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Posts by Eli Genovesi

Screenshot of the title of the editorial, published in the journal Autism. The editorial title is: "Community involvement in PhD students’ autism research projects: Challenges and opportunities"

Screenshot of the title of the editorial, published in the journal Autism. The editorial title is: "Community involvement in PhD students’ autism research projects: Challenges and opportunities"

Paragraph setting out the main challenges relating to community involvement in PhD student projects, as follows:

Community involvement is not without challenge and difficulties are commonly reported in recruiting representatives, building meaningful connections, maintaining engagement, funding community partners and implementing their recommendations. These challenges can be more pronounced in PhD student projects. The primary focus of a PhD is to independently complete a specific, often narrowly defined research project that contributes new knowledge to the field, within a specific timeframe and often with limited research funding. The independence requirement of PhD work may seem at odds with the requirements of active collaboration with community members, making it hard to strike a balance between leading the project and allowing collaborators to feel ownership of it. The limited timeline, of just three full-time years in some countries, can make it difficult for PhD students to ensure meaningful community engagement and to follow community advisors’ suggestions within the narrow scope and timeframe. Without funding, PhD students may also find it difficult to conduct community-engaged research that pays people appropriately for their contributions and time (Pickard et al., 2022). Finally, the early career stage of PhDs means that connections with community experts are often formed during, rather than prior to, the PhD, limiting the scope for early engagement.

Paragraph setting out the main challenges relating to community involvement in PhD student projects, as follows: Community involvement is not without challenge and difficulties are commonly reported in recruiting representatives, building meaningful connections, maintaining engagement, funding community partners and implementing their recommendations. These challenges can be more pronounced in PhD student projects. The primary focus of a PhD is to independently complete a specific, often narrowly defined research project that contributes new knowledge to the field, within a specific timeframe and often with limited research funding. The independence requirement of PhD work may seem at odds with the requirements of active collaboration with community members, making it hard to strike a balance between leading the project and allowing collaborators to feel ownership of it. The limited timeline, of just three full-time years in some countries, can make it difficult for PhD students to ensure meaningful community engagement and to follow community advisors’ suggestions within the narrow scope and timeframe. Without funding, PhD students may also find it difficult to conduct community-engaged research that pays people appropriately for their contributions and time (Pickard et al., 2022). Finally, the early career stage of PhDs means that connections with community experts are often formed during, rather than prior to, the PhD, limiting the scope for early engagement.

🚨New publication alert:
In this editorial my PhD students and I reflect on our challenges and relative successes in incorporating community involvement in our autism research.
The editorial is openly available here: journals.sagepub.com/doi/full/10....

1 year ago 19 5 1 0
MIDDLE Intervention | SPARK Project

Materials include manuals and resources for a teacher training programme and many additional intervention resources for #disability #awareness & #inclusivity.

You can read them, edit them, use them and I am more than happy to be contacted for additional information and support!!

1 year ago 0 0 0 0
“With Children in the MIDDLE! Mainstreaming and Inclusion of children with Developmental Disabilities in Learning in Ethiopia”

“With Children in the MIDDLE! Mainstreaming and Inclusion of children with Developmental Disabilities in Learning in Ethiopia”

If you were at recent conferences of the International Society for the Study of Behavioural Development or the International Society for Autism Research, INSAR you may have already heard me talk about MIDDLE. #ISSBD2024 #INSAR2024

1 year ago 1 0 1 0
MIDDLE Intervention | SPARK Project

INTERVENTION LAUNCH for #EducationForAll!

Materials for our co-developed #intervention MIDDLE, “Mainstreaming and #Inclusion of children with Developmental #Disabilities in Learning in Ethiopia” are now #FreelyAvailable online, fully #OpenAccess!

www.thesparkproject.net/middle-inter...

1 year ago 0 0 1 0
Screenshot of the abstract of the paper Genovesi et al (2024), the full paper can be found here: https://ijmhs.biomedcentral.com/articles/10.1186/s13033-024-00627-9

Screenshot of the abstract of the paper Genovesi et al (2024), the full paper can be found here: https://ijmhs.biomedcentral.com/articles/10.1186/s13033-024-00627-9

New paper alert: many governments, non-governmental and research organisations have developed materials to raise community awareness of developmental disabilities incl #autism and intellectual disability but an overview of such resources was lacking #AutRes ijmhs.biomedcentral.com/articles/10.... 1/

2 years ago 3 1 1 0
Screenshot of the webpage https://www.drive-health.org.uk/projects-2024 advertising the PhD studentship "Causal mechanisms underlying the association between poverty, stigma, social exclusion and quality of life among families with children with developmental disabilities in Ethiopia and Kenya"

Screenshot of the webpage https://www.drive-health.org.uk/projects-2024 advertising the PhD studentship "Causal mechanisms underlying the association between poverty, stigma, social exclusion and quality of life among families with children with developmental disabilities in Ethiopia and Kenya"

Are you interested in developing causal modeling skills in a PhD focused on poverty, stigma and quality of life in families with children with developmental disabilities in Ethiopia and Kenya? Apply for this PhD! drive-health.org.uk/projects-2024 (project 1, deadline 10 March) #AutRes #academicsky

2 years ago 3 3 0 0

Looking for a Christmas good deed? How about supporting our project for the education of kids with autism and developmental disabilities?
We only have time until 31st December to cover the final budget gap! #AutRes

www.gofundme.com/f/phd-projec...

2 years ago 1 0 0 0
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PhD project aiding schooling for Ethiopian kids!, organized by Elisa Genovesi (Italiano a fondo pagina) ENDING 31st December 2023! Help me fin… Elisa Genovesi needs your support for PhD project aiding schooling for Ethiopian kids!

Looking for a Christmas good deed? How about supporting our project for the education of kids with autism and developmental disabilities?
We only have time until 31st December to cover the final budget gap!

www.gofundme.com/f/phd-projec...

2 years ago 0 0 0 0
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New paper! bmchealthservres.biomedcentral.com/articles/10....
What do we mean when we say caregivers of children with developmental disabilities should be 'empowered', and how can it be achieved? #AutRes

2 years ago 4 1 2 0
Screenshot of the title of the editorial introducing the special issue 'Autism Research in a Global Context' published in the journal Autism. The editorial and special issue are dedicated to the memory of Dr Muideen Bakare

Screenshot of the title of the editorial introducing the special issue 'Autism Research in a Global Context' published in the journal Autism. The editorial and special issue are dedicated to the memory of Dr Muideen Bakare

So pleased to see this out: The @journalautism.bsky.social special issue Autism Research in a Global Context is now available online, showcasing 19 papers from contexts underrepresented in the #AutRes literature. In this editorial we share what we have learnt 1/3 journals.sagepub.com/doi/epub/10....

2 years ago 16 6 1 2
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Are you the parent of an autistic child in the UK or China? Please consider our new study exploring the role of extended family in caring for autistic children. Details here:
qualtrics.kcl.ac.uk/jfe/form/SV_... This work can inform designing better support systems for the whole family #AutRes

2 years ago 4 3 0 0
A blank MS Word page
File title: Thesis Chapter 1
Page Heading: Chapter 1

A blank MS Word page File title: Thesis Chapter 1 Page Heading: Chapter 1

It's not the first thing I have written that will fed into my Thesis but this feels more real than ever!!!
#AcWriMo #PhDSky #AcademicSky

2 years ago 11 0 1 0

Anyone got a neurodiversity paradigm / autistic-authored definition of autism that's suitable for citing in an academic paper? Even something that's slightly less useless than the DSM-V would be good - I'm getting fed up of starting every paper with it and refuting it...

2 years ago 6 2 2 0
Wooden table, with large paper sheets with writing and arrows on them. In the foreground, a grey cat is sitting on a wooden chair

Wooden table, with large paper sheets with writing and arrows on them. In the foreground, a grey cat is sitting on a wooden chair

Wooden table, with large paper sheets with writing and arrows on them and a grey cat sitting on a wooden chair. In the foreground, a small black and brown dog is sleeping in her dog bed

Wooden table, with large paper sheets with writing and arrows on them and a grey cat sitting on a wooden chair. In the foreground, a small black and brown dog is sleeping in her dog bed

Theory of Change Map Refining in progress… with little sleepy helpers! #PhDSky #AcademicSky Public Health

2 years ago 2 0 0 0
I’m sitting with a grey cat and laptop both on my legs

I’m sitting with a grey cat and laptop both on my legs

I haven’t worked around a cat for a while. I’ve missed working like this

#PhDSky

2 years ago 0 0 0 0

How to implement it? First of all gradually

The preferred model includes some children with developmental disabilities in inclusive classes, others in special units divided by level

Key implementation strategies are awareness raising, teacher training & support, child & caregiver interventions

2 years ago 1 0 0 0

Is the context ready?

Stakeholders identified barriers in the epidemiological, geographical, socioeconomic and sociocultural contexts at multiple levels

Laws, national and school-level political commitment, ethical values and the improving awareness in communities drove progress towards inclusion

2 years ago 1 0 1 0

Is it good? Is inclusive education beneficial to the children with developmental disabilities we want to support? In Ethiopia?

Stakeholders stress its benefits for learning, relationships and societal inclusion! But with some drawbacks that need to be managed in the same 3 areas and in safety risks

2 years ago 2 0 1 0
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Stakeholder Perspectives on Including Children with Developmental Disabilities in Mainstream Primary... Appendices and figures can be found within the preprints. There are no other supplementary materials. The purpose of the project is to link three manuscripts from the same qualitative study, available...

Out now! 3 preprints on 3 qualitative analyses of data from 39 stakeholder interviews on including children with developmental disabilities in Ethiopian mainstream primary schools: is it good? is the context ready? how to implement it?

#AcademicSky #AutRes #EduSky #PhDSky

2 years ago 1 0 1 1
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ARCH Seminar Series Join us for our monthly Autism ResearCH seminars - a friendly platform for early career researchers to share their recent research.

Our Autism ResearCH (ARCH) Seminar series is back for another year of fantastic ECRs sharing their research! Our first speaker is Hannah De Laet, presenting her results of a survey with 400 autistic people focusing on the double empathy problem. Join us on the 15th Nov at 2pm shorturl.at/ET469

2 years ago 2 3 0 0

Thank you!

2 years ago 1 0 0 0
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Someone sent me this meme about peer reviewer comments and it is 👌🏻 #PhDSky #AcademicSky

2 years ago 507 146 3 4

4 top tips for people new to #bluesky. 😊⬇️

1. Find a friend and use who they follow to get started.
2. Follow lots of ppl to populate your TL.
3. Post/repost/like to help people find you. No weird algorithms here so it's all chronological.
4. Check out feeds using the # and pin your favourites.

2 years ago 99 64 6 3

Can someone please explain what liking a feed does? If I like a feed but not pin it will posts be shown in my Following feed?

2 years ago 0 0 1 0
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Today is my birthday, I'd love if people would share my art 🥰🖤

2 years ago 1073 586 52 17

Very cool! Love the nature walks part!

2 years ago 0 0 0 0

How can teachers create visuals and educational materials with what they have? Here are some of our trainees’ creations today!

#AutRes #EduSky

2 years ago 7 2 1 0
A large school room, with groups of people sitting around 5 wooden tables, talking, listening, writing

A large school room, with groups of people sitting around 5 wooden tables, talking, listening, writing

Teachers hard at work in the first group activity of this second day of training on developmental disabilities here in Addis Ababa!

#AutRes #EduSky

2 years ago 5 0 0 1
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Reposting for all the new autism researchers who’ve joined of late.

Welcome!

Please check out my feed, like it, pin it (so you can easily check what the craic is whenever you want)

And post to it! #AutRes

2 years ago 13 5 0 0

Before the programme, we held community awareness events in both schools

Hundreds of parents of children enrolled in the schools attended and listened to the testimony of a mother of an autistic child

They then spread the word and families of children with DD came to enroll them in the schools!!

2 years ago 0 1 0 0