored, blamed, and sometimes left to die – a leading expert in ME explains the origins of a modern medical ‘scandal’ The co-lead of the world’s largest ever genetic study into ME calls for a radical change in how society deals with the disease.

A personal viewpoint on #MECFS. This is focused not on #pwME rather on why we - society - forsake them. Please read ⬇️
theconversation.com/ignored-blam...

Someone in my life donated to sequenceME today for me (and everyone with LC/ME) and is going to recommend her work donates to them in future fundraising.
I cried.
Just having someone listen is incredible but acting as well?! What an angel I am so lucky.

Long COVID leaves thousands of L.A. county residents sick, broke and ignored Six years after the COVID-19 pandemic began, doctors are still treating long COVID patients with complex symptoms and unknown futures.

Long COVID leaves thousands of L.A. county residents sick, broke and ignored

‘The pandemic isn’t over’: my year of long Covid – video Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and...

The Guardian have documented a year in my life living with #LongCovid.

Please watch this short documentary to learn what it's like living with this debilitating disease and why we need urgent treatments.

www.theguardian.com/society/vide...