🇪🇺Today, as part of the @eular.org #PARE conference, we are visiting the European Parliament!
💪🏼 Proud to be representing ERN ReCONNET and @afosfolipido.bsky.social

In Ljubljana attending the ERN ReCONNET
#Transition training workshop! Looking forward to 2 days of exchanges and brainstorming together. Thank you to
Drs. Tadej Avcin and Mojca Zajc for the invitation 😊

In Munich 🇩🇪 today with the @eular.org #PARE committee, working already on topics like the November Conference or 2026 EULAR Congress!

#EULAR2025 #PARE #Highlights:
Takeaway messages:
👉🏼 Ask and listen!
👉🏼 Start the conversation!

#EULAR2025 #PARE #Highlights:
EULAR PARE Posters:
☝🏼47 Posters
📊3% of Posters
🎤3 Poster Tours

#EULAR2025 #PARE #Highlights:
#EMEUNET Meets PARE "Speed-dating" Event
👉🏼 From patient's perspective, identify key research priorities and future directions.

#EULAR2025 #PARE #Highlights:
Meet the Experts:
👉🏼“Collaborative Research: Insights From Researchers on Patient Partnerships” by Martin J. Stevens #notokenism
👉🏼“Together on the Journey: Child and Family Involvement in Rheumatology Transition” by Klaire Connor

#EULAR2025 #PARE #Highlights:
Al in medicine: Your future doctor and researcher, chaired by Michael Poelzl and Corinna Elling-Audersch

#EULAR2025 #PARE #Highlights:
The Sleep Struggle: Navigating Fatigue in RMDs, chaired by @drminidey.bsky.social and Marcos Séneca

#EULAR2025 #PARE #Highlights:
PARE Abstract Session: From Abstract to Concrete: PARE Perspectives, Preferences, and Expectations in RMDs. Chaired by Caroline Kirsten and Kyriaki Spanidou.
The #EdgarStene prize “Tangible Memory” by Yvonne Balvers was presented: www.eular.org/pare-stene-p...

#EULAR2025 #PARE #Highlights:
Let's talk about relationships - conception to birth, chaired by Jeanette Andersen and Peter Boyd

#EULAR2025 #PARE #Highlights:
Breaking the silence on mental health and inflammation, chaired by Peter Böhm and Jeanette Andersen

#EULAR2025 #PARE #Highlights: Fishbowl session - From exclusion to empowerment: Engaging marginalised groups, chaired beautifully by @simonrstones.bsky.social

Michael #Highlights #LupusGPT developed by @lupuseurope.bsky.social, a new AI tool aimed for patients, who just won the PFMD “Made with Patients” award. Congratulations! 🥳
Find it here: lupusgpt.org

First session in #Highlights : Transforming Healthcare: Navigating New Technologies, chaired by Diederik De Cock and Kyriaki Spanidou
#EULAR2025 #PARE

Michael starts by summarising the contribution of the #PARE community to #EULAR2025

Very happy to see again #PARE highlights in the closing session of #EULAR2025.
Michael Poelzl presented the #Highlights of the Patient and joint sessions presented by Peter Boyd, a 🧵

Wonderful to hear from our @eular.org 2025 Edgar Stene Prize winner, Yvonne Balvers, who focused on the challenges of everyday activities that able bodied individuals may dismiss, and the persistence of trauma from childhood-onset RMDs into adulthood #eular2025

Fantastic to see Sladjana, a STRATA-FIT patient research partner, presenting about the project and the evaluation of PRP involvement - partnership, communication, and support are critical #eular2025

Day 3 of #EULAR2025!

😴 We’ll discuss all things related to sleep & fatigue in this fascinating #PARE session

📍 C3
🕰️ 15:45-17:00
🗓️ Today!

👋🏼 See you there!

The disconnect between patient and HCP priorities in Sjogren’s Disease endpoint priorities, specifically for pain, fatigue, and QoL is evident #eular2025

Co-creation in practice: creating new clinical endpoints for primary Sjogren’s Disease between patient organisations, healthcare professionals, and industry professionals #eular2025

Support requests for patient organisations regarding roll-out of electronic health records… again highlights the need for integrated collaborative approaches between healthcare providers/payers and patient organisations #eular2025

At the #EULAR2025 #PARE Poster tour, full room!

Daniel Aletaha, President of EULAR, always knows how to make an entrance! #EULAR2025 is officially underway! 👏 @eular.org

Happy to be at #EULAR2025 in Barcelona!

IMPACT Trial
Certolizumab in high-risk pregnancies (APS + LAC):
• Complications: ↓ from 80% to 20%
• Gestational age: ↑ from 24 to 36.5 weeks
• Live births: ↑ from 38% to 93%

Huge congratulations to Jane Salmon & team – truly transformative results!

🤔Missed any #RheumaPreg25 sessions?
No worries! Join the highlights webinar on May 26. Contact @karenschreiber.bsky.social or @lauraandreoli.bsky.social to join the #ReHFaP mailing list 📩

Third and last day of #RheumaPreg25!

Karen finishes with a call for action:
We need more interventional studies in #oAPS!

#RheumaPreg25 #APS