The best godmother to us LC advocates I could’ve ever hoped for ❤️

May I End My Life With You?

Over two years ago, the magnificent Beth Mazur ended her life while visiting me. I miss her. www.nytimes.com/2026/04/03/s...

Thank you for sharing this and for being so loving to her, Julie. I miss her so much

Thinking of my beloved tiger queen Alice Wong today, and what better a way to celebrate than with her work; Alice was so many things, and among them was an incredibly sharp, talented writer with a luminous love for words.

Long COVID: major findings, mechanisms and recommendations - Nature Reviews Microbiology Long COVID is an often debilitating illness of severe symptoms that can develop during or following COVID-19. In this Review, Davis, McCorkell, Vogel and Topol explore our knowledge of long COVID and ...

Now at 2 million downloads and the 4th highest @altmetric.com rated peer-reviewed paper in the past 3+ years
Thanks to @ahandvanish.bsky.social @lisamccorkell.bsky.social @julialmv.bsky.social www.nature.com/articles/s41...

Long COVID leaves thousands of L.A. county residents sick, broke and ignored Six years after the COVID-19 pandemic began, doctors are still treating long COVID patients with complex symptoms and unknown futures.

“You’re not just becoming disabled,” said Elle Seibert, 31, who has dealt with debilitating fatigue and cardiac symptoms since 2020. “You’re realizing how easily society at large and people in your life will abandon you when you cannot offer them things.” www.latimes.com/science/stor...

For #LongCovid Awareness Day, we’re releasing the 2026 Long Covid Fact Sheet! This is a list of key statistics about LC, using recent data to reflect contemporary risks.

We hope this will be useful for journalists, policymakers, patients, & others! /1

Donate to Critical Healthcare Support for Victoria, organized by Vee Copeland Hello everyone, My name is Victoria and thank you for checking out my gofundme.… Vee Copeland needs your support for Critical Healthcare Support for Victoria

its long covid awarness day, if you wanna help me be reconnected to all of my belongings that I couldnt bring with me in the air ambulance i had to take across the country (that i had to take bc of lc) you can donate here gofund.me/deac55be8

I know others need it more so I understand if not <3

Long COVID Treatment Guide An evidence-supported guide covering treatments addressing multiple Long COVID symptoms & mechanisms — focused on prescription medication, with a limited set of supplements, OTC medications, procedure...

We're thrilled to release the #LongCovid Treatment Guide! This is a collaboration with @rthm.bsky.social to help patients & providers explore treatment options together.

The guide focuses on 24 medications, but includes a few other interventions for breadth /1

Long COVID: major findings, mechanisms and recommendations - Nature Reviews Microbiology Long COVID is an often debilitating illness of severe symptoms that can develop during or following COVID-19. In this Review, Davis, McCorkell, Vogel and Topol explore our knowledge of long COVID and ...

3 years ago @ahandvanish.bsky.social, @lisamccorkell.bsky.social, @julialmv.bsky.social and I published a review on #LongCovid. Since then it has been downloaded nearly 2 million times and is #4 of >500,000 papers published since by @altmetric.com www.nature.com/articles/s41...

Remembering Alice Wong: Writer, Advocate, Friend Though we were in frequent conversation for a decade, I only got to meet my friend Alice Wong in person just once. And when I did, I  was a bundle of nerves—and that was before she cussed me out wi…

lithub.com/remembering-.... read this achingly beautiful piece by @thrasherxy.bsky.social I keep thinking, @sfdirewolf.bsky.social was irreplaceable but she nurtured a whole-ass huge forest (or series of forests). No one can replace her, except for all of us doing the work she nurtured in us.

THE LANCET Infectious Diseases COMMENT • Online first, November 07, 2025 Negative results in long COVID clinical trials: choosing outcome measures for a heterogeneous disease Lara Goxhaj • Lisa McCorkell • Femke van Rhijn-Brouwer . Letícia Soares . Julia Moore Vogel . Chloé de Canson

Many Long COVID trials have reported negative results in 2024 and 2025. In our Comment for @thelancetinfdis.bsky.social we argue that inadequate outcome measures might have played a role. (1/12)

Opinion | Trump Is Turning Our Consumer Watchdog Into a Corporate Protector

The C in Trump’s CFPB stands for Corporate not Consumer. Gift link: www.nytimes.com/2025/05/21/o...

Patients with severe ME/CFS need hope in the form of evidence-based interventions, not opinions.

Thank you to some amazing colleagues who took time and precious energy to craft this rapid response to the recent @bmj_latest piece. When people try to hijack #LongCOVID, #MECFS and other complex illness as psychosomatic it is important we strike back: www.bmj.com/content/389/... 1/

Thank you so much Julia ❤️ I am so proud and honored to know you, have worked with you, and have learned from you these last few years

Thank you Jess 🥹❤️

🥹 thank you Charlie. The feeling is mutual - so beyond grateful to have gotten to know you through this work. Thank you for endlessly supporting and inspiring me!

Lisa McCorkell reflects on five years of Long COVID research, and leaving PLRC - The Sick Times Lisa McCorkell, one of the founders of the Patient-Led Research Collaborative (or PLRC), recently stepped down after five years co-leading the organization. The Sick Times co-founder and managing edit...

Today @thesicktimes.bsky.social: I did an exit interview with @lisamccorkell.bsky.social, reflecting on her five years at the Patient-Led Research Collaborative.

You can read the transcript or listen on our podcast (thanks to @hashtagjames.bsky.social!!). thesicktimes.org/2025/04/07/l...

If you are not disabled:

Please use the occasion of #LongCOVIDAwarenessDay to educate yourself about the ongoing risks of COVID to yourself & those around you.

We're begging you to consider the risks you can pose to others & act accordingly.

There are many great articles, including this one:

1/2

Opinion | The free-living bureaucrat Michael Lewis on Heather Stone of the Food and Drug Administration.

Esp now we need reminders of the great work that often goes unnoticed in the US govt. Excellent feature from the @washingtonpost.com on @cureid.bsky.social . #LongCOVID #LongCOVIDAwareness2025

wapo.st/3Ft2hBe

😭 Thank you so much, Phil. I hope so. Your belief in me has meant so much.

🥹 thank you Melissa!!

Thank you so much 🥹❤️ Am grateful for all of the work of Long Covid SOS and for your support!

🥹❤️

🥹 Thank you, Ezra, for your support, friendship, and all of your efforts

🥹 thank you so much, Catherine. I have learned so much from you and will take your lessons and insights with me for whatever comes next

Thank you so much, Billy!!! So grateful for you, your support, and all of your efforts.

Thank you to the PLRC team and all the patients, advocates, and clinicians/researchers in the Long COVID, IACC, and disability communities that I’ve had the pleasure of working with these last few years - you and your work are so appreciated. Sending love and solidarity.

While this transition has been in the works for a while, I look forward to resting, resetting, and rebalancing, and then eventually working in policy, always with our infection-associated chronic condition community on my mind.

In the wake of the new administration, some of this progress may be at risk and it may be even more difficult than usual to achieve what we deserve. Remember through this time that there’s immense power in community.