Sometimes I wish he’d do a face lift, he’s very quick, don’t think it would take much longer 😅

I read a report on migraine that said food triggers might actually be cravings and it’s just part of the early phase. I’m not sure I believe this 100% I know saccharin is a trigger, I never crave it. But coffee sometimes helps, sometimes triggers… so maybe… 🤔 back to the food diary.

I get Botox for chronic migraine tomorrow and I’ve never been so excited to have so many injections in my head. How does it know how to run out after exactly 2 months, it’s like witchcraft. Or science, as my more logical friend put it. No, it’s witchcraft. #disability

Me: why can I only write decent scripts when I’m mentally ill?

My husband: imagine being mentally ill and not being able to write decent scripts.

Valid.

#mentalhealth #creativewriting

Cracking your head on a condom machine is quite ridiculous, considering they exist to keep you safe 😅 I cracked my head open at school, we were playing tug of war on a wall, I was the rope. It was my idea. Got the afternoon off.

I must have used 100,000 spoons trying to mindset myself out of chronic fatigue syndrome.

Post viral fatigue on top of CFS? Superflu sent my baseline through a trapdoor. Saw the asthma nurse yesterday, got a flu jab - too little too late. The one year I skipped it I got flu. Lesson learnt. I was doing better in the wheelchair, getting out, doing life… now I’m trying not to be bedbound

Merry Christmas and solidarity to all the vegetarians who are unwrapping vegan chocolate right now #strength 🫶🏻💪🏻

Had a bath. Destroyed me. I’m in pain. Need to wrap presents. Can’t. Need to get in bed. No energy. Take meds? Brush teeth? Nope. My heart rate will increase 40bpm when I drag myself up.

Fatigue is not being tired. If I could make this go away now I would do anything.

#fatigue #disability

Screenplay finished, just a 500 word reflection to write up, then my 2nd assignment shall be submitted - maybe then I can do Christmas… I think I’m over the worst of the flu. How is it Christmas? Where did the entire year go?

Got dressed and put makeup on today. Now sitting in a chair.

I was doing an English Lit and Creative Writing degree, but English Lit with chronic migraine isn’t the funnest… so I’ve switched to Arts & Humanities specialising in Creative Writing. I’ve already achieved a diploma in English Lit & CW - the hard work has paid off ✨#disabledstudent #openuniversity

Superflu is no fun. On the plus I got steroids for the asthma flare up and they’ve banished the chronic fatigue, so I can crack on my with screenplay/creative writing assignment… I’m going out for cake first 🍰 #disability #flu #asthma #mecfs #openuniversity

He was laddered
The most laddered man I knew
so I embedded my teeth into his
rungs
clawed my way up
only to reach his summit
breathless
to see vast mountains of
nothing on the horizon

Removing him was the easy part

The Hangnail

He said he’d climb my ladder
right to the top
rip off my tights with his teeth
Well
I’ve seen men do all sorts with their teeth
but not that
I’ll peel off my own tights
thanks very much
removing them is the easy part
Nylon snags when dragged over thighs
When hangnails get involved

Is anyone else with the chronic illness or disability in the ‘I can never sleep when I have to get up early’ club? Doesn’t matter what I do. It’s like my brain knows it’s gonna be a struggle to wake up, so it prevents the struggle from occurring at all.

Tonight, our quiz team, The Sex Mittens, won our regular quiz night’s October quiz for the second year running. Full marks on the Halloween round 🎃 (and the Jurassic Park round 🦖 ) We even aced the sport round - unheard of. We will come back next year to defend our crown 👑

I’ve decided I need to celebrate myself more, and I’m halfway to 90 on Thursday. So I’ve decided to have more fun, like leaving the house, and hunting ghosts in Cologne for Halloween. Never been to Germany, never taken my wheelchair out of the country, very excited about this 👻

Thank you. It’s been hard with disabilities & neurodivergence. I started this in 2021, hope to be done in 2027. There’s a lot of a support available now. Illness screwed up my first attempt and robbed me of my career, so I won’t let it take this. But yes, I am privileged to be able to do it.

Just bought the textbooks and entire reading list for my uni module that starts next October, because reading, chronic fatigue and brain fog are the perfect combination for a passing level 3 of an English Literature and Creative Writing degree.

I start level 3 today. So naturally I’m here…

Within a few days of starting HRT my brain went quiet. I had no idea how bad it was. The anxiety, rumination, paranoia, brain fog, almost gone in a week. I don’t know how to describe it. It’s like the world feels real. I’m fatigued, but more sleepy, super relaxed. #mentalhealth #perimenopause

Didn’t he tell us to inject bleach?

I’m manifesting millions. It can be done. Like when you are thinking about pizza, and you got on Facebook and get a Dominos ad pop up, that isn’t the algorithm, it’s the universe. Stop thinking about pizza, stark thinking about that lottery win. It will happen, trust me, I’m disabled.

Why did nobody teach us about perimenopause in school? Why did our mothers never mention it? They were gaslit by doctors weren’t they? That’ll be it.

I’m fully done with being a woman. I want to come back as a man, and invest on the stock market as soon as I get a job. Why did nobody teach us finance in the 90s? Totally off topic I know. I’m a middle aged disabled woman, with copious traumas, trying to do a retirement plan.

My brain fog, fatigue & poor cognition have become unbearable. I’m intolerant to most foods. I have acne, UTIs, insomnia, constant headaches, wild paranoia, joint pain, pelvic issues and more. Tonight I started HRT. I’m 44. I hope symptoms are at least exacerbated by hormones #perimenopause

If anyone has any #lowfodmap vegetarian tips, would love to know. I’m a fussy eater, no energy to cook. Obsessed with melon, blueberries, tofu, potatoes, olives. That’s kinda my diet. Need more green things. Not the biggest fan of green things. Can whip up a stunning carbonara, not the healthiest…

All I wanted was ice cream. What did I do in a past life to deserve this? #ibs maybe #ileitis maybe something else… told it’s a year to see a gastroenterologist… 👌🏻 My body hates me. Luckily I’m really obsessed with olives and crispy tofu right now.

This year I went from a walking stick to a powerchair. Changed my life. No longer 90% housebound. More energy, less pain. Weeks later. IBS from Hell. Intolerant to everything. Debilitating fatigue. Did low fodmap diet. Was just feeling stronger. Ate ice cream yesterday. Big mistake. HUGE mistake.

So shite. Thank you! ☺️