Thank you we really appreciate that!

Double Your Impact This Giving Tuesday 💙

Every dollar given will be MATCHED 1:1 up to $15k - helping us reach our $50,000 goal to fuel hope for families facing genetic FTD.

www.zeffy.com/en-US/donati...

Cure MAPT FTD | We envision a future free of MAPT FTD | Bonfire WE'RE FIGHTING FOR  A FUTURE FREE OF MAPT-RELATED FRONTOTEMPORAL  DEMENTIA

Look good while doing good: Whether you're a caregiver, scientific researcher, or dementia advocate, our #BlackFriday hoodies, hats and Ts have got you covered. The best news? All your money goes to support our efforts to find a cure. #frontotemporaldementia #ftd.
www.bonfire.com/store/cure-m...

We have an exciting announcement! 📣

Cure MAPT FTD merch is finally live!All proceeds will benefit our cause.

Whether you're a caregiver, researcher, or passionate advocate, we've got you covered. What other empowering phrases would you like to see in our store?

www.bonfire.com/store/cure-m...

Back by popular demand, we’re having another social hour this month! All families and community members are invited 🍁

Register here:
us06web.zoom.us/meeting/regi...

Our first Family Social Hour is today at 8PM! Join us to meet other #MAPTFTD families ❤️

#cureMAPTFTD #FTD

us06web.zoom.us/meeting/regi...

World FTD Awareness Week 2025 logo with the following text that reads: "What if it's FTD? Did you know FTD carers experience some of the highest stress levels? #endFTD"

Did you know FTD carers experience some of the highest stress levels?

No roadmap, limited support, no recognition. The person with FTD may believe, “nothing is wrong”. Others may even blame the carer.

🌎 Learn more: https://bit.ly/3JIO6u0

MAPT FTD is inherited in an autosomal dominant pattern, meaning if one parent has a MAPT gene, each child has a 50% chance of inheriting it.

Almost everyone with the gene will develop symptoms (full penetrance), usually between ages 40-60. In rare cases, onset can be later or never happen at all

This is big news for neurodegenerative diseases!!!

FTD Genes cause different symptoms:

MAPT → Changes personality first. Loss of social skills, repetitive behaviors.

GRN → Often causes depression/anxiety first, plus movement problems. May affect speech.

C9orf72 → Often overlaps with ALS, causing apathy and memory impairment.

Cure MAPT FTD YouTube video by Cure MAPT FTD

On #FTDAwarenessWeek, we’re asking the world to learn about frontotemporal dementia, the most common form of dementia for those under 60. #dementia #ftd #frontotemporaldegeneration

Anyone with dementia, cancer or any serious disease in their family should be very concerned about the proposed 40% budget cuts at NIH. Standing with our renowned scientists by signing their petition. #NIH #dementiaresearch #cancerresearch #maptftd

www.standupforscience.net/bethesda-dec...

Inside the Penn FTD Center - FTD Disorders Registry The FTD Disorders Registry joined FTD community advocates for a behind-the-scenes tour of the Penn FTD Center,

The Registry joined representatives from Cure GRN, @curemaptftd.bsky.social, Cure VCP, & the Progranulin Information Navigator for a visit to @pennftdc.bsky.social. It was a powerful reminder of how research & community collaboration are driving progress to #EndFTD.

ftdregistry.org/press/inside...

Join us this Friday for a Friday Families meeting! All MAPT FTD families & individuals are welcome. Our esteemed speaker Dr. Nupur Ghoshal, MD PhD will be discussing the Tau protein & how it relates to FTD.

Time: 2:30 EST / 11:30 PST

RSVP here:

addcal.io/e/8dvuabbn7why

We are so excited for this year's AFTD Education conference! Come meet us in person, this Thursday and Friday. We have a table! See you all there ❤️

@theaftd.bsky.social

#curemaptftd #maptftd #ftd

This week, Cure MAPT FTD member Linde Jacobs was featured on the podcast "What's Health Got to Do with It?", sharing her experience with FTD.

Listen to the podcast here: news.wjct.org/show/whats-h...

Available now on all podcast streaming platforms!

#curemaptftd #maptftd #npr #nprpodcast #ftd

Brains on the brink: Fighting fate and defying age Dr. Joe Sirven explores the fight against genetic destiny and aging.

Had the pleasure of joining the inspiring Linde Jacobs from @curemaptftd.bsky.social for @npr.org "What's health got to do with it?"

Listen in on a moving conversation on resilience as we fight with her and so many others against genetic destiny🧬🧠

npr.org/podcasts/103...

With so many great tau researchers like @leatgrinberg.bsky.social @lucbuee.bsky.social @sjorsscheres.bsky.social @selinawray.bsky.social @karchlab.bsky.social on #SciSky could not help but put together my 1st starterpack⤵️

We are all fighting for you @curemaptftd.bsky.social 💙

go.bsky.app/KHno2VG

We are so grateful for all those trying solve and stop these diseases. We are honored to fight along side all of you!

Fighting to Avoid Her Mother’s Fate, for Her Daughters’ Sake (Gift Article) A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?

www.nytimes.com/2024/12/22/h...

Front page on @nytimes.com on Christmas Day❤️ Fighting for all those afflicted with FTD and hoping for a world with more understanding, grace and patience towards those who seem “different”. #endftd

A must-read article for anyone working on #tau and #dementia. I remember Linde Jacobs' important and moving talk at the Tau2024 conference in Washington DC. Her presence at the meeting underscored how important it is to fund and conduct research on tauopathies

A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate (Gift Article) A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?

Our hearts go out to the families, patients and caregivers affected by FTD and other neurodegenerative tauopathies. We are proud to collaborate with terrific scientists to improve understanding and advance therapies as part of the #TauConsortium. This is why we do what we do.

NYT | zurl.co/hDdSP

A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?

Linde Jacobs’s mother died after a genetic mutation gradually laid waste to her brain. Now the same gene is coming for her own mind. Can she find a way to stop it?

No-Cost Genetic Testing | AFTD Genetic testing is sometimes available at no cost through research studies such as the ALLFTD study and through sponsored third-party testing programs.

There are panel genetic tests that can be done. If you look at this website on the AFTD page, you may be able to find ways to get genetic testing. www.theaftd.org/ftd-genetics...

A Woman With a Rare Gene Mutation Fights to Avoid Her Mother’s Fate (Gift Article) A mutant gene is coming to steal Linde Jacobs’s mind. Can she find a way to stop it?

Hello BlueSky. One of our cofounders, Linde Jacobs, is profiled in The New York Times today. It’s a moving snapshot of what an FTD family goes through. Help us fight for therapies that can cure dementia for under 60s. #ftd #aftd #dementia #tau #alzheimers #mapt

www.nytimes.com/2024/12/22/h...