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Posts by Chronic Allies

#FirstDoNoHarm #ChronicAllies #LongCovidAwareness #MedEd #PublicHealth #IndigenousHealth #Stigma #LongCovid #LongCovidKids

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Stop the Stigma: Applying Chronic Illness Lessons to COVID and Long COVID
Stop the Stigma: Applying Chronic Illness Lessons to COVID and Long COVID YouTube video by Chronic Allies

📺Watch the final video for Long COVID Awareness Month.

Stigma hurts everyone; patients and providers alike. Let's end this month with a commitment to empathy and evidence.

Watch the full video from @ChronicAllies: 🔗 youtu.be/KcijAoYhabA

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🏛️ Learning from the Past: Indigenous Experiences.

Pandemics and stigma are an old story for Indigenous people; the pain they bring can last generations. We must work together to take positive healing action and learn from the past to proactively address the stigma surrounding Long COVID.

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🧒The Impact on Children.

Children face a unique burden. They are often embarrassed by physical limitations & afraid to appear different from their peers. Dismissing their symptoms as "faking" or "weakness" risks their long-term mental & physical health. We must challenge these myths to protect them

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⚠️The Impact on Adults

Research shows that #LongCovid is often treated as a "discrediting" condition. Accusations of malingering or laziness lead to deep alienation from family, friends, and co-workers; creating barriers to returning to work.

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🩺The Clinical Cost of Stigma

Stigmatization devalues patients through labeling. When we prioritize stereotypes over symptoms, it results in missed diagnoses and unsafe care. We must believe the patient's lived experience.

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🔍What is Stigma?

Stigma arises from unfounded generalizations and fear. It results in discrimination: the denial of health services or the failure to provide work and school accommodations. Stigma causes trauma and a profound loss of potential.

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🧵Stop the Stigma: Applying Chronic Illness Lessons to COVID and Long COVID

Stigma isn't just a social issue; it's a clinical barrier that compromises patient care. In our final video of the month, Dr. Angela Grace breaks down the stigma associated with #LongCOVID.

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#FirstDoNoHarm #ChronicAllies #MedicalGaslighting #PatientExperience #MedEd #MedicalEthics #PhysicianAdvocacy #ClinicalExcellence #LongCovid

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The Power of Validation: Ending Medical Gaslighting in Long Covid Care
The Power of Validation: Ending Medical Gaslighting in Long Covid Care YouTube video by Chronic Allies

📺 Watch the full video.

Ending medical gaslighting requires a shift in institutional culture. Let’s start by believing our patients.
Watch the full video from @ChronicAllies here: 🔗 youtu.be/1qJ9ES8mqcE

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💡 The Lived Experience Expert.

As Michael J. Fox famously said, "The message is so simple, yet it gets forgotten. The people living with the condition are the experts."

The patient’s story is the most important data we have. We must learn to trust it.

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Validation is a Clinical Intervention.

Active listening isn't just good bedside manner; it's a clinical necessity. Validating a patient’s experience reduces the trauma of chronic illness and keeps them connected to the medical community instead of fending for themselves.

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The Power of Humility.

Advocacy doesn't require having every answer; it requires staying in the room.

"I don't have the expertise to help with this yet, but I will help you find the people who do." That honesty builds trust.

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Long Covid is Biomedical.

With over 200 symptoms, Long Covid is a complex, multisystemic disease. Advocacy begins with education. We must stay current on the science to avoid prescribing harmful "push-through" protocols like GET

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🧒 The Pediatric Crisis.

Children with Long Covid are often treated as "unreliable narrators." Parents are labeled as "over-anxious" or "unstable."

When we call a fatigued child "lazy" or "school-avoidant," we deny them the care they need to recover.

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📉 A Matter of Equity.

Systemic biases mean marginalized groups are statistically more likely to have their concerns dismissed.
As advocates for our patients, we must check these biases to ensure equitable health outcomes.

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⚖️ The "Normal Lab" Fallacy.

In #LongCovid, "normal" blood work is not a clean bill of health. In an evolving disease, the absence of a biomarker is not evidence of absence. The patient's lived reality is our most valuable diagnostic tool.

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⚠️ The Risk of Diagnostic Overshadowing.

Are we blaming symptoms on weight, age, or stress? When physical complaints are reduced to mental health issues, we stop being investigators. This "overshadowing" delays diagnosis and treatment while destroying the therapeutic relationship.

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🔍 What is Medical Gaslighting?

It’s the privileging of biomedical expertise over lived experience. When we dismiss symptoms as "psychological" or "anxiety" without a full workup, we aren't just missing a diagnosis; we are causing harm

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"It’s just anxiety." "You’re just stressed." "Your tests are normal."

For chronic illnesses, the greatest barrier to care isn't always the pathology; it's the dismissal. Registered Psychologist Dr. Angela Grace discusses how providers can move from disbelief to partnership.

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🧵 The Power of Validation: Ending Medical Gaslighting in Long Covid Care

#FirstDoNoHarm #MedEd #LongCovid

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#FirstDoNoHarm #ChronicAllies #CdnEd #ChronicIllness #InvisibleIllness #CleanAirSchools #SafeSchools #CorsiRosenthalBox #PublicHealth #TeacherWellness #TeacherPD #EducationCanada

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What Can Educators Do? Prevention Strategies
What Can Educators Do? Prevention Strategies YouTube video by Chronic Allies

Watch the final module on prevention here: 🔗 youtu.be/vffVsF-Bt_U

Prevention isn't just about avoiding illness; it’s about creating an environment where both students and teachers can show up as their best selves every single day. Thank you for joining us on this journey!

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🎭 Normalizing the Respirator: How to frame masking as a "tool for school" (just like glasses) to reduce stigma and protect the most vulnerable.
📊 Knowing the Risk: Accessing real-time data to understand the current risk in your community.

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🧪 Science in Action: How to turn air quality into a hands-on science project by building DIY air cleaners with your students.
🏠 The "Stay Home" Essential: Why comprehensive illness policies and transparent reporting are the foundation of a healthy school community.

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What you’ll learn in this module:

🌬️ The ick factor: Understanding CO2 readings as a measure of how much "second-hand air" we are breathing in; and how to fix it.
⌚ The WATCH Acronym: A simple, 5-step checklist for teachers to improve classroom air quality immediately.

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In this module, Jennifer Thompson and Dr. Angela Grace break down the science of prevention. Clean, fresh air isn't just about stopping viruses; it’s about improving cognition, increasing energy levels, and protecting students from wildfire smoke and allergens.

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In Module 6 of #FirstDoNoHarm we discuss prevention. Clean air is clear thinking 🌬️

"We filter our water to keep us healthy; we should be doing the exact same thing with our air."

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#FirstDoNoHarm #ChronicAllies #CdnEd #ChronicIllness #InvisibleIllness #ChronicAllies #SchoolAccommodations #SchoolSupport #InclusiveEducation #TeacherTips #TeacherPD #EducationCanada #Pacing

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What Can Educators Do? School Accommodations
What Can Educators Do? School Accommodations YouTube video by Chronic Allies

Watch the video here: 🔗 youtu.be/9smMIyCu30w

Educators are the most important allies these students have. By shifting our perspective from “pushing through” to “pacing”, we create a classroom where every student, regardless of their energy envelope, has the chance to succeed.

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