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Posts by Myasthenia Gravis News

MGFA National Patient Conference banner: a space where people with MG share experiences and have genuine conversations.

MGFA National Patient Conference banner: a space where people with MG share experiences and have genuine conversations.

Teal quote by Robin Hengels about belonging and shared understanding; tagline: Less explaining, more understanding.

Teal quote by Robin Hengels about belonging and shared understanding; tagline: Less explaining, more understanding.

Slogan 'More confidence, more clarity' with quote saying patient preference matters and the future looks promising.

Slogan 'More confidence, more clarity' with quote saying patient preference matters and the future looks promising.

Teal MGFA Patient Conference poster: 'Being seen. Being understood. Taking something tangible with you.' — Cassandra Korosi

Teal MGFA Patient Conference poster: 'Being seen. Being understood. Taking something tangible with you.' — Cassandra Korosi

Some spaces feel different the moment you walk in: https://bit.ly/42j8Nme

The MGFA National Patient Conference is one of those places.
You can watch the sessions for yourself at the link

#MGFA #MGFANationalPatientConference #MyastheniaGravisNews #Bionews

8 minutes ago 0 0 0 0

Embrace your imperfections: they are part of your unique beauty. 🌻 #ChronicIllness

17 hours ago 0 0 0 0
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Care that meets your needs: https://bit.ly/3ZDmsTZ

#MyastheniaGravis #RareDisease #ChronicCommunity #MyastheniaGravisNews #Bionews

18 hours ago 0 0 0 0
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Helping loved ones with their MG challenges Cindy Stralsoff, who has myasthenia gravis, shares why support during flare-ups means asking, not assuming, what she needs.

A body that’s trying is a body worth honoring: https://bit.ly/3ZJy7QV

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #MGCaregiver

18 hours ago 1 0 0 0

Leave a 🥄 in the comments if you collect spoons instead of stamps. #DisabilityAwareness

20 hours ago 1 0 0 0
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Adapting to MG with helpful life hacks Cindy Streltzov, who has myasthenia gravis, shares how pool walking, moderation, and spontaneity help her manage symptoms and stay active.

A gentle pace is absolutely a brave one: https://bit.ly/3McrOCn

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicIllness

20 hours ago 0 0 0 0
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Michelle Gonzaba: Preventing MG caregiver burnout – Myasthenia... Michelle Gonzaba, who has myasthenia gravis, shares how patients and caregivers can work together to prevent caregiver burnout.

Preventing caregiver burnout—advice for those supporting loved ones with MG: https://bit.ly/3JBOn1Q #MyastheniaGravis

22 hours ago 0 0 0 0
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Myasthenia gravis and eye health – Myasthenia Gravis News Generalized myasthenia gravis often causes eye problems, but there are ways to protect your eye health and vision.

A soft reminder that visual fatigue deserves real compassion: https://bit.ly/49Fc5Fa

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #OcularMG

22 hours ago 0 0 0 0
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Sit with this warning: https://bit.ly/4qNtHF9

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior #Neurology #Neurologist

1 day ago 1 0 0 0

Resting is not laziness; it’s medicine. #ChronicIllnessWarrior

1 day ago 1 1 0 0
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You are stronger than any setback and braver than you think: believe it. 🦁 #InvisibleIllness

1 day ago 0 0 0 0
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See what matters: https://bit.ly/4tYYi45

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #WorkAccessibility #Disability

1 day ago 0 0 0 0
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Learn some daily hacks: https://bit.ly/3McrOCn

Cindy shares how she tries to stay ahead of symptoms and avoid reaching a breaking point.

#MyastheniaGravis #LifeWithMG #ChronicIllnessTips #PatientStories #MyastheniaGravisNews #Bionews

1 day ago 0 0 0 0
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Accepting and practically adjusting to MG’s uncertainty Aaron Francis, who has myasthenia gravis, shares tips for handling fatigue and vision issues with simple daily adjustments.

A gentle nudge that your worth has nothing to do with productivity: https://bit.ly/4q83GyW

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGJourney #MGWarrior 

1 day ago 0 0 0 0
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Managing infusions: https://bit.ly/41sPiHs

#RareDisease #ChronicIllness #MyastheniaGravis #MyastheniaGravisNews #Bionews

1 day ago 0 0 0 0
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Grace Tworek: Addressing medical trauma in MG patients –... Clinical psychologist Grace Tworek describes symptoms of medical trauma and suggests how patients can seek help.

Addressing medical trauma faced by MG patients and pathways to healing: https://bit.ly/4lOZK3C #MyastheniaGravis

1 day ago 0 0 0 0
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Bracing for interruptions from MG fatigue Tina Hancock, who has myasthenia gravis, shares how she manages fatigue and finds joy in small victories each day.

A softer plan for bodies that shift: https://bit.ly/3ZELxh8

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #ChronicFatigue

1 day ago 0 0 0 0
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Apply today: https://bit.ly/48Fdmec

For many people living with myasthenia gravis, mealtimes can feel like another challenge in an already full day.

The MGFA Food Support Program was created to help ease that load.

#MyastheniaGravis #MGFA #Bionews #MyastheniaGravisNews

2 days ago 1 0 0 0

Leave a 📆 in the comments if scheduling life around medical care became a hobby. #RareDisease

2 days ago 0 0 0 0
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Just keep swimming. #ChronicIllness

2 days ago 1 0 0 0
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Myasthenia gravis support groups and resources – Myasthenia Gravis... Myasthenia gravis support groups can provide a sense of community, as well as be a place to share advice and learn about other MG resources.

Leave a ♥️ for the people who make your days a little lighter: https://bit.ly/4qUNvqj

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #MGStrong #MGSupport #InvisibleIllness #ChronicIllnessAwareness #MGWarrior 

2 days ago 0 0 0 0
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Clarify the basics: https://bit.ly/4rJI5y5

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #Thymectomy

2 days ago 0 0 0 0
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Driving with MG — share your experience: https://bit.ly/46MARA8

Symptoms like fatigue, muscle weakness, or double vision can make driving with myasthenia gravis unpredictable.

#MyastheniaGravis #MyastheniaGravisNews #LifeWithMG #Bionews

2 days ago 0 0 0 0

Leave a 🩺 in the comments if managing appointments feels like a full-time job. #DisabilityAwareness

2 days ago 1 0 0 0
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Plasmapheresis for myasthenia gravis – Myasthenia Gravis News Plasmapheresis is a treatment for myasthenia gravis, commonly used during a myasthenic crisis and in preparation for thymectomy.

A gentle hour for the people sorting through new information and new limits: https://bit.ly/4i3xtpZ

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #Plasmapheresis

2 days ago 0 0 0 0
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Researching the right MG treatment: https://bit.ly/4s0icJV

#MyastheniaGravis
#MGCommunity #MyastheniaGravisNews #Bionews #MGTreatment

2 days ago 0 0 0 0
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Ari Maayan: Finding humor in myasthenia gravis symptoms –... Ari Maayan, who has myasthenia gravis, shares about the value of embracing humor when dealing with embarrassing symptoms.

Finding humor in Myasthenia Gravis symptoms to lighten daily challenges: https://bit.ly/3JJAb6R #MyastheniaGravis

2 days ago 0 0 0 0
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Processing the frustration of abrupt MG muscle weakness Aaron Francis, living with MG, shares his struggle with sudden weakness, the fear of falling, and the strength it takes to keep going.

A gentle reset can bring clarity where there was overwhelm: https://bit.ly/4rq1LH3

#MyastheniaGravis #MyastheniaGravisNews #Bionews #MGWarrior 

2 days ago 0 0 0 0
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See the whole picture: https://bit.ly/4nOpPB9

#MyastheniaGravisNews #Bionews #ChronicIllnessCommunity #ChronicIllnessAwareness #MGJourney #MGWarrior #RespiratoryMuscles

3 days ago 0 0 0 0

Every moment of self-kindness builds your resilience: be gentle with yourself. 🧡 #ChronicIllnessWarrior

3 days ago 0 0 0 0