Love Ed’s work! A gap I see in covid coverage is a need to hear from the organizers responding to the crisis. There are mask blocs, people organizing for funding & legislation like Long Covid Justice Network. People’s
cDC. Berlin Buyers Club. The public needs to hear how they can fight covid.
There are a lot of people, even among experts, in our country who believe long covid and ME are functional disorders. This makes life very hard for us patients. And so little accurate reporting unfortunately.
Hi @edyong209.bsky.social I just shared your opinion piece on Twitter quoting the poem you also quoted. A fellow patient from Finland asked me to pass on her thanks because she is not on Bluesky. I think she felt seen.
I love the idea that maybe sleep is the purpose of your life and being awake is the inconvenient but necessary disturbance.
Alarming thread/convo.
A high-profile paper on #LongCovid contains a mystery section apparently written by AI that perpetuates unfounded ablist stereotypes, presumably skewed by LLM verbiage.
One of the authors is even listed as affiliated to an "AI lab"!
Great sleuthing by @lucibee.bsky.social
'The long COVID figure for those at the lowest income levels was a staggering 50%, versus a 29% average for all adults and 22% for those at the highest income levels.'
Class had tremendous influence on who got COVID in the first place, and now it's long-term outcomes. Best health care in the world!
🔬Wondering how OMF selects treatments used for clinical trials? Let us illuminate our process for you. Learn more 👉 www.omf.ngo/treatment-trials.
Join us on this complex journey towards understanding the intricacies of ME/CFS. 🌟
The UK's Covid inquiry has heard that a major imperfection of standard issue PPE was that, although marketed as 'gender neutral', it was designed for male bodies.
This included masks, which even now fail to take account of female-male differences in facial dimensions
#Covid #MedicalSexism
Unfortunately, the authors' conclusion of "some evidence" is contradicted by their conclusion that *all* studies had "unclear or high" risk of bias.
There was "no" evidence here, not "some".
This is the same as for CBT/GET in #MECFS treatment: lots of studies; all bad; ergo, no evidence.
#pwME
Lupaavaa 😯
Tldr: onko bluesky miljardöörinkestävä?
With several recent advances and funding, Covid nasal vaccines now have momentum. Really needed and exciting to see!
erictopol.substack.com/p/covid-nasa...
The latest weekly Science for ME news in brief is online with items on ME/CFS and Long Covid research, advocacy and coming events.
You don't need to be a forum member to read the news. To suggest an item for future bulletins, join the forum and start a discussion.
www.s4me.info/threads/news...
They can be various hormones, chemicals that have far-reaching effects locally and systemically. They're inflammatory. That's the bottom line. They cause inflammation.“ #MCAS 2/2
#MasteringMastcellActivation
mastcellmastering.byhealthmeans.com?idev_id=26037
Today the PolyBio research foundation will host a webinar on infection-associated chronic diseases. ME/CFS and Long Covid will be discussed.
It's open to the public. Join here polybio.org/polybio-fall...
I can't believe someone actually wrote this in their name. Discusting.
Kiitos!
Black and white photo of a 62 year old Greek woman standing in a backyard, holding a shorthaired white cat with black patches. The cat is pushing away from her with a look of disdain.
Amalia Fleming was an amazing person but her cat was clearly not impressed. 1971. press-ert-gr.translate.goog/grafeio-typo...
Haetaanko yleensä ensin paikka vai ensin rahoitus? Voiko yliopistolle sanoa, että aloitan vasta sitten, kun saan rahoituksen? Tämä välimaasto on jäänyt minulle epäselväksi.
Lecture slide with quotes claiming that migraines are caused by psychiatric issues
Lecture slide showing information on stomach ulcers and how they are not caused by stress
Lecture slide with quotes claiming that AIDS was caused by psychological factors, with original article in which these quotes appeared
Lecture slide with quotes claiming that multiple sclerosis is caused by early childhood trauma and lack of positive bonding experiences, with original source (from 2002)
It's that time of year again! Today I look at the history of so-called "Medically Unexplained Symptoms" with my students (part of our #pseudoscience class).
Migraines? Rooted in "perfectionism"
Ulcers? "stress"
AIDS? "shame/guilt"
MS? "childhood trauma"
Tropes now recycled for #MECFS & #LongCovid
Ohh I'd love to attend!
I'm gathering evidence for a complaint and this might work for that 🤞
Thank you! I had been searching for this info 🙏
www.tandfonline.com/doi/full/10.... I believe this is it.
My doctor has agreed to give me a try on LDN for my ME/CFS which might also be Long Covid. She's had advice from someone who runs the only ME clinic in my province and they recommend a starting dose of 0.5 mg.
I have seen others mention starting doses of 0.1mg. Is 0.5 too high? Will I regret it?
My column this week is about how even the most basic Covid precautions have been stood down, leaving clinically vulnerable people trapped in their homes and accelerating what threatens to become a major surge this autumn. TL;DR: they couldn't give a damn about us. www.theguardian.com/commentisfre...
