The deadline for abstract submission for the 3rd International Long COVID Conference has been extended through TODAY!
For more information, academicmedicaleducation.com/programs/3rd...
To submit an abstract: virology.eventsair.com/Presentation...
Abstract submission has been extended through 9/12!
Image showing a poster presenter at a conference and that the abstract submission deadline for the demystifying Long COVID International Conference 2025 is Friday, 29 August 2025.
Image showing information about the 3rd Long COVID International Conference in 2025, and that the Abstract Portal is now open with a deadline of Friday, August 29th, 2025. The categories of abstract submission are epidemiology, syndrome definition and diagnosis, pathophysiology, Long COVID in diverse populations, prevention of Post-COVID conditions, treatment strategies and clinical trials, clinical management and models of care, economic impact, pregnancy, pediatrics, biostatistics methodology in Long COVID research, social determinants of health, and other post-acute infection syndromes.
Excited to announce that I'll be on the Scientific Committee for the 3rd Long COVID Int’l Conf, Nov 19–21, 2025 in Boston (hybrid).
Abstracts due Aug 29!
Submit here: virology.eventsair.com/long-covid-i...
🌐 More info: academicmedicaleducation.com/meeting/long...
I'm looking forward to speaking with Alex Stenzler at Brain Inflammation Collaborative's webinar on a new treatment that may improve brain fog for some patients.
The talk is on 8/7 at 2PM ET, and those who register will also get a recording.
braininflammation.org/brain-blood-...
Amazing, what a relief. This makes my day. I'll stop reading the news now so I can go to bed happy tonight :)
I asked a Trump health appointee if he believes in Long COVID.
Couldn’t get a direct answer.
I asked if he’d recommend the COVID vaccine.
Couldn’t get a direct answer.
Let’s set the record straight: Long COVID is real and vaccines work. Claiming otherwise is dangerous.
youtu.be/RrhGV79z9NM
Reminder that @longcovidfam.bsky.social is having a pediatric Long COVID Awareness week *this week*. Please see the link below to register!
longcovidfamilies.org/advocacy/ped...
@longcovidfam.bsky.social always creates an informative, enlightening, and motivating Long COVID Awareness week.
I'm excited to be speaking at it this year alongside other dedicated Long COVID researchers and advocates.
Find out more and register here: longcovidfamilies.org/advocacy/ped...
Register here to hear about results and progress from 10 Long COVID studies funded by the Patient-Led Research Fund on July 9th:
patientresearchcovid19.com/projects/pat...
Long COVID Families will be hosting a listening session on Long COVID in kids on Tuesday, June 10 at 12:00 PM ET.
Link to register here:
cr88d.share.hsforms.com/2KHjLXC5jT0G...
The design included prospective cases. Those infected with COVID-19 were compared to those who were not and symptom prevalence was assessed. While there are always outliers, the symptoms described were reported with increased frequency/severity in the COVID group.
RECOVER paper on Long COVID symptoms in young children is out. This work is important because symptoms are different in the youngest affected, under-recognized, and under-reported.
jamanetwork.com/journals/jam...
URGENT: FDA plans to limit COVID vaccine access to those 65+ and those with qualifying health conditions.
It will be almost impossible for kids to get vaccinated against new variants.
You can submit a comment today to oppose this.
PLEASE submit here:
www.regulations.gov/commenton/FD...
Graphic on a white background and bearing the Solve M.E. logo advertises the recording of the Solve M.E. webinar "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in ME/CFS & Long COVID." Depicts 6 headshots of: Liisa Selin, PhD, Prof. Dept. of Pathology, University of Mass. Chan Medical School, Anna Gil, PhD, Instructor of Dept. of Pathology, University of Massachusetts Chan Medical School, Roshan Kumar, PhD, Executive Director, Head of External Innovation, HiFiBiO Therapeutics, Megan L. Fitzgerald, PhD (Neuroscience/Neurology), Researcher & Patient Rep, Rivka Solomon, MS, Patient Advocate & Patient Rep.
🎥 The recording of "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID," w/panelists from Selin Lab, HiFiBio & patient reps @rivkabluesky.bsky.social
& @themegascope.bsky.social, is online now.
Watch here: youtu.be/2DQZp48fyek
I'll be joining the Selin and Kumar labs today at 3 pm PT/6 pm ET for a webinar on their research called "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID"
Register here to attend:
ow.ly/4Spj50VumTk
3 years ago I joined a panel of patients to determine how to allocate $4.8 million to Long COVID, ME/CFS, & dysautonomia research (the @patientled.bsky.social research fund).
It was an amazing experience working with patients like @ahandvanish.bsky.social @themegascope.bsky.social & many more.
🧵
How are people with Long COVID affected by COVID reinfections or other common illnesses? What are long-term health outcomes?
PLRC joined forces with Visible to find out. Please consider enrolling, and if you are already enrolled, remember to log any infections!
www.makevisible.com/blog/introdu...
We did it y'all. They're walking back the cuts.
Thank you, thank you, THANK YOU to all the patients and researchers and reporters who drew attention to this, and helped us to succeed in changing hearts and minds.
💪💕💪
thesicktimes.org/2025/03/28/u...
Years of hard work and the promise of treatment and cures for Long COVID are at risk because of these funding cuts. The human, economic, and social costs of these cuts at this point of time can't be overstated: thesicktimes.org/2025/03/27/r...
#NoLongCOVIDCuts #LongCOVID #SaveScience
Despite the "Make America Healthy Again" slogan, new cuts by the Trump administration target pathobiology studies on Long COVID. These studies, nearly complete, could lead to major breakthroughs. Halting them now wastes past investments and undermines vital research.
cen.acs.org/policy/resea...
None of us asked for Long COVID, none of us want this.
But so many of you have shown courage and solidarity and built a community against all odds.
Thank you, from the sea in me to the sea in you.
Knight speaks to the depth of feelings that can unite a group of people. It's a poem of incredible movement and strength. I've read it over and over and wanted to share it today, on Long COVID Awareness Day.
For all those fighting Long COVID:
“You have made something
Out of the sea that blew
And rolled you on its salt bitter lips.
It nearly swallowed you.
But I hear
You are tough and harder to swallow than most . . .”
S. Mansfield, to Etheridge Knight
youtu.be/zsdwN9B72bc?...
Really interesting preprint using data from the Visible app to show the effect of cycling ovarian hormones and birth control on Long COVID and ME symptoms: www.medrxiv.org/content/10.1...
PLRC & 4YouAndMe are recruiting Long COVID patients to work on an app to help patients manage symptoms. Participants are compensated and will receive wearable devices. Please see the attached flyer for more info, and contact emma@4youandme.org with questions or if you are interested!
